Discussions By Condition: I cannot get a diagnosis.

Multiple Non Ossifying Fibroma

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: me'shel
  • October 30, 2009
  • 03:29 AM

Does anyone out there have multiple non ossifying fibromas in their body or know of someone that does? Have they caused you to have multiple pathological fractures? My son has broke both his Left and Right Femurs due to pathological fractures from NOF's. He has two more NOF"s they found in is right and left femur up towards the head. They are almost symmetrical placed of both side. Same with the brakes of the femur from the ones they aren't removed. His Pediatric Orthopedic said he has never had a case like this where a patient has multiple NOF's or one that has had two pathological fractures due to NOF's without their being an underlining cause or secondary diagnosis to them. Help. Would love to hear any advice or stories.

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  • Does anyone out there have multiple non ossifying fibromas in their body or know of someone that does? Have they caused you to have multiple pathological fractures? My son has broke both his Left and Right Femurs due to pathological fractures from NOF's. He has two more NOF"s they found in is right and left femur up towards the head. They are almost symmetrical placed of both side. Same with the brakes of the femur from the ones they aren't removed. His Pediatric Orthopedic said he has never had a case like this where a patient has multiple NOF's or one that has had two pathological fractures due to NOF's without their being an underlining cause or secondary diagnosis to them. Help. Would love to hear any advice or stories.me'shel, we had to take our son into the ER last weekend because we thought he had injured his knee. Upon examination of the x-ray's, we were informed he has an NOF in his tibia below the knee. While he doesn't have multiple NOF's, that we know of, he does have thyroid disease. We are speculating that his NOF may be related to his thyroid problems and / or medication.They thyroid plays an important role in calcium regulation and bone growth. It's also speculated that thyroid medications can cause a decrease in bone mass leading to osteoporosis. While we aren't sure which one this may be related to, thyroid or thyroid medication, we are almost certain it is related to one of them.For many years now our son has complained of horrible back pain that he gets from time to time. He's only 16, stronger than an ox and doctors haven't been able to find any back problems. We are starting to think this may be related to the same problem that has caused his NOF. He also hurt his wrist earlier this year while skateboarding. A visit to the doctor didn't reveal any fractures or sprains, yet the complaint of pain lasted for almost 2 months. As for your son, has his thyroid ever been tested? If he hasn't been tested, I would probably recommend that you take him to an endocrinologist and have him tested. His NOF's, and fractures associated with them, may very well be due to low bone mass or osteoporosis caused by thyroid problems.
    Anonymous 42789 Replies
    • November 6, 2009
    • 02:53 PM
    • 0
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  • My son has at least 6 lesion on his long bones, femurs, tibias, and humerous, he does not have a thyriod problem. He was experiencing arm pain where the lesion was repaired almost 2 years ago and went to see an orthopedic specialist in Iowa where he is attending wrestling camp. Thankfully he did not have an issue with the humerous but the doctor found another lesions on his forearm near the elbow joint. Does anyone know if lesions can continue to form during teen age years?
    Anonymous 42789 Replies Flag this Response
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