Discussions By Condition: I cannot get a diagnosis.

miserable for 12 years, no diagnosis

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: danashmom
  • March 22, 2010
  • 04:34 AM

My bout with my health started about 12 years ago when I was 34. It started as a severe achy pain in my left arm pit. The pain radiated down my arm. Dr. did ekg that was normal. Pain so severe had to take tylenol the 2 hrs. later had to take ibuprofen. Left side of face began to hurt, shortly after whole left side of body. Went to GP who did blood tests for MS, and infection. Both normal. Went to Internal Medicine dr. no help whatsoever. Saw a surgeon and was told there was "nothing vital" on left side so he was no help. Finally GP sent me to rheumatologist who said it was fibromyalgia. Did reading on fibromyalgia and it is not localized to left side of body so symptoms didn't fit to me. After the pain finally subsided 2 months later, I was left with very tender areas on left side of body. My child could no longer sit in my lap on left thigh without it killing me. It and my left hip and ribs on left hip are tender to touch. Also, upon laying on my left side, it feels like I have a small rock under my ribs. Areas so tender I had to buy a memory foam mattress just to rest. Have had recurrent urinary problems but didn't test positive for UTI. Have had recurrent stomach virus. Now recent symptoms have me more worried. Started with what thought was flu but no ever. Every bone in my body ached even skull. Especially facial bones. Sensitive to cold especially nose. Heart feeling like jumping or pumping hard. Throat feels like trying to get flu. Knees ache when stand from sitting. Finger bones burn sensation. Outer wrist ligament lumpy and painful when strained. Upper back at shoulder blades feels tight and achy. Shoulders hurt, inner ear ache and scratchy feeling. Chest bones and muscles hurt when strained. Tops of feet ache and are tender. Please help!!! Would like to be around for grandchildren one day.

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  • Cool,I'll take your case if you wish.. I'll start research once your ready. I would like a full back ground on what you have did in the last 20 years or so. I would like to know if you have been to any places out of the US or your country. Really it sounded at first like rheumatoid arthritis. My bout with my health started about 12 years ago when I was 34. It started as a severe achy pain in my left arm pit. The pain radiated down my arm. Dr. did ekg that was normal. Pain so severe had to take tylenol the 2 hrs. later had to take ibuprofen. Left side of face began to hurt, shortly after whole left side of body. Went to GP who did blood tests for MS, and infection. Both normal. Went to Internal Medicine dr. no help whatsoever. Saw a surgeon and was told there was "nothing vital" on left side so he was no help. Finally GP sent me to rheumatologist who said it was fibromyalgia. Did reading on fibromyalgia and it is not localized to left side of body so symptoms didn't fit to me. After the pain finally subsided 2 months later, I was left with very tender areas on left side of body. My child could no longer sit in my lap on left thigh without it killing me. It and my left hip and ribs on left hip are tender to touch. Also, upon laying on my left side, it feels like I have a small rock under my ribs. Areas so tender I had to buy a memory foam mattress just to rest. Have had recurrent urinary problems but didn't test positive for UTI. Have had recurrent stomach virus. Now recent symptoms have me more worried. Started with what thought was flu but no ever. Every bone in my body ached even skull. Especially facial bones. Sensitive to cold especially nose. Heart feeling like jumping or pumping hard. Throat feels like trying to get flu. Knees ache when stand from sitting. Finger bones burn sensation. Outer wrist ligament lumpy and painful when strained. Upper back at shoulder blades feels tight and achy. Shoulders hurt, inner ear ache and scratchy feeling. Chest bones and muscles hurt when strained. Tops of feet ache and are tender. Please help!!! Would like to be around for grandchildren one day.
    Itsathought 9 Replies Flag this Response
  • Dear Itsathought:Thank you for responding to my posting. I don't know where to start on history. I have never been out of the country. Vacationed in USA mountains, beaches, etc. Live in the south. Not much to tell. Always had stomach sensitivities to dairy. Sometimes when go out to eat have to hurry home due to upset. Have always had pets...dogs mostly. Had parakeets for awhile and fish. Moved to different town 6 years ago. Previous residence had a cow pasture across the street and a chicken house about 300 yards away. Was living at that location when symptoms began. Have had a few falls with no broken bones. Never had a broken bone as a matter of fact. Had a hot tub lid fall on top of my head once but didn't knock me out or anything. Since I posted, I have had some knots on the first joint of three of my fingers come up which feel like bone. Also on top of one of my hands, I have had tiny BB like under my skin. Can see and feel it. Used to move around under skin but seems affixed now. None of this may be related, but I remain puzzled. Hope this helps. Thanks again.
    danashmom 2 Replies Flag this Response
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