Discussions By Condition: I cannot get a diagnosis.

Migraine headaches for the past 6 weeks and counting!!!!!

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • December 6, 2010
  • 05:22 PM

Hi i'm 21 years old and for the past 6 weeks i've been dealing w CONSTANT migraine headaches! I've had headaches my whole life even when i was little but i've never had anything like this! I'll wake up and go to bed w a migraine headache and some days are more intense then others but it never fully goes away no matter what i do. I was even out of work for a week straight cause i couldn't open my eyes and see lights.
This is what the Dr.'s have done for me this far, pretty much in order from week one to now...
1) Nausea medication (promethazine) which helps when i'm nausea during a migraine but doesn't get rid of the pain. then onto..
2) Vicodin... didn't help at all
3) percocets .. once again didn't help.
4) had my eyes examined (my Rx changed but still didn't help)
5) changed my diet (more protein, staying very hydrated)
6) had a CT scan, everything came back normal
7) chiropractor (3 times wk) (stopped seeing him in 4th wk of migraine episode)
8) acupuncture (1 every other wk)
9) saw a neurologist and he put me on a daily preventative of Nadolol which i haven't noticed a difference yet (been on it 2 weeks now)
10) treximet - helped only a little but didn't like the side effects at all! (felt drugged and my head was on fire/ felt sun burnt)
11) imitrex shot (in neuro's office) and pill form, once again hated side effects..
12) will be botox the next time i see my neurologist in the new year.

i've also had a Uterus infection the 1st week of my migraines which my dr. associated w my mirena iud that i had put in less than 2 months prior, she told me once it was out my migraine headaches would go away which they haven't. And in the 6th week i've had a UTI.. i've also noticed i've recently become allergic to latex condoms. (no clue if its all related)

-the pain is usually on my left side of my head which is worse w movement
-very sensitive to light, noise, and chemicals (i'm a hairdresser)
-sometimes on the left side under my occipital bone feels like a knife is stabbing my head
- sometimes when i step on my left foot (when walking) a shooting pain will go thru my head and the left side of my face feels numb.
- cheek bone pain
- jawbone pain
- sore eyes
- always neck pain

well thats everything if you have any ideas or suggestions please let me know im miserable :(

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6 Replies:

  • OMG!!!!!!!!!!!!!!!!!!!!!! I know this won't help but those symptoms are a lot like mine luckily my headache/migraines are reducing but i used to get them every two days! I always had neck pain, they were never anywhere but behind my left ear, the same as yours. So, my grandma and mom suggested i got a calendar and put a check mark on every day i got a headache the first week i had a check on every day!(that was in july) but recently i haven't had any.
    Anonymous 42789 Replies
    • December 7, 2010
    • 11:01 PM
    • 0
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  • i have had headaches that lasted for up to 2 months, they would range from tension headache to migraine but never fully go away.narcotics can give you rebound headaches, so if you have been taking them every day for this 6 wk migraine that might have caused it to last so long.also mirena releases hormones into your body, thats why they aggrivate migraine sufferers, i dont know how long it takes to flush out. did you start any other hormonal birth control? camilla (the mini pill i think) is safest for people with migraines, its what i take.first i suggest an MRI (not a CAT scan), so they can rule out a few things.if stepping on your left foot causes pain elsewhere you probably have a neurological disorder. Your Neurologist should be working on ruling out several things right now, among other things these 5 come to mind as serious possibilities:1. vitamin deficiencies2. diabetes3. thyroid issues4. multiple sclerosis (which i have)5. lupusfor relief:the best thing to help headaches for me is a low dose of xanax, if your neurologist will give you a few to try they might help. my neurologist explained that they calm the brain and the stress behind the headache, too.before i had xanax this is what i would do as soon as i got light sensitive, I am NOT a medical professional, read labels, discuss anything new with a pharmacist (interactions possible)i took a multi vitamin with a small meal and a big glass of water (dehydration can cause headache) then some tylenol with caffiene (excedrin tension headache or i would drink 2 cups of coffee quickly with the tylenol), then if 40 mins later it still hurt i would take UP TO 800 mg ibuprophen (with food)
    Anonymous 42789 Replies
    • December 8, 2010
    • 06:06 AM
    • 0
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  • OMG thank you so much for all your help!2 days ago i got a random fever w no other symptoms my dr is treating me for a sinus infections even though she and i both know thats not whats wrong right now.... my drs are SOOO useless! my boyfriend has xanax so once my fever goes away ill try that! it seems like a much better approach then botox! thank you again!
    Anonymous 42789 Replies
    • December 9, 2010
    • 04:19 PM
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  • You may have an ongoing infection.Try colloidal silver.
    Anonymous 42789 Replies
    • December 10, 2010
    • 02:30 AM
    • 0
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  • You may have an ongoing infection.Try colloidal silver.I am not a doctor either, but I have lupus and cluster headaches so I know about chronic pain. Having said that, don't give up on the acupuncture and chiro yet. I know it is very frustrating. But that is not an instant cure and you will have to give your body some time to adjust to the treatments before you rule them out. I'd say give it a good three months, but that's totally an opinion. Far more importantly...I would take a VERY serious look at your diet. I would be willing to bet that your headaches can either be triggered or controled by your diet. I'm not sure what your diet is like but the first thing I would cut out is refined sugar of any kind, second anything that is not clear liquid (no carbination either), and third gluten. When you do this for at least a month and nothing has changed...then you can go back to your doctors and tell them you have tried everything. Also pepermint oil helps (helps, not cures) with acute attacks. Good luck!! Stay away from sugar and hope you can see light again soon!
    Anonymous 42789 Replies
    • December 11, 2010
    • 03:48 AM
    • 0
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  • migranes for 10 months non-stop co coming and going, continual pain. sleep was the only thing that worked, i couldnt feel the pain in my sleep, so slept alot. no relief from pill. got some teeth pulled thinking it was a really bad tooth infection in one of my cavities that needed a root canal. got tooth pulled, pain persisted, meds all sorts painkillers and muscle relaxers and anti-inflamitories did nothing for me...a few trips to the ER for when i got the sharp shooting and stabbing pains. ER perscribed pill, felt the muscles around my face, jawline, and ears.... said i had TMJ.TMJ pain in the face causes migrane and tension headaches. a TMJ SPECIALIST charges out of pocket, insurrance wont cover.saw a general doctor who take my insurrance, told me take 600 mg ibprofin daily and wear mouth guard at night to stop grinding teeth (years of this causes TMJ) *his advice was pointless in comparison to what i needed, which was the TMJ therapy treatments.WHAT WORKED FOR ME: i paid a masage therapist 50 dollars to perform sacreal cranial masage, lymphnodic drainage, accupressure, reiki and energy work on me. she was amazing. after that 1 hour session, i had found perminant relief i had been seeking for 10 months.
    Anonymous 42789 Replies
    • January 17, 2011
    • 08:20 PM
    • 0
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