Discussions By Condition: I cannot get a diagnosis.

Me and my girlfriend needs help.. problems of neurological character

Posted In: I cannot get a diagnosis. 30 Replies
  • Posted By: Anonymous
  • January 30, 2007
  • 10:03 PM

Hey people. I'm not sure if this is the right section to write in, but I'll give it a shot. For some time now, I've been experiencing problems that kind of scare me.

It all started about 3-4 months ago with tingling in the ring finger of the left hand. That soon spread to the other fingers, and was accompanied by a slight ache in the elbow and forearm muscle. The tingling was more or less constant and the ache came and went. By then, I got in contact with a physical therapist, because I belived my symtoms could have something to do with me playing the guitar and bass. I got a bunch of exercises and stuff from her, but nothing seemed to help. Then, about 2 months ago, the tingling spread to my left foot, and soon after that, my left ear, and finally the left part of my tounge. This got me really worried so I went to my local health centre to run a few test. A doctor examined me and didnt find anything unusual about my reflexes etc. I did a few blood tests including looking for vitamin b12 deficiency and lyme.

Both of them came back negative, so I was sent to a neurologist for further examination. He didnt notice anything unsual when examining me, but put me in queue for an MRI just in case. That same day, my tingling spread from the left side of the body to the right side of the body, although still in the same bodyparts (Hand, foot, ear, face). I've also noticing various other symtoms, but I cant say exactly when they started. They are the following: Dizziness, feeling like I'm more clumsy than before. Ocasional twitching in various muscles.

Slight concentration problems when reading, feels like the words are "floating together" and I have to slow down. My vision is changed (decreased), and I have more floaters My speech is also just a bit slurred, and I have to think more about my speaking, and which words I choose, but I dont think people notice , so I guess these symtoms are barely noticable. I've also been feeling kind of weird, it's hard to explain, but sometimes I feel "moody", like my emotional reactions to things are greater than they used to be. My stomach is upset, and I have to go to the bathroom more often. I feel generally tired, even after sleeping a good nights sleep. I'm experiencing a light tremor in my whole body.

I went to the neurologist, had an MRI, which didn't show anything.
I've had a urine test for chlamydia aswell. The doctor I visited didnt want to test for anything else, even though I urged him to test for more stuff that fits our symtoms.

The symtoms havent become better, and about 3-4 weeks ago, I experienced very severe dizziness, with dizziness "attacks", after a night out drinking. The "hangover" lasted for about a week. That is not normal. Im feeling even more distracted while reading now, and I find myself trying harder to focus on the paper/book.

My girlfriend has been having similar symtoms to what I've been having, and they are to much alike for it to be a coincidence. She's also been feling clumsy, and tingling in her foot and hand, but it started after my symtoms, so maybe a month ago. She's also been having frequent stomach pains and sometimes difficulty swallowing, and a recent bloodtest showed that "the level of a specific hormone in her thyroid" was too high. (Kinda hard to quote and translate medical language, sorry)


Now I'm wondering, the MRI looks for damage to the brain right? I didnt think these kinds of diseases were contagious, and as the MRI didn't show anything, is it possible that a bacterial or viral infection that started out pretty mild led to theese symtoms?

My neurogist thinks that all this has to do with stress. I'm kinda clueless of where to go now, since I cant accept that we both "stressed" out at the same time, and at our young age aswell ( 18 and 19 years old)

Could it be something infectious, like an STD, or could it be something that we got from the enviorment? Which test should I have run on me? Should we just drop it and hope it disappears by itself? :( Help is greatly appreciated!!!! Thanks for reading

