hello i'm 40 years old, and was told by my medical practitioner that i had MS, i have tingling in my head, white flashing in my eyes, my eyesight can sometimes be real bad, i've lost feeling and movement in my foot, i suffer jerking at night, muscle cramps at night and during the day, and spasms, my muscles go through stages of hurting and aching like mad, making it very difficult to walk far, i lose my balance alot, i've fallen and broken my arms 5 times in the last 3 years, i have short term memory problems, and painful joints (that may be OA) i take medication for pain and a muscle relaxant at night, when i was first told i had MS i was asked if i wanted to see an MS nurse, i declined and said i would if i got real bad, i didn't see the sense in taking up a nurses time when someone worse off then me could do with it, so i just proded along and got on with it, and delt with anything that came along.
in february this year, i recieved a phone call for my doctor saying she was wrong, i didn't have MS, that she had read a report from a brain scan i had had wrong, that they were questioning MS, i had another brain scan in march and go back for the results in september, no one has explained anything to me, i have no idea why i had the brain scan, i was told at the time, they just wanted an update, because it had been a few years since i had one, and that it is, i'm still on all the same medication, well mainly because my symptoms haven't changed, infact i would say they have got worse, but i don't know what to do or who to talk to, i've tried talking to the doctor, but she just says, ''you don't have MS'' but i want to know what the ***l is wrong, just because i was told i didn't have MS it didn't make the symptoms go away or any better, i've tried to convince myself i don't have MS to see if anything changes, but it doesn't, my husband and children were so relieved i didn't have MS but are now worrying at what is wrong, and if the brain scan comes back showing i have MS my husband and children have to go through it all again, and try and come to terms with it... again,
i am so down, i feel as if no one is listening to me, i feel like i'm screaming out inside,
any advice would be very welcome as to what i could do, thankyou for reading, i feel alittle better just writing it all down.
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