Discussions By Condition: I cannot get a diagnosis.

MS symptoms but no diagnosis

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: rach720
  • January 22, 2007
  • 06:48 AM

My friend, 48 female, had uveitis, uveitic glaucoma and loss of hearing since 9 years ago. She was put on oral prednisone for a few months less than a year ago to see if it helps her glaucoma (on steroid eye drops continueously). Since, she has had swollen upper limbs left more than right side, ataxia, wide base walking, decrease balance, falls, numbness/tingling limbs, weakness left side. She was admitted to the hospital with left sided facial weakness Nov,2006, but with discharged Dx uninary tract infection and on antibiotic amoxicillin. She had left facial numbness and twitching + muscle stiffness attacks from side to side every one to two days. Further ataxic, tremor, muscle weakness left leg, unable to stand or walk. Extensive blood works, MRI, CT scan and EEG during the seizure all come back negative. She continue to have seizure and walk with a walker and one person assit in a very poor gait. But her doctor said she is medically stable and ready for going home.
Please help!

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12 Replies:

  • Has your friend been tested for Wilson's disease?richard96@hushmail.com
    Anonymous 42789 Replies
    • January 24, 2007
    • 02:58 PM
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  • The copper test results aren't back yet. The doctor said it is not worth to go for further extensive tests to find the cause anymore. Treatment of symptomatic approach is what appropriate for now.
    Anonymous 42789 Replies
    • January 24, 2007
    • 10:27 PM
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  • my mother had several of your friends symptoms...MRI's were always normal ....MRA results found cereberal aneurysms....try getting your friend to have an MRA..
    Anonymous 42789 Replies
    • January 24, 2007
    • 10:39 PM
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  • does she take a statin medication for cholesterol?
    Anonymous 42789 Replies
    • January 25, 2007
    • 08:38 AM
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  • Celiac disease (or other related dietary) can result in parkinson/MS-like symptoms. Maybe try gluten-free diet. My understanding is that the results of the diet can be diagnostic. Though it is tough to completely avoid gluten unless you avoid eating out and eating processed foods.Other things to look into: thyroid, blood-sugar, iron metabolism (overload)
    Anonymous 42789 Replies
    • January 25, 2007
    • 07:40 PM
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  • Thanks! I will mention to her about aneurysm.She did not take statin. She has not been told of any celiac disease. I will mention to her
    rach720 2 Replies
    • January 30, 2007
    • 04:52 AM
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  • Lyme disease and its co infections mimick Ms. It cause neuro proiblems and weakness. All steriods are bad for people with undx'd Lyme, she seems to have gotten worse since using them.. Lyme will aslo mess with the thyroid and adrenals and deplete minerals in the body... Just another opinion thrown out there , to check into. Hope she feels better soon~~Jersey Girl
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:28 AM
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  • my friends mum had those symptoms, she has motor nuerone disease.
    Anonymous 42789 Replies
    • February 3, 2007
    • 10:53 AM
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  • Hi, my symtoms are the same. i know how she feels. no diagnosis has been made on me too. i am getting worse , i wish someone could help us. i was on staroids also, maybe there is a connection. i have had all those test done. still no diagnosis. its been about a year and half trying to find a answer. i have seen so many doctors but not one has helped me. now i can barely walk ,see ,and my whole left side is numb, including my face, and my breathing has been affected also.i hope we find a answer soon. its been along road. its great your friend has a friend like you, trying to help find an answer. i am sure it helps. hopefully one day i will find a answer and a good friend like you. ''angel ''.
    Anonymous 42789 Replies
    • February 3, 2007
    • 07:11 PM
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  • I sent my friend to a research teaching hospital last Wednesday. She is having intense physiotherapy treatment and a balance program. She also has some tests done, but I don't have the actual details. I will update you later.God loves everybody who believes in Him(***********t died on the cross for our sin)! People care for each other at our church and my friend has 3 kids age 23, 12 & 9 but no husband. We try to provide support to her & the kids.
    rach720 2 Replies
    • February 4, 2007
    • 08:30 PM
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  • I will pray for your friend and her family. She is blessed to have such a good friend and you should feel good too. My husband and I are going through something similar. 5 doctors have ruled out MS eventhough he has all the symptoms. And they are getting worse. At this point I just wish for a diganosis, whatever the result may be. We go for a spinal tap in Feb and an EMG in March. Hopefully we can get answeres, its been about 7 months and he has not gotten better. Prayers to those who need them!
    Anonymous 42789 Replies
    • January 18, 2009
    • 05:03 AM
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  • The copper test results aren't back yet. The doctor said it is not worth to go for further extensive tests to find the cause anymore. Treatment of symptomatic approach is what appropriate for now. I dont know how any doctor can say symptomatic approach is appropiate without even knowing the cause!! How does he really know at this point if he's treating her appropiately? I hope she goes and finds another doctor, one who isnt going to just give up on her! If a doctor cant work it out he should be sending her to various specialists till someone does work it out.
    taniaaust1 2267 Replies
    • January 19, 2009
    • 11:41 AM
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