Discussions By Condition: I cannot get a diagnosis.

mom of teen with pectus excavatum

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: pectus mom
  • September 5, 2007
  • 01:43 AM

Hello. I am the mom of a 14 tear old. My son has pectus excavatum. At age 4 he underwent surgery to correct it. He had the Ravitch procedure. As he grew older, I began to notice the excavatum getting worse. Moreover i noticed symptoms of difficulty breathing upon excertion. I took him each year to his pediatrition and each year was told he was fine. As he entered into 13 years these symptoms got considerably worse. He began using his accesory muscles to breath and would get blueish in color around his lips. This I noticed while he was on the ****d pitching in hot weather. Also he got tired more quickly than others his age after practices for football and basketball. He later quit football. Although he was a teenager, he would fall asleep following practice and looked worse than the other kids his age. And he was having trouble keeping up with them. Finally I decided to bypass the pediatrician and go back where he had his first surgery. We found out he was only able to use 60% of his lung capacity and had gotten thoracic dystrophy from the first surgery. Has anyone out there had this outcome from the Ravitch? If so please share with me. We are now having him evaluated for Marfans syndrome. We go this Friday :confused: pectus mom

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