Reply Flag this Discussion

30 Replies:

  • do you and your girlfriend have the same diet? could be a vitamin deficiency....get a high quality natural multi-vitamin and a separate one with minerals at Whole Foods or a health food store - may take a few weeks before you feel better - if you don't, then you know it's something else
    Anonymous 42789 Replies
    • January 30, 2007
    • 10:42 PM
    • 0
    Flag this Response
  • Do you guys take any medications(or use any other drugs)? I promise it's not to judge in anyway, it just might give some more clues.
    FixMEdoc 53 Replies
    • January 30, 2007
    • 11:05 PM
    • 0
    Flag this Response
  • We aren't on the same diet, and we do not use any medications at all. I don't know what more info to provide you with, so just ask away.. Thanks for your help.
    Anonymous 42789 Replies
    • January 31, 2007
    • 07:11 AM
    • 0
    Flag this Response
  • is there any mold in your environment?
    Anonymous 42789 Replies
    • January 31, 2007
    • 07:16 AM
    • 0
    Flag this Response
  • My house is very new (built 2003) . Her house is built like.. 30-35 years ago. I dont spend very much time at her place. We mainly see each other in the weekends.Worth mentioning is that I've also got a rash on my left wrist. I thought it could be an allergical reaction to something, since it started when I wore a bracelet, but I havent had anything on my left wrist since I noticed it, and it's like.. 3-4 weeks ago.Also, the dizziness attacks I mentioned above, were kinda weird in one sense. They triggered only when I put/turn my head to the left. I could shake my head like crazy, and nothing would happen, but then just turn it sideways to the left a little, and the whole world started spinning..
    Anonymous 42789 Replies
    • February 1, 2007
    • 06:34 PM
    • 0
    Flag this Response
  • Sounds like you should ask the doctors to check you and your girlfriend for MS. The floaters in your eyes the tingling in your extremities. Also could you possible have contracted mono?THe dizziness and the tinnitus sounds like a disease that is called menieres disease. I have it and sometimes it feels like when you turn around n around real fast in a circle then try to walk a straight line. Also have they done any nerve conduction tests? Carpal tunnel Tarsal tunnel Can cause alot of neurological problems. I would ask them...or demand them to check for environmental causes. THere are blood tests that can be done for levels of carbon dioxide n carbon monoxide and it really doesnt matter how new your house is...if you have a slight fault in your heating system or mold somewhere where you cant see it you can still suffer problems. Like in your vents or behind the walls in your bath area if there has been a leak.Hope for the best...but dont delay.I would do the test for mono, MS, and menieres
    Anonymous 42789 Replies
    • February 1, 2007
    • 06:47 PM
    • 0
    Flag this Response
  • Hm.. My brother had mono about a year ago.. I was tested aswell, and they found antibodies in my blood, so I shouldn't be able to get it.. right?What are the odds that we both "contract" MS, a (as far as I know) severe neurological disease?? Is it contagious?Can't a virus or a bacteria or something have somehting to do with what we're experiencing?
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:26 PM
    • 0
    Flag this Response
  • Or is it all explained by stress? (Sorry for double post)
    Anonymous 42789 Replies
    • February 3, 2007
    • 01:28 PM
    • 0
    Flag this Response
  • It still could be Lyme, some tests aren't as accurate as others and give false negs. It is a clinical dx too that matches the symptoms.Check out lyment.org, many there have the neuro symptoms. Mine started out as "one sided" too , Went undx'd for 20 yrs.The rash could have been from one of the co infections...Hope you feel better soon. ~~ a Jersey girl
    Anonymous 42789 Replies
    • February 5, 2007
    • 01:22 PM
    • 0
    Flag this Response
  • Ok.. what kind of test should I ask for? Do we both have to do a lumbar puncture aswell as blood tests?
    Anonymous 42789 Replies
    • February 6, 2007
    • 05:48 PM
    • 0
    Flag this Response
  • the odds against m. s. cropping up at the same time in two people like this are vanishingly remote.i promise.
    Anonymous 42789 Replies
    • February 6, 2007
    • 09:04 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • the odds against m. s. cropping up at the same time in two people like this are vanishingly remote.i promise.I thought so aswell. But we're still kinda clueless. Dont know what to do next. My GF's waiting for her test results still, and I'm waiting for a referal to the departement of infections in my hospital... Seems like we can't do more than wait right now..
    Anonymous 42789 Replies
