Discussions By Condition: I cannot get a diagnosis.

Maybe I'll die and we'll never know why -

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: mdviagoogle
  • August 29, 2009
  • 08:21 PM

Bah. A melodramatic title I know.

I am a business owner- I work for myself and have no time to be down. I have been sick since April which all started with a scary bout of vertigo.

Had never experienced it before to wake at midnight and spun for the next 14 hours -along with the vomitting and inability to walk/talk etc. It stopped, and then I spent a couple days recouperating and went to doc to be diagnosed with bilateral ear infection- clinical diagnosis. I wasn't sick at that point but I took the antibiotic because I would have done ANYTHING to not go throug that again.
Vertigo did not reoccur until 3 months later and it was minor.
Shortly after the first bout, the following happened:

Swollen glands in neck- both sides -HUGE- (Gross -I actually look like I have 3 chins and I'm not a heavy girl) They occasionally will go down- mostly in the mornings -but then by afternoon they are back and beautiful.

Swollen glands in underarms- in addition to hard nodules -which will hang out for a few days and sometimes act like an infection -hot/red/painful/ and then they subside or move to the opposite underarms. (THey take turns) Right this second, my pits are good for the first time in three weeks. Nice!

Fever -again -I usually wake without a fever, and by 11 am or so...it starts to wane... stays between 99 and 100.5 -ish.

Headache -I wake up with -its not bad... just there.

My neck hurts from the glands -I'm a little hoarse -hurts to talk after 10 minutes or so of conversing -sometimes hurts to swallow- not always.

Itch itch itch -also intermittent symptom -cannot determine a trend. But sometimes I have a generalized itch that I have scratched until blood- had to go have fake nails put on to solve the clawing damage - fake nails are blunt and do not tear the skin. But my legs and arms the worse -stomach/head and other not as bad -I dont have dry skin. I dont have a rash.

Bruising- wake up with bruises -nothing drastic -but maybe 2 inch by 2 inch -dark bruised...pretty sure husband is not beating me in my sleep.

Positive Lyme -I'm on week three of doxy for the second time -no response -I keep waiting to feel better.

Have had a lot of blood workups -
Brain MRI
Thyroid Ulstrasound

all negative.

I had a chest x ray and more blood work yesterday - but guess I'll wait until Monday for those results. In the meantime, I am only able to work about 12 hours a week -and the remainder is spent in bed recouperating. This is KILLING me to be down.

When I start to feel good, I get up and maybe cook a meal or do some laundry and then... my glands just start to throb and I get exhausted and sickly feeling.

I have been to GP once/twice/thrice a month since April -and he just continues to test. I dont even know what we're looking for anymore. He seems thorough -and feels it is NOT Lyme's at this point causing the symptoms -it was supposedly a new infection and should have responded between the doxy and the amox that I was on -

My life like this is truly useless. I am almost completely disabled and my mind races constantly at all I need to do and all the money my family is losing because I am laid up in bed. I am starting to feel really depressed from all of this.

I'm sure I am leaving out stupid symptoms -the worse is the tired/headache/swollen glands and underarm swelling/pain -and LOW GRADE FEVER....

To me sounds like something stupid like Mono or a virus that antibiotics cant touch...but nothing is showing on bloodwork?

Thanks for letting me vent -I welcome any insight. I'm tired of trying to self diagnose -It has become a comedy in my house and we just laugh -but really... I want to cry.

