Discussions By Condition: I cannot get a diagnosis.

MS????(multiple sclerosis) please help

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • April 21, 2011
  • 10:33 PM

Hi I am 35 yrs female having health concerns, and seem to keep going in medical circles. Any suggestions, advice, really anything would be appreciated. Here is symptoms and history - I'll try and keep it brief, but as much info as possible ; ).
I do have a history of passing out when I get overheated and that is what happened last May which ended up starting my crazy journey; May, June, and July last year I passed out once each month all when I got over heated, also during this time off and on my left eye and right shoulder would twitch, skipped August and started again in September - but this time my left arm went numb and had chest pain. Went to ER and docs just said heat exhaustion. Anyways over the past several months I have passed out at least once a month, and new symptoms that have progressively gotten either worse or more intense. Now all my symptoms are: fast heart beat, chest pain (feels like someone is grabbing an area and making a fist), headaches ( go away with meds), an ache in mid back and under shoulder blades, times I feel like I am wearing a tight shirt that is 5 times to small, frequent heart burn, short term memory loss, zoning out, times I feel like I am being choked, major fatigue, muscle weakness, muscles tingling and they feel like they are shrinking, moodiness/irritable, dizzy, lightheadedness, blurry/double vision ( right eye), and over the past month I have seen red spots 4 times, I see like little black squilligles, when I close my eyes for several seconds it's like a strobe light is on, I have also seen showdows on the side of my vision thought someone was there looked and nothing there. My skin is tingly and I have lost feeling (like I had shots of numbing med) pretty much constant, there are times it is head to toe, but mainly my right side of face and upper arms and lower legs muscle twitching that is mainly in lower legs. Right below rib cage all the way around like a belt it tingles/numb. Several areas feel like icey hot has been rubbed on my skin. I had the same thing going on in 2006-2007 but much much milder and only when I got over heated. Use to get like this ONLY when I got overheated, now it's all the time and worse when it's really cold, hot, strenuous activity, and now mid mornings are getting bad. My normal body temp use to be 97.1 - 97.3 now it's 98.6 - 99.9; also use to get a cold sore once maybe twice a year - now, every 4 - 6 weeks. I have TONS of testing done - several ER visits, cardio, neuro, internal med - I have had blood work, heart monitors, stress test, echo, MRI's, CT scans, tilt table test - everything is normal; neuro says I do have loss of sensation but MRI's are normal so he don't know - he did diagnose me with complex migrianes. I also have been diagnosed with Neurocardiogentic scynope, TIA, possible COPD and really don't remember what all else. I have even gone see a psychiatrist to see if it might be mental, cuz hey I'm at the point I can accept that at least it's SOMETHING - she is the one that said possible MS....
Sorry so long just any ideas would be appreciated cuz I'm so frustrated and confused - and really trying to see if it would be worth the expense fighting for a referral for second opinion?

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4 Replies:

