Discussions By Condition: I cannot get a diagnosis.

Meralgia Paresthetica

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: ritchie
  • February 18, 2007
  • 11:31 PM

I have had this condition of pain or some form of pinched nerve in my lower left hip and left lumber spine. The pain travels along the front of my left thigh to my left knee. One of my regular physicians diagnosed it as Meralgia Paresthetica and recommended shot to the groin and back, but nothing helped. Doctors at Kaiser spent a lot of time doing mulitiple scans (MRI and CAT scan) but they cannot see anything. The pain is felt around my lower left spine and goes around my left hip, down my left thigh and to my knee. Sometimes it is a lot of tingliing and irritation. Nothing has helped so far. It is either an irritated nerve somewhere or a pinched nerver I guess. I am baffled that the doctors cannot find a diagnosis and cure for this constant pain. The pain is constant and never goes away. I still play and walk and run and it is always there. I tried physical therapy, chiropractic treatment, cortisteroid shots under x-ray to the spine and through the groin, but to no avail. I will really appreciate any help on this issue. Has anyone else had something like this? Help!

Reply Flag this Discussion

12 Replies:

  • Hi Ritchie & all,I was told I had MP almost 5 yrs ago! Everything I have read on the disease tells me that it usually only lasts for a few months.?!> So do I really have this or is there something else going on? Like you, I have had many 'procedures', but nothing has help. I have been on different meds, but they didn't help. I can't stand but maybe 5 or 10 mins and the burning pain gets so intense than I have to sit. Any thoughts about why this Meralgia Paresthetica won't go away? :confused: HoneyBear
    honeybear7772 2 Replies Flag this Response
  • Have you tried acupuncture? It is often the last thing that people try, but often brings great relief. Please give this a try - visit www.acufinder.com to find a practitioner near you. What do you do for work? Are you able to exercise? Or does movement aggravate your symptoms? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Hello DOM,Thank you for your reply. No, I have not tried acupuncture. I will look into it. I can't afford anything and if Medicare won't pay, then I won't be able to do that.I have had spinal problems since 1980. I've had two low back surgeries and 3 neck surgeries. I haven't been able to work since 1990. I use a walker or power chair to get around. I will go look at that URL you sent to me. Thanks again, :) HoneyBear
    honeybear7772 2 Replies Flag this Response
  • Unfortunately Medicare doesn't yet cover acupuncture - there is a bill to change that, but so far not yet.:confused: It is frustrating as it is one of the most ECONOMICAL treatments! Please don't let that discourage you, as some acupuncturists, myself included, use sliding scale fees. You might look into it and it doesn't hurt to ask if they accept a reduced fee. Sadly, many don't, but I hope you find some help. Good luck.DOM
    acuann 3080 Replies Flag this Response
  • I recommend going to a neurologist. I was diagnosed with myralgia parasthetic and was given a small dosage of an antidepressant called nortriptyline. It has helped tremendously!
    Anonymous 42789 Replies Flag this Response
  • I have had MP for close to 7 years now - I finally got the diagnosis last year by my Neurologist. He did a nerve conduction study, and confirmed it. This was after 1 Neurosurgeon said I needed Spinal Fusion to correct the problem.I was told by 2 Neurosurgeons and my Neurologist that MP would not show up on an MRI or CT scan. That the nerve was generally entrapped as it passes through the hip, and folds over to pass down the leg. My Neurologist has put me on Gabapentin (Neurontin), 300 mg in the morning, and 600 mg at night - with "wiggle room" of 300 mg for "Bad Days", as well as Cymbalta, 30 mg in the morning. I still have pain, but can not tolerate higher doses of the Gabapentin and still function at work, let alone drive. The pain can manifest its self in many ways - sometimes it's an intense burning, other times it's sharp and shooting, itching, extreme sensitivity to the point where I can not put clothing on... But always a dull ache and hypersensitivity to touch.I've been told that most people with MP 'get over it' in about 5 years, but I've read stories about sufferers who've had it for 20+ years. I guess it's just going to be something I learn to live with. Good luck!!!
    iammare 2 Replies Flag this Response
  • I was diagnosed with MP earlier this year, and also read so many places that this is only supposed to last a few months. At this time, I have only been suffering 5 months, which compared to some of the replies, is minimal. My doc also put me on Gabapentin three times a day - initially it was WONDERFUL because it took the pain down to a tolerable level. But it is still uncomfortable all the time, and I use pain patches (sorry, can't remember the name) to tolerate clothing at times. I remember just sitting in the neurologists office and crying I hurt so bad - I was fortunate to have a doctor that seemed to really care about how much pain I was in and worked hard and quickly to find a diagnosis. Nice to read these blogs and see that I'm not the only one suffering with this - it feels like it sometimes. God Bless you all - I pray you find relief soon!