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  • Oh how i understand i had the same problem for so many years on and off.Because my white blood cell count was so low.My immune system was really not winning..I wanted to die also.I prayed to the lord so many nights crying and wrestling with him..It is defenate you are fighting a virus.Something in your body is strong the will to survive..I finally can say i am better after year of strugling.I got rid of the heavy metals in my body.Like lead mercury etc.by taking dmps and dmsa.I took ketoconozole to kill all the fungus growth in my system called systematic candiasis.I had 40 immune drip ivs.basically tons of minerals and vitamin c.eat lots of greens.healthy stuff wheat grass.chlorophil.all the good chlorella is great for taking out mercury and g for you.as you do all this you strenghten your immune system to fight and win.major detox.herbs like milk thistle and colon cleanse.i know its almost impossible to run and do cardio.but force yourself it makes your lymphnodes push out the virus and bacteria four times faster and sends oxygen to the brain to heal your body.and last but not least raw garlic to kill all the parasites.black walnut is good to kill the parasites also but clove kills the eggs.and of course read the bible and pray.go to god.It doesnt always happen right away.But helping yourself to fight will help.after all this your adrenal glands will need restoring.because they are what support you immune system and lymphocite system.so take a supplement to support adrenal function for a total of 6 months.before you know it youll be winning the battle.god bless you sincerly an e suffererBah. A melodramatic title I know.I am a business owner- I work for myself and have no time to be down. I have been sick since April which all started with a scary bout of vertigo.Had never experienced it before to wake at midnight and spun for the next 14 hours -along with the vomitting and inability to walk/talk etc. It stopped, and then I spent a couple days recouperating and went to doc to be diagnosed with bilateral ear infection- clinical diagnosis. I wasn't sick at that point but I took the antibiotic because I would have done ANYTHING to not go throug that again. Vertigo did not reoccur until 3 months later and it was minor.Shortly after the first bout, the following happened:Swollen glands in neck- both sides -HUGE- (Gross -I actually look like I have 3 chins and I'm not a heavy girl) They occasionally will go down- mostly in the mornings -but then by afternoon they are back and beautiful. Swollen glands in underarms- in addition to hard nodules -which will hang out for a few days and sometimes act like an infection -hot/red/painful/ and then they subside or move to the opposite underarms. (THey take turns) Right this second, my pits are good for the first time in three weeks. Nice! Fever -again -I usually wake without a fever, and by 11 am or so...it starts to wane... stays between 99 and 100.5 -ish. Headache -I wake up with -its not bad... just there. My neck hurts from the glands -I'm a little hoarse -hurts to talk after 10 minutes or so of conversing -sometimes hurts to swallow- not always. Itch itch itch -also intermittent symptom -cannot determine a trend. But sometimes I have a generalized itch that I have scratched until blood- had to go have fake nails put on to solve the clawing damage - fake nails are blunt and do not tear the skin. But my legs and arms the worse -stomach/head and other not as bad -I dont have dry skin. I dont have a rash. Bruising- wake up with bruises -nothing drastic -but maybe 2 inch by 2 inch -dark bruised...pretty sure husband is not beating me in my sleep. Positive Lyme -I'm on week three of doxy for the second time -no response -I keep waiting to feel better. Have had a lot of blood workups -Brain MRIThyroid Ulstrasound all negative. I had a chest x ray and more blood work yesterday - but guess I'll wait until Monday for those results. In the meantime, I am only able to work about 12 hours a week -and the remainder is spent in bed recouperating. This is KILLING me to be down.When I start to feel good, I get up and maybe cook a meal or do some laundry and then... my glands just start to throb and I get exhausted and sickly feeling. I have been to GP once/twice/thrice a month since April -and he just continues to test. I dont even know what we're looking for anymore. He seems thorough -and feels it is NOT Lyme's at this point causing the symptoms -it was supposedly a new infection and should have responded between the doxy and the amox that I was on - My life like this is truly useless. I am almost completely disabled and my mind races constantly at all I need to do and all the money my family is losing because I am laid up in bed. I am starting to feel really depressed from all of this. I'm sure I am leaving out stupid symptoms -the worse is the tired/headache/swollen glands and underarm swelling/pain -and LOW GRADE FEVER.... To me sounds like something stupid like Mono or a virus that antibiotics cant touch...but nothing is showing on bloodwork? Thanks for letting me vent -I welcome any insight. I'm tired of trying to self diagnose -It has become a comedy in my house and we just laugh -but really... I want to cry.
    Anonymous 42789 Replies
    • August 30, 2009
    • 11:26 AM
    • 0
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