Discussions By Condition: I cannot get a diagnosis.

MS symptoms without MS?

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Anonymous
  • January 7, 2007
  • 00:30 AM

I have been having many symptoms of MS, Tingling, numbness in the arms and legs, loss of coordination and balance. I loose the sight in my left eye on occassion. I have tremendous weakness and am tired alot- so much that I find it hard to get through the day. I have had an MRI which was negative and an evoked potential which showed a slight delay in the right leg. I have very low blood pressure 80/60 and have been known to pass out for short periods of time. Neurologist says no lesions - so not MS. EEG and EKG are also negative. They have not scheduled me for any more tests and the symptoms are not going away. Could it be the kidneys? I test positive for protiens in my urine. Any ideas??

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15 Replies:

  • Fibromyalgia? Basically, every symtom out there, blanketed by one disease name. Try looking it up online or take a book out of the library. My mom has been diagnosed with it, even though there's no real tests for it, and she gets fatigued and has random pains and all that.Hope you find your answers.--Sarahdeadlysauce@aim.com
    Anonymous 42789 Replies
    • January 7, 2007
    • 00:39 AM
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  • IME I am finding that MS or MS like symptoms in about 90% of cases is late stage Lyme.
    Anonymous 42789 Replies
    • January 7, 2007
    • 01:25 AM
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  • I have been having many symptoms of MS, Tingling, numbness in the arms and legs, loss of coordination and balance. I loose the sight in my left eye on occassion. I have tremendous weakness and am tired alot- so much that I find it hard to get through the day. I have had an MRI which was negative and an evoked potential which showed a slight delay in the right leg. I have very low blood pressure 80/60 and have been known to pass out for short periods of time. Neurologist says no lesions - so not MS. EEG and EKG are also negative. They have not scheduled me for any more tests and the symptoms are not going away. Could it be the kidneys? I test positive for protiens in my urine. Any ideas??REPLY: SINCE YOU MENTIONED PROTEIN IN URINE, HAVE YOU HAD AN IMMUNOFIXATION ENZYME BLOOD TEST TO CHECK FOR PROTEINS AND A SERUM PROTEIN ELECTROPHORESIS TEST? THESE TESTS CHECK FOR M G U S AND MULTIPLE MYELOMA?
    Anonymous 42789 Replies
    • January 7, 2007
    • 07:18 AM
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  • Hi. I goofed on the reply to your message, but since you mentioned Proteins in urine, have you had an Immunofixation Enzyme test to check for proteins in blood or a Serum Protein Electrophoresis test? These tests check for MGUS and Multiple Myeloma. Best of luck. With the doctors of today, you need all of the luck you can get.
    Anonymous 42789 Replies
    • January 7, 2007
    • 07:22 AM
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  • I have never heard of such, I will check into it, thank you
    Anonymous 42789 Replies
    • January 7, 2007
    • 03:01 PM
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  • I have had lots of blood test including a CBC and all have come back within normal range.
    Anonymous 42789 Replies
    • January 7, 2007
    • 03:19 PM
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  • I also had nearly the same (though my eye trouble was a bit different)extreme and disabling symtoms that I could not find a diagnosis for.Someone suggested for two weeks I try eating nothing but lean meat, vegtables, bit of fruit and brown rice. In desparation I tried it, and within 5 days felt almost normal for the first time in years. I eventually found that consuming wheat, corn, sugar, milk, peanuts, and titanium dioxide (found in many vitamine pills) caused the symptoms to return. Am still looking for an answer to why, but it feels good to feel good, even if my new diet is a bit boring... May not be your problem, but easy to find out! Good luck with your search for an answer.
    Anonymous 42789 Replies
    • January 7, 2007
    • 11:10 PM
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  • Check your aspertame usage...numerous people have same issue. Check pks of gum, no diet soft drinks, no yogert, no artifical sugars..get rid of any splenda or other sugar replacements. Google "aspertame disease", Dr Blaylock, Dr. Betty Martini, also check usage of MSG (mono sodium glutamate) mimicks same symptoms ..Sweet Misery..A poisoned world..very enlightening.
    tenfootpole 2 Replies
    • January 8, 2007
    • 00:15 AM
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  • I'm having the same symptoms and had a MRI to check for MS. My result came back negative. My doctor decided to run a urine test and came across Protein in my Urine no blood. I'm awaiting to see a endocrine for my thyroid and also awaiting to see a Heart Specialist and a Kidney Specialist. I'm in the same boat with you and hope to find whats really wrong. I wish you good luck.
    Anonymous 42789 Replies
    • January 12, 2007
    • 08:14 PM