  • Well my mom has been diagnosed with MS for 14 year and I have been diagnosed since Aug of 2009. Although I have been having symptoms small at first since I was kid. I am pretty sure I had my first small attack as a teenager. It sounds like MS to me. I have had almost all of the symptoms you are describing. The tightness in the chest is what is called the MS hug. I get the leg twitches now after a bad episode last Jan that landed me a week in the hospital and months of physical therapy to walk with out a cane. Ask to have a lumbar puncture done on your spine. MS damages the myelin sheath of the brain and nerves. MS is an autoimmune disease so your body is confused and attacks the myelin. We will shed the damaged pieces and they will be in your spinal fluid. So if you have MS they will find colloquial bands of myelin in your spinal fluid. Also have you had MRI done on your neck and back. Some people have the lesions on the spinal column not the brain. Do not let them tell you that it is in your head. There is obviously something going on. I have known people that were diagnosed with the same things you have been and then years later find out it was MS. Push your doctors for the MRI on the neck and spine and for the lumbar puncture. I also wanted to ask if you drink a lot of artificial sweetener? There have been reports done that say that NutraSweet poisoning is very similar to MS. Artificial sweeteners are neuro toxins. Most were created as chemicals made for pesticides or rat poison then they found out that it was sweet and marketed it as an alternative to sugar. I would look into that as well . I know for myself personally some of my symptoms are worse when I have diet or sugar free things. I stay away from all of it now. I use real cane sugar or Stevia. The first 3 main rules of MS are stay away from the heat. The heat will make symptoms worse and can push you toward an exacerbation. Two do not have stress in your life. That will also push you towards exacerbation. It will also make the symptoms you have kick up more. ( I would suggest an anti depressant and anxiety medicine) I take both Wellbutrin 2 times daily and xanax as needed. I hate pills so I really try to not take something unless it is completely unbearable.(I have an extremely high pain tolerance) Number 3 is get plenty of rest and listen to your body. Do not try to push too hard or again you will end up with either kicked up symptoms or another exacerbation. You will have to find where your line is. You cannot become completely inactive because that is just as bad as over doing it. Each person is different with their symptoms and also different meds work for different people. You and your neurologist will have to decide what is best for you. Find a neurologist that deals with many MS patients or is actually an MS specialist. You will find that they will listen more and not try to tell you it is all in your head. I myself had to switch doctors. You need to become an expert because only you know your body so you have to always keep researching so you are well versed. That way you know what to tell the doctor and what questions to ask. I am also a huge advocate of taking vitamins and eating right. I have several supplmants that help with the fogginess, memory some that also help with nerve pain(that is the icy hot and tingling that you feel). You will find that some of the meds that they want to give you for pain will actually cause other issues and if you are not careful you will be on at least 10 different meds. Just try to stay positive. Being positive actually helps the pain and mental stuff. Pray it helps me all the time. I hope this has helped good luck. I will answer any questions you have. I have been around MS because of my mom and now my own for 15 years.
    PSALM 31 3 Replies Flag this Response
  • Hi I am 35 yrs female having health concerns, and seem to keep going in medical circles. Any suggestions, advice, really anything would be appreciated. Here is symptoms and history - I'll try and keep it brief, but as much info as possible ; ). I do have a history of passing out when I get overheated and that is what happened last May which ended up starting my crazy journey; May, June, and July last year I passed out once each month all when I got over heated, also during this time off and on my left eye and right shoulder would twitch, skipped August and started again in September - but this time my left arm went numb and had chest pain. Went to ER and docs just said heat exhaustion. Anyways over the past several months I have passed out at least once a month, and new symptoms that have progressively gotten either worse or more intense. Now all my symptoms are: fast heart beat, chest pain (feels like someone is grabbing an area and making a fist), headaches ( go away with meds), an ache in mid back and under shoulder blades, times I feel like I am wearing a tight shirt that is 5 times to small, frequent heart burn, short term memory loss, zoning out, times I feel like I am being choked, major fatigue, muscle weakness, muscles tingling and they feel like they are shrinking, moodiness/irritable, dizzy, lightheadedness, blurry/double vision ( right eye), and over the past month I have seen red spots 4 times, I see like little black squilligles, when I close my eyes for several seconds it's like a strobe light is on, I have also seen showdows on the side of my vision thought someone was there looked and nothing there. My skin is tingly and I have lost feeling (like I had shots of numbing med) pretty much constant, there are times it is head to toe, but mainly my right side of face and upper arms and lower legs muscle twitching that is mainly in lower legs. Right below rib cage all the way around like a belt it tingles/numb. Several areas feel like icey hot has been rubbed on my skin. I had the same thing going on in 2006-2007 but much much milder and only when I got over heated. Use to get like this ONLY when I got overheated, now it's all the time and worse when it's really cold, hot, strenuous activity, and now mid mornings are getting bad. My normal body temp use to be 97.1 - 97.3 now it's 98.6 - 99.9; also use to get a cold sore once maybe twice a year - now, every 4 - 6 weeks. I have TONS of testing done - several ER visits, cardio, neuro, internal med - I have had blood work, heart monitors, stress test, echo, MRI's, CT scans, tilt table test - everything is normal; neuro says I do have loss of sensation but MRI's are normal so he don't know - he did diagnose me with complex migrianes. I also have been diagnosed with Neurocardiogentic scynope, TIA, possible COPD and really don't remember what all else. I have even gone see a psychiatrist to see if it might be mental, cuz hey I'm at the point I can accept that at least it's SOMETHING - she is the one that said possible MS....Sorry so long just any ideas would be appreciated cuz I'm so frustrated and confused - and really trying to see if it would be worth the expense fighting for a referral for second opinion?Honey, you need an MRI and you need to be tested for all tick infectous diseases. You will have to see a neurologist if your MRI shows legions or spots in the brain. If indeed you have MS or any autoimmune disorder/disease go to www.ldn.org and learn about low dose naltrexone. MS & Parkinson's sufferers are having the best results. Check it ou and let everyone you know to check it out because we all know someone who will greatly benifit. Make haste to your doctor and get your bloodwork for all tick infectous diseases. God Bless You, Barb1re
    Barbw1re 16 Replies Flag this Response
  • Anyone who has been diagnosed with MS or believes they have it, needs to see this video that Dr. Terry Wahls presented as a "TedTalk."She was literally crippled by MS, and in a reclining wheelchair. She'd seen the "best" doctors to no avail before taking things into her own hands. Her recovery is nothing short of miraculous. http://www.youtube.com/watch?v=KLjgBLwH3Wc&feature=share
    Anonymous 42789 Replies Flag this Response
  • The inventor of the cigutera test (fish poisoning) found cigutera toxin on 99% of all MS patients he tested. That IS the cause of MS but like most diseases the cause is kept secret so they can sell you pharmaceuticals that treat but don't cure the cause .The toxin is produced by a bacteria that grows in unhealthy calcium and is one of the top ten most deadly things to a mammal according to WHO. Get your teeth fixed and don't swallow anything during the dentist visit.
    Einstein 7 Replies Flag this Response
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