Discussions By Condition: I cannot get a diagnosis.

many symptoms..please help

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • July 10, 2007
  • 09:25 PM

hi,
i am a 23 year old female with many symptoms that really dont seem to fit together..i have been to many doctors but none really seem to know what is going on..i started having upper left stomach pain when i was seven, which is everyday, but only really bad about once a week..normal bowls, normal upper gi, normal blood work..after seeing many gi specialists they decided it was probably just gas and constipation(which i told them i had neither)..when i was 17 i starting passing out a few times a week, i had a tilt table test and was diagnosed with neurocardiogenic syncope..shortly after i began urinating very frequently, no buring or pain...urine tests showed that i did not have infection, but ultrasound after urinating showed that i was retaining fluids..had cytoscopy and byopsy that showd lesions but they were benign..it was determined i hade interstitial cystitis..shotly after that i began feeling a burning sensation in my left leg several times a day..at this time i also developed severly sore muscles mainly in my back but getting better throughout the day, left sided jaw pain, pain behind my eyes with movement, dizzyness, lightheadedness, confusion, inabillity to concentrate, forgetfullness (forgeting what certain letters looked like), mood swings, and lost vision in left eye for several minutes...i went to a neurologist and had mri to test for ms since it runs in the family, the test was negative..after a few months symptoms disappeared..a few months later they all came back..went to rhemotologist and had tests done for lupus and rheumotoid arthritis, both negative..he said it was fibromyalgia "like"syndrome..i think that is a b.s. diagnosis because he didn't know what it was...and now a few months ago started having severe stomach aches(which i am used to by now) but also left sided back discomfort (feels like kidney is going to burst and also a popping feeling)..had a urine test which show really elevated protein in my urine, had a kidney ultrasound which came back normal..now i am stuck and dont know what to do.so if anyone has any suggestions as to what i do next please help...alo not sure if its important but i sweat alot, even when i am cold...thanks again

