Bah. A melodramatic title I know.
I am a business owner- I work for myself and have no time to be down. I have been sick since April which all started with a scary bout of vertigo.
Had never experienced it before to wake at midnight and spun for the next 14 hours -along with the vomitting and inability to walk/talk etc. It stopped, and then I spent a couple days recouperating and went to doc to be diagnosed with bilateral ear infection- clinical diagnosis. I wasn't sick at that point but I took the antibiotic because I would have done ANYTHING to not go throug that again.
Vertigo did not reoccur until 3 months later and it was minor.
Shortly after the first bout, the following happened:
Swollen glands in neck- both sides -HUGE- (Gross -I actually look like I have 3 chins and I'm not a heavy girl) They occasionally will go down- mostly in the mornings -but then by afternoon they are back and beautiful.
Swollen glands in underarms- in addition to hard nodules -which will hang out for a few days and sometimes act like an infection -hot/red/painful/ and then they subside or move to the opposite underarms. (THey take turns) Right this second, my pits are good for the first time in three weeks. Nice!
Fever -again -I usually wake without a fever, and by 11 am or so...it starts to wane... stays between 99 and 100.5 -ish.
Headache -I wake up with -its not bad... just there.
My neck hurts from the glands -I'm a little hoarse -hurts to talk after 10 minutes or so of conversing -sometimes hurts to swallow- not always.
Itch itch itch -also intermittent symptom -cannot determine a trend. But sometimes I have a generalized itch that I have scratched until blood- had to go have fake nails put on to solve the clawing damage - fake nails are blunt and do not tear the skin. But my legs and arms the worse -stomach/head and other not as bad -I dont have dry skin. I dont have a rash.
Bruising- wake up with bruises -nothing drastic -but maybe 2 inch by 2 inch -dark bruised...pretty sure husband is not beating me in my sleep.
Positive Lyme -I'm on week three of doxy for the second time -no response -I keep waiting to feel better.
Have had a lot of blood workups -
I had a chest x ray and more blood work yesterday - but guess I'll wait until Monday for those results. In the meantime, I am only able to work about 12 hours a week -and the remainder is spent in bed recouperating. This is KILLING me to be down.
When I start to feel good, I get up and maybe cook a meal or do some laundry and then... my glands just start to throb and I get exhausted and sickly feeling.
I have been to GP once/twice/thrice a month since April -and he just continues to test. I dont even know what we're looking for anymore. He seems thorough -and feels it is NOT Lyme's at this point causing the symptoms -it was supposedly a new infection and should have responded between the doxy and the amox that I was on -
My life like this is truly useless. I am almost completely disabled and my mind races constantly at all I need to do and all the money my family is losing because I am laid up in bed. I am starting to feel really depressed from all of this.
I'm sure I am leaving out stupid symptoms -the worse is the tired/headache/swollen glands and underarm swelling/pain -and LOW GRADE FEVER....
To me sounds like something stupid like Mono or a virus that antibiotics cant touch...but nothing is showing on bloodwork?
Thanks for letting me vent -I welcome any insight. I'm tired of trying to self diagnose -It has become a comedy in my house and we just laugh -but really... I want to cry.