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  • Lyme Disease Presenting as Chronic Fatigue Syndromeby dr s sImmuneSupport.com11-01-2006 Journal: Journal of Chronic Fatigue Syndrome. Vol. 13(4) 2006 pp. 73-82. docdelivery@haworthpress.com ; Website: http://www.HaworthPress.com.] Author and affiliation: Samuel Shor. George Washington University Health Care Sciences, Reston, VA. sshor@intmednova.com) DOI: 10.1300/J092v13n04_06 Objective: Chronic Fatigue Syndrome (CFS) by definition represents a diagnosis of exclusion. Late stage or "Chronic Lyme" infection with or without "co-infections" is a difficult diagnosis to establish. The symptom complex of both conditions can be very similar. This case study represents an attempt to support serious consideration for a subpopulation of patients otherwise diagnosed with "CFS," as actually representing chronic Lyme disease. Method: A case study is presented of a 33-year-old man, who for two years, was being managed as having CFS. However, after ~2 years of utilizing multiple modalities of management with limited success, the diagnosis of Lyme was reconsidered. Historical exposure risks to Lyme in this individual were high. He had prolonged exposure in the highly tick-infested mountains of North Carolina for 18 months, several years prior to becoming ill. More aggressive investigation confirmed the diagnosis of Lyme. Appropriate changes in management were associated with an improved level of functioning that was far in excess of what maximal management of CFS was able to achieve. The features of CFS and chronic Lyme can be very similar and include the following: Profound fatigue often associated with cognitive impairment. Other common symptoms related to both of these conditions include sleep disturbances, fibromyalgia, and dysautonomias. In pursuing clarification of this diagnosis, the author was exposed to a contrast in medical opinion regarding diagnostic tools and criteria that were perceived as creating potential barriers to the management of patients presenting with these symptoms. Conclusion: Acceptance and awareness of the possibility that Lyme disease can present as CFS has important therapeutic and prognostic implications. Keywords: Lyme disease, chronic Lyme, chronic fatigue syndrome, CFS, fatigue.There are similar articles relating MS, ALS, Lupus, and Fibro to Lyme ~~ Be sure to get the Western Blot Lyme test is't the most accraute one there is.
    Anonymous 42789 Replies
    • January 16, 2007
    • 11:58 AM
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  • I am unable to walk without a walker, and with walker only about 10 feet, I cannot stand for 5 minutes. Rt. leg is dead, it drags, numb, little to no response on tests. 24/7 incontinent issues. (10 depends a day and 5-6 changes of lower body garments) Basically can't go anywhere. I have a shower chair, but any warm water hitting body is very difficult. Showering about once every 2 weeks. Need assistance to get leg over tub. Then have to lay for about 3-4 hours,. Wash hair really fast as can't keep arms up that long. OVerall weakness, extreme fatigue. Have three bulging disks, L-4,L5-and S1, but they say that isn't the cause. I cannot have MRI due to wrong metal in face., Ct scans almost normal. Cervical, Lumbar, Brain. Left hand constricts badly. Can't cut food. And so far, no disability. MS, they don't think now, spinal stenosis, they say no. They are going to do a spinal tap. Any suggestions. 5 years now. Toast is about all I can make any more.
    Anonymous 42789 Replies
    • January 24, 2007
    • 01:28 PM
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  • i agree with the suggestion to try paleo diet (greens, protein and few other things) to eliminate celiac and other food allergies/autoimmunities.look into iron metabolismiron overload: http://www.irondisorders.org http://www.ironoverload.orgsarcoidosis maybediabeteslef.org, mercola.comgood luck!
    Anonymous 42789 Replies
    • January 25, 2007
    • 08:28 PM
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  • My father is suffering from the exact same symptoms and his MRI came back negative as well. His Kidney function test, and all labs are negative. Now his Neurologists is looking into Chemical contaminants.
    Anonymous 42789 Replies
    • August 15, 2008
    • 01:30 PM
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  • Can anybody help me?I used to be a great runner with fantastic rythm then at age 13 I suddenly lost that rythm and it slowly got worse. My legs then began to feel heavy and my thigh muscles felt on fire but I persevered with the sport until about age 20 when it just became way too hard.At age 18 my voice began to slur a little and my balance went.At age 20 I made the Seoul Olympics for boxing but at age 24 I was diagnosed with mid to high range Multiple Sclerosis. MRIs in the past four years have quashed that although I do have an old brain to the bleed.I am tired all the time, heat knocks me badly, my coordination has got much worse over the years and now, at age 41, I get easily beaten by my 10 year old son's friends at soccer in games of 10 minutes or less before I am completely stuffed with pain to my legs.My son also had a spontaneus bleed to the brain and spine at age 9 and he shows similar coordination problems.My feet have now started to cramp at night from time to time.If it's not MS, what can it be?
    Anonymous 42789 Replies
    • December 8, 2008
    • 05:15 AM
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  • I'm having the same symptoms and had a MRI to check for MS. My result came back negative. My doctor decided to run a urine test and came across Protein in my Urine no blood. I'm awaiting to see a endocrine for my thyroid and also awaiting to see a Heart Specialist and a Kidney Specialist. I'm in the same boat with you and hope to find whats really wrong. I wish you good luck.Has your MD ordered an ANA (Anti-Nuclear Antibody?) It's a simple blood test to screen for autoimmune disorders, such as SLE, which can mimic MS. A Lyme titer would also be appropriate depending upon your geographic location. Best Wishes.
    Anonymous 42789 Replies
    • September 4, 2009
    • 01:37 AM
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