Reply Flag this Discussion

6 Replies:

  • I would suggest seeing an endocrinologist. Good luck to you... Post back if you get a diagnosis.
    Anonymous 42789 Replies Flag this Response
  • HiI don't have an answer for you, but I am stuck as well with some similar problems. I have left upper abdominal pain that comes and goes, only really bad once a week. I also have the bad back/ shoulder blade pain on the left side. I feel worse after eating. But, all my blood test, CAT, and ultrasound tests were fine. It sounded like gallstones or pancreatitis but the tests don't show it. Now I am stuck. It's been over a month that I've been feeling this way, and as a result I have become very irritable probably due to the constant pain. Best of luck to you, don't give up.
    Anonymous 42789 Replies Flag this Response
  • Have you ever heard of Fabry's Disease? I would ask your Doctor about that and see if you can be tested. Good luck.
    Anonymous 42789 Replies Flag this Response
  • Dear original poster....unregistered.Below is a list of you symptoms. upper L stomach painpassing outneurocardiogenic syncopefrequent urination...no UTIretaining fluidslesions(kidneys, adrenal glands?..not specified)interstitial cystitisburning legssweat even when coldsore musclesjaw pain (look up TMJ)eye paindizzinessinability to concentratemood swingsloss of visionlightheaded confusionMS family history Most doctors would either tell you to see a psychiatrist, like most of them do, or they will look for an answer to each problem individually. This could take a long time. Please read the threads titled.... "The Truth About CFS/ME""The Truth About the Truth"and..."Want answers, read here!!!!!!!!!!!!!!!!!" research mycoplasma or follow the links I have provided. MS is related to this also. You may have CFS or a disease associated with mycoplasma as it seems to run in families.You are not alone. This forum is full of many having similar/same sx as yourself.Hope you are well.....mommy cat:)
    mommy cat 1654 Replies Flag this Response
  • Here is a list of sx of CFS. I have put yours in RED. Sore throat, chills, sweats, low body temperature, low grade fever, lymphadenopathy, muscle weakness (or paralysis), muscle pain, muscle twitches or spasms, gelling of the joints, hypoglycaemia, hair loss, nausea, vomiting, vertigo, chest pain,cardiac arrythmias, resting tachycardia, orthostatic tachycardia, orthostatic fainting or faintness, circulatory problems, opthalmoplegia, eye pain, photophobia, blurred vision, wavy visual field, and other visual and neurological disturbances, hyperacuity, tinnitus, alcohol intolerance, gastrointestinal and digestive disturbances, allergies and sensitivities to many previously well-tolerated foods, drug sensitivities, stroke-like episodes, nystagmus, difficulty swallowing, weight changes, paresthesias, polyneuropathy, proprioception difficulties, myoclonus, temporal lobe and other types of seizures, an inability to maintain consciousness for more than short periods at a time, confusion, disorientation, spatial disorientation, disequilibrium, breathing difficulties, emotional lability, sleep disorders; sleep paralysis, fragmented sleep, difficulty initiating sleep, lack of deep-stage sleep and/or a disrupted circadian rhythm. Neurocognitive dysfunction may include cognitive, motor and perceptual disturbances. Cognitive dysfunction may be pronounced and may include; difficulty or an inability to speak (or understand speech), difficulty or an inability to read or write or to do basic mathematics, difficulty with simultaneous processing, poor concentration, difficulty with sequencing and problems with memory including; difficulty making new memories, difficulty recalling formed memories and difficulties with visual and verbal recall (eg. facial agnosia). There is often a marked loss in verbal and performance intelligence quotient (IQ). I have also found info linking mycoplasma to frequent urination, retaining fluids, lesions, interstitial cystitis, jaw pain (TMJ), mood swings,lightheadednessHope all of this helps paint a clearer picture for you and anyone else having these symptoms. Be well...mommy cat
    mommy cat 1654 Replies Flag this Response
  • here is a list of sx of cfs. I have put yours in red. Sore throat, chills, sweats, low body temperature, low grade fever, lymphadenopathy, muscle weakness (or paralysis), muscle pain, muscle twitches or spasms, gelling of the joints, hypoglycaemia, hair loss, nausea, vomiting, vertigo, chest pain,cardiac arrythmias, resting tachycardia, orthostatic tachycardia, orthostatic fainting or faintness, circulatory problems, opthalmoplegia, eye pain, photophobia, blurred vision, wavy visual field, and other visual and neurological disturbances, hyperacuity, tinnitus, alcohol intolerance, gastrointestinal and digestive disturbances, allergies and sensitivities to many previously well-tolerated foods, drug sensitivities, stroke-like episodes, nystagmus, difficulty swallowing, weight changes, paresthesias, polyneuropathy, proprioception difficulties, myoclonus, temporal lobe and other types of seizures, an inability to maintain consciousness for more than short periods at a time, confusion, disorientation, spatial disorientation, disequilibrium, breathing difficulties, emotional lability, sleep disorders; sleep paralysis, fragmented sleep, difficulty initiating sleep, lack of deep-stage sleep and/or a disrupted circadian rhythm. Neurocognitive dysfunction may include cognitive, motor and perceptual disturbances. Cognitive dysfunction may be pronounced and may include; difficulty or an inability to speak (or understand speech), difficulty or an inability to read or write or to do basic mathematics, difficulty with simultaneous processing, poor concentration, difficulty with sequencing and problems with memory including; difficulty making new memories, difficulty recalling formed memories and difficulties with visual and verbal recall (eg. Facial agnosia). There is often a marked loss in verbal and performance intelligence quotient (iq). I have also found info linking mycoplasma to frequent urination, retaining fluids, lesions, interstitial cystitis, jaw pain (tmj), mood swings,lightheadednesshope all of this helps paint a clearer picture for you and anyone else having these symptoms. Be well...mommy catit all makes a lot of sense ,i have ll of the above..
    Anonymous 42789 Replies
    • January 3, 2011
    • 06:47 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.