I keep a journal of all my treatments and symptoms. Over three years ago I came down with:
flu like symptoms
lymp glands that were tender and swollen glands on the back of my head.
I had sever neck pain and could barely move my neck.
I had sever joint pain in my right elbow and left ankle and knee. I thought I had broken my ankle and had x rays taken.
I could not remeber anything
I could not concentrate or even read a book. I used to love reading.
It hurt my foot to drive a car. I was bed ridden
My doctor told me I had a muscle spasm in my neck and gave me relaxants. I requested tests for lupus, RA and all were negative. I requested tests to lyme that came back negative. No one wanted to treat me The pain moved from one location to another and would settle in there for about a year before moving to yet another location. I have night sweets, fatique, fractionated sleep issues (two hours sleep, two hours up, two hours sleep.....) I have ringing in my ears, tremors, and so on...............
A year and a half ago I started to have back pain, left flank side. I had a colonoscopy but doc said that was not causing the pain. I just kept waiting for the pain to move on as before. It never did and I am now in terrible pain, I have been back to the gastro doc who sent me to a gyn who sent back to the gastro doc. Now he wants me to go to the urologist, I have had xrays, cts, MRI, blood tests. I have no where else to go. This pain is not joint pain this time, it is different.
I have been on antibiotics for 3 years and just got off of them. They could only help to a point with my "auto-immune disease". I had doctors who did not want to treat me they said I was depressed. WHO WOULDN'T BE WHEN THEY HAVE BEEN IN PAIN AND SICK FOR YEARS?????
IS THERE A PLACE FOR THE PATIENTS WHO ARE NOT WANTED?
Maybe in heaven......
Good luck to all of you