It is great to have a forum like this. I have been ill and off work for almost 4 months now and have seen every top specialist about my illness, with no diagnoses. (Head & Spine MRI, Autoimmune tests, Xrays, CT scans, Blood of all kinds) My doctor does not know what else to test for.
Over the last three years I have had 3 episodes of extreme muscle aches in my legs and buttock area reaching into my groin. With this came extreme fatigue and each episode only lasted 2 - 3 weeks and went away as quickly as it came on. I went months and even 1.5 years with no symptoms.
This June I had the same leg and fatigue symptoms, except one day the symptoms spread to my arms as well. A month later in a span of 4 hours numbness and tingling went up my torso and into my face. There is burning sensation in my arms and back of my neck, numbness in my face and still the extreme achy feeling in my legs. During this whole time I get waves of extreme weakness where I get shaky and almost feel like I may pass out. Like a low blood sugar feeling that lasts from 30 minutes to sometimes 4 hours. But every medical test they perform comes back perfect.
I have been treating the burning and numbness with Gabapentin and am exploring every holistic medical option there is. So far - no help and no diagnoses.
Taking a chance that someone else my know what to do next or has heard of something similar.
Thanks for reading!