Discussions By Condition: I cannot get a diagnosis.

Marfan's Syndrome/scoliosis

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: candystrip32
  • July 10, 2010
  • 07:41 PM

Hi, my name is kathryn J. sims of memphi,tn. I was diagnosed at the age of 9 that i might have a condition called the Marfan's Syndrome. well as i gotten older test did show some signs of the disease. Which i now have formed scoliosis which i am in my second stage. i have gout, disk degenerative disease, i am legally colored blind. cant see certain colores. i have carpel tunnel in both hands. cant write, cant open anything any more. crowded teeth which have shifted to the left. curvature of the spine. i am in chronic pain all day. i have C.O.P.D. with asthma/broncitis. allergic to memphis pollen. and everything else including smoke of all kinds. i have found the doctor that orginial told my mother about this disease. his name is Robert E.Tipton M.D. who now resides in Layfayette,Indiana. phone number is (765) 446-9600. i need someone to contact him. i dont have the means of getting down there so i can be tested for this rare disease that has now surface. social security will not give me my benefits. this crippling disease is almost to the end. is there anybody that can help me. my number is 901 282-3107 or 9015222046. call me as well. thanks for listenting to my story. the public needs to be aware as well.

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