Discussions By Condition: I cannot get a diagnosis.

More clues - possible vascular disorder?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: angelpie545
  • June 17, 2008
  • 08:01 PM

I've been sick for years, gradually getting worse, and my doctors are confused as ever (I posted here once before about it but it was awhile ago) and it's taken so long to rule out all the "horses". We are now on the "zebras" and no one knows where to go. My doctors are very confused as am I, but after much deliberating we now think I may have a vascular disorder, but unfortunately I am at a teaching hospital and they are stumped and I though I'd post my symptoms where to see if it rings any bells. Besides the chronic illness I am otherwise in good health and weight but I used to smoke and take the combination birth control pill (not a good idea, I know-I was young and very naive-I have now discontinued both-and the pill that I was on is Levalen if that makes any difference). My problems didn't start until I did both of those simultaneously. Here goes:

*pulsating and dilation of veins, feeling like my whole body is swollen or vibrating; can

feel pulse terribly in my toes and in my finger tips, and everywhere. - main symptom
*pressure underneath my heart (feels like a lot of fluid sitting under it)
*body parts including parts of face and scalp, stomach, arms, and legs "falling asleep", at the slightest pressure and limbs are generally cold to the touch
*terrible dizziness (NOT vertigo, but a sensation like I'm on boat that is rocking on the sea), pulsating and pressure in my head, especially in the left side -main symptom
*spams of the diaphragm related to pressure inside it
*stomach upset, nausea, and loose stools
*extreme weakness and faintness - main symptom w/ muscle tiredness/cramping
*visual disturbances, confusion, lack of balance and coordination, shaking on left side especially, slurred speech and difficulty speaking
*blurry vision
*EXTREME ringing in the ears and a bass-ey thumping occasionally

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5 Replies:

  • What has been ruled out so far?Sounds like Purporia, I think, but I'm not a doctor. Someone else on here knows a lot about it though.
    dizzy lizzie 192 Replies Flag this Response
  • but after much deliberating we now think I may have a vascular disorder, From your symptoms i personally think it sounds more neurological... I'd be looking for a disorder which affects the neuro system... extreme weakness and faintness - main symptom w/ muscle tiredness/cramping are your symptoms made worst by exertion?.................... If you havent already done so.. i'd be asking to be send to a neurologist
    taniaaust1 2267 Replies Flag this Response
  • A long shot-- celiac disease. Your GI symptoms & muscle cramping are suspicious for this. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies Flag this Response
  • From your symptoms i personally think it sounds more neurological... I'd be looking for a disorder which affects the neuro system... are your symptoms made worst by exertion?.................... If you havent already done so.. i'd be asking to be send to a neurologistI would have to agree that it sounds neurological. That was my first thought. Especially when you mentioned:*body parts including parts of face and scalp, stomach, arms, and legs "falling asleep", at the slightest pressure and limbs are generally cold to the touch*visual disturbances, confusion, lack of balance and coordination, shaking on left side especially, slurred speech and difficulty speaking *blurry vision *EXTREME ringing in the ears and a bass-ey thumping occasionallyDid you have something traumatic happen in your life prior to the onset of symptoms? Another strong possiblity is PTSD, Post Traumatic Stress Disorder.It could be a Brain Tumor. Have you had an MRI (Magnetic Resonance Imigery)? Have you had an EEG (electroencephalogram)?
    Anonymous 42789 Replies Flag this Response
  • Have you found what this is?I have something similar under title "anyone pulsating" but its looks like i was cursed to never find out what this is
    Anonymous 42789 Replies Flag this Response
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