    • February 7, 2007
    • 08:18 AM
    • 0
    Flag this Response
  • Still waiting for more good answers like those before..!
    Anonymous 42789 Replies
    • February 8, 2007
    • 10:29 PM
    • 0
    Flag this Response
  • Could also be carbon monoxide (CO) poisoning. Do you have any fuel burning appliances: e.g. gas or oil powered water heater or furnace, any wood burning appliance like a stove or fireplace?If small leak of CO, not enough to kill, but enough to give symptoms similar to those you descibed. Leak will get bigger over time, can kill you. Local utility company or Fire Dept. will test for free immediately. Call now.
    Anonymous 42789 Replies
    • February 8, 2007
    • 10:53 PM
    • 0
    Flag this Response
  • We don't live together, so I dont think that's the problem. We don't have any of those things that you mentioned.
    Anonymous 42789 Replies
    • February 9, 2007
    • 00:52 PM
    • 0
    Flag this Response
  • Humpty bumpty
    Anonymous 42789 Replies
    • February 17, 2007
    • 11:15 AM
    • 0
    Flag this Response
  • We don't live together, so I dont think that's the problem. We don't have any of those things that you mentioned. You must have a water heater,furnace etc. in your homes.Even if your just visiting at one place or the other it should be checked in both homes new or old.And its free. I would call right away and get that checked for both homes even if its just for self-assurance. What have you got to loose ? Good Luck
    dawns6 29 Replies
    • February 17, 2007
    • 00:11 PM
    • 0
    Flag this Response
  • I'd say her symptoms are from Hyperthyroidism= thyroid works over-much or too much.Your symptoms could be hyper or hypothyroidism. If you have already had test done for thyroid panel, you may want to repeat it. I had 4 done over a 12 yr period before a Dr was willing to make full diagnosis. Up till then I was classified as "borderline". I had all the symptoms but was refused treatment until it progressed. I hope this helpsLesa
    Anonymous 42789 Replies
    • February 21, 2007
    • 10:51 PM
    • 0
    Flag this Response
  • Lyme disease and coinfections. Recent research points to this bacterial infection being sexually transmitted as well. All symptoms you list are also symptoms of this disease. Not many people even rembember a tick bite. Blood tests are inaccurate. Learn more at www.canlyme.com
    Anonymous 42789 Replies
    • February 22, 2007
    • 00:31 AM
    • 0
    Flag this Response
  • I have a couple of suggestions for you. First MRI’s can not always diagnose neurological problems. Ask your doctor to do an EMG (Electromyography). If he refuses find another neurologist. My husband and I both suffer from many of the same symptoms you and your girlfriend are having and we both suffer from peripheral neuropathy.Peripheral neuropathy is a term used to describe disorders of your peripheral nervous system. Your peripheral nervous system includes nerves in your face, arms, legs, torso, and some nerves in your skull. In fact, all of your nerves not located in your central nervous system — which includes the brain and the spinal cord — are peripheral nerves. Neuropathies may affect just one nerve (mononeuropathy) or several nerves (polyneuropathy). Your nerves provide communication between your brain and your muscles, skin, internal organs and blood vessels. When damaged, your nerves can't communicate properly, and that miscommunication causes symptoms such as pain or numbness. Peripheral neuropathy often affects people with diabetes and autoimmune diseases such as rheumatoid arthritis and lupus so make sure you have been tested for these diseases because neuropathy can be a secondary disease to something else.Another suggestion I have is mold. Years ago I read a medical journal about a family that all suffered from the same neurological symptoms. The doctor’s could not figure out what was wrong and they were often told that it was all in their head since all three of them suffered the same symptoms. They found out years later that they had a certain type of mold in the walls of their home that caused all of them to become deathly ill. Environmental illness is on the rise and few physicians appear to be concerned; mostly due to the ignorance of possible severe complications. Mold, with its spores and sometimes deadly mycotoxins, can compromise the immune system and cause apoptosis (death of cells) that initiate the immune system's reaction to the body's own constituents, which can cause neuropathy as well as other illness. Ask your doctor to run some tests to check for mycotoxins. If any of them come back positive I would check your home for mold levels. Hope this helps and good luck.
    lilwhitepaws 5 Replies
    • February 22, 2007
    • 00:47 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.