Discussions By Condition: I cannot get a diagnosis.

Multiple health issues at 30

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • December 5, 2010
  • 10:27 PM

I am beyond frustrated. I am 30 years only and a white female. 4'11 and 75lbs. Everything that is going wrong I keep getting told is due to my size, gender, and race.

Issues: fibromyalgia, severe osteoporosis (-3.4 in my spine), my left lung has collapsed twice, patella tendinitis, I had cervical cancer(removed through surgery), before starting birth control my persiod lasted 3 weeks a month, Severe vitamin d deficiency, stigmatism in my eyes, and I have lost all but 4 of my teeth and those are rotting from the inside out despite crowns.

Medications: savella, tramadol, etoldac, lostrimin 24, spiriva, xopenex, actonel, 50,000 idu vitamin d

My mother was also small, had similar eye and teeth issues. She passed away at 45 from malabsorption syndrome and periphial neuropothy

My daughter age 9 also has the stigmatism and has had 9,000 of dental work done already with lots more to go

What in the world is wrong with us!!!!! I am way too young to be this sick all the time!!!!

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3 Replies:

  • I am beyond frustrated. I am 30 years only and a white female. 4'11 and 75lbs. Everything that is going wrong I keep getting told is due to my size, gender, and race. Issues: fibromyalgia, severe osteoporosis (-3.4 in my spine), my left lung has collapsed twice, patella tendinitis, I had cervical cancer(removed through surgery), before starting birth control my persiod lasted 3 weeks a month, Severe vitamin d deficiency, stigmatism in my eyes, and I have lost all but 4 of my teeth and those are rotting from the inside out despite crowns. Medications: savella, tramadol, etoldac, lostrimin 24, spiriva, xopenex, actonel, 50,000 idu vitamin d My mother was also small, had similar eye and teeth issues. She passed away at 45 from malabsorption syndrome and periphial neuropothyMy daughter age 9 also has the stigmatism and has had 9,000 of dental work done already with lots more to goWhat in the world is wrong with us!!!!! I am way too young to be this sick all the time!!!!Do you come from an Rh Negative Family and/or do you have Rh Negative Blood? Have you been tested for HLA-B27?
    thefarrellfam 46 Replies
    • February 26, 2011
    • 07:36 AM
    • 0
    Flag this Response
  • I am beyond frustrated. I am 30 years only and a white female. 4'11 and 75lbs. Everything that is going wrong I keep getting told is due to my size, gender, and race. Issues: fibromyalgia, severe osteoporosis (-3.4 in my spine), my left lung has collapsed twice, patella tendinitis, I had cervical cancer(removed through surgery), before starting birth control my persiod lasted 3 weeks a month, Severe vitamin d deficiency, stigmatism in my eyes, and I have lost all but 4 of my teeth and those are rotting from the inside out despite crowns. Medications: savella, tramadol, etoldac, lostrimin 24, spiriva, xopenex, actonel, 50,000 idu vitamin d My mother was also small, had similar eye and teeth issues. She passed away at 45 from malabsorption syndrome and periphial neuropothyMy daughter age 9 also has the stigmatism and has had 9,000 of dental work done already with lots more to goWhat in the world is wrong with us!!!!! I am way too young to be this sick all the time!!!!Have you been checked for cialiac's disease? This leads to the inability to thrive(size issues), malabsorption, and because of the malabsorption, can be linked to the neuropothy, since you aren't getting the electrolytes that you need. This is one of the most missed of all the diseases. My daughter and wife both have this, and are doing much better on the gluten free diet. It is a pain, but the pay off is so worth it.
    jackrorabbit 113 Replies Flag this Response
  • Have you been checked for cialiac's disease? This leads to the inability to thrive(size issues), malabsorption, and because of the malabsorption, can be linked to the neuropothy, since you aren't getting the electrolytes that you need. This is one of the most missed of all the diseases. My daughter and wife both have this, and are doing much better on the gluten free diet. It is a pain, but the pay off is so worth it.You can find research, recipes, shopping lists for gluten free, starch free, and lactose free at http://www.RhNegativeRegistry.com which will also explain HLA-B27 and the Recessive Rh Negative Factor. Learn about the benefits of Apple Cider Vinegar and Sauerkraut!
    thefarrellfam 46 Replies Flag this Response
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