    Anonymous 42789 Replies
    • August 26, 2008
    • 06:45 PM
    • 0
    Flag this Response
  • I'm sorry you are in so much pain. I can relate!I've been through everything you have, as well as seeing a chiropractor, having epidurals of cortisone... Now I'm seeing an acupuncturist. He's helped me the most. I've dropped back from 300 mg of Gabapentin 3-4 times a day, to 300 mg, at night only, and sometimes not even that.I don't know what it is, but the 2 trips to the acupuncturist have done wonders!Good luck!!!!
    iammare 2 Replies
    • August 27, 2008
    • 01:03 PM
    • 0
    Flag this Response
  • I'm sorry you are in so much pain. I can relate! I've been through everything you have, as well as seeing a chiropractor, having epidurals of cortisone... Now I'm seeing an acupuncturist. He's helped me the most. I've dropped back from 300 mg of Gabapentin 3-4 times a day, to 300 mg, at night only, and sometimes not even that. I don't know what it is, but the 2 trips to the acupuncturist have done wonders! Good luck!!!! That is so awesome you are feeling better with the acupuncturist! As a fellow acupuncturist I love hearing stories on how acupuncture can help folks with chronic pain:). Acupuncture works! I hope you continue to feel improvement. Best wishesDOM
    acuann 3080 Replies
    • August 27, 2008
    • 05:51 PM
    • 0
    Flag this Response
  • I was in a bad car wreck about 4 months ago the seatbelt came across my left hip plus I hit the side of the car. And ever since I have had the burning in my upper left thigh. At first I couldn't wear any pants because it hurt so bad. Well I went through 4 neurosurgeons before we found out what it was (mp). And I have been taking neurontin 800 mg 3 times aday (800 mg was my starting dosage). This stuff drives me crazy! And I have to go to work on this stuff! The neuro. told me there is no telling how long it will last. But there is nothing he can really do. What can they do for this? Because this is really bothering me. I do have a disc in my back that is completely gone but all the neuros. said it is not what is causing my problem. So it is in my hip, but what can they do? Come on guys any ideas would help. :) And for anbody who has this I feel sorry for ya' and I hope you get better soon. And don't just ya' hate it when they say it is just a "sensory" nerve. Peace guys.
    Anonymous 42789 Replies
    • December 24, 2008
    • 03:00 AM
    • 0
    Flag this Response
  • Once i was suffering from severe meralgia paresthetica (similar to sciatica) i went to neurologists and got medicines, That medicines gave a temporary relief. Finally i went to an acupuncturist after 3 months of treatment i got completely cured from that pain. For nerve diseases i prefer acupuncture is the best treatment. In acupuncture there 2 method of treatment 1. Single needle therapy( they use only one or two needles) i have undergone this.2. Stimulation needle therapy( they will give small electric waves through the needle) My advice is prefer the 1st treatment i have undergone this type of treatment, this is slow will work only after the 4th or 5th sitting but very effective. The second type of treatment will give temporary relief but its like a pain killer. I don't prefer this. I went weekly once for the treatment and in 15 sittings i got cured completely. The total expense for me is $60 only. But you must choose a best acupuncturist.
    Anonymous 42789 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Hey guys, I'm in the Navy and I was FINALLY diagnosed with MP after 5 long years of "Why is my leg burning?" No one can tell me why I have this as I'm average build never lost or gained weight no trauma to the site.....it's just a mystery. I had the Nerve Sensory test where they shock you and an EMG and my doctor said he had never seen damage like this...they did my left leg and I felt the shocks all the way down but when he did my right thigh placing the shocker right on my hipbone I felt.....nothing at all in my thigh it was really scary and he wants to put me on Neurontin but I'm only 27 so he is hesitant. I just had my first Cortisone shot and it did nothing at all, I thought maybe it was starting to work but last night I was lying on my back reading a book and there it was all over again. It was such a disappointment. Does anyone regularly exercise? What is the max I shoulg exert myself, becuase I'm getting mixed reviews. Too bad the Navy doesn't have an Acupuncturist. I hate how it just comes and goes that's what took me so long to get it looked at because I thought I just had bad circulation or something. And it looks like they are just going to "wait for it to go away" but I'm seeing people on here who have had it for 20+ years WITH treatment I've already had it for almost 6 with no treatment at all! I even stopped wearing pants pretty much altogether I just wear dresses and loose shorts because I was told if I stop wearing belts it would go away on it's own. Obvious lie. Does your leg itch? Mine does like crazy and I scratch it until it's all welts and red. I'm so sick of dealing with this!!! Thanks for listening at least I know I'm not alone!
    Anonymous 42789 Replies
    • August 19, 2010
    • 01:05 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.