Discussions By Condition: I cannot get a diagnosis.

MANY SYMPTOMS, Please Save My Life...

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: HelpinOhio
  • October 12, 2008
  • 02:50 PM

Please read this, PLEASE. Im so young but I feel like my life is already over, I need help badly...
Im almost 18 years old and Im a guy. Ive been to a few different doctors and a lot of different visits, but they found nothing. I feel so bad, REALLY bad. Im asking you all for a favor, if you have any information and know whats wrong with me I will greatly appreciate it. Please save my life...please.

Here are my symptoms: Very dry skin and hair, very pale/sickly looking skin, hands turn purple/blue/white when cold, vision is gradually getting worse, muscles and joints hurt all the time, bad cramps in muscles, very tired all the time, horrible looking teeth because of loss of enamel and discoloring, very weak and sluggish, occasional chest pain especially when deep breathing, cant breathe right, ringing in ears and sometimes one ear goes deaf for up to a minute, irregular heartbeat and occasional palpitation, feeling like Im going to faint, constipation, very sensitive to cold and heat, had a rash over nose and cheeks, bad concentration, bad memory. Those are the main symptoms, but I could go on for hours...

I dont get this at all, I feel HORRIBLE, I dont even know how I got the energy to write this. Most of those symptoms have been going on for a few years now, but its unbearable now, Noone should have to live like this. I take a multivitamin everyday and eat fairly good and get enough calories. Dont smoke or drink at all. If you have any more questions, please ask. If you can help me PLEASE Im begging you to help. I dont know whats wrong with me, Im barely 18 and I feel like Im dying...I just want to live a good life...thats all Im asking for...

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21 Replies:

  • i feel your fright here lately ive been having many worrying symptons to and have been to hospital god knows how many times and they found nothing..my advice get to the hospital and consist you get scans threten with a sue of malpractise if they dont treat or assist you.im sorry i am of no more asstiance i really feel for you bro i myself have only just 18 and feel the same way like im dying
    Kurtis18 15 Replies
    • October 12, 2008
    • 05:11 PM
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  • test for lupus
    mae3057 50 Replies
    • October 12, 2008
    • 05:50 PM
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  • You don't say if you've been to a doctor at all. If not, you need to go right away and get this checked into. If so, have you been to an internal medicine doctor? You may also want to see a rheumatologist for lupus or other immune-system related issues. Good luck.
    JennNYC 14 Replies
    • October 12, 2008
    • 09:24 PM
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  • I started this thread, I forgot to add a couple things:I got tested for a lot of different things like thyroid disease, celiac, rheumatoid, chest X-ray, stomach x-ray, EKG and more. I have been to 2 different doctors for about 5 seperate appointments just in the past year, they found nothing. I guess they did something called a "full blood scan" or something like that, Im not sure all the things that tests for. I also got EKGs or whatever and it came back clear other than a slight arrhythmia that showed up one of the three times.I feel embarrassed going to the doctors anymore, they really dont believe me. This is no joke for me though, if you saw what I look like and what I should look like you would understand, and thats not even getting into how bad I feel. Right now the doctors are putting me off and saying its depression or anxiety, I agree that I have some anxiety and depression, but that doesnt nearly account for all the symptoms which no mental problem like anxiety could cause. Its hard not to be depressed and anxious with how bad I feel. Please reply if you know anything, I really need help.
    HelpinOhio 32 Replies
    • October 13, 2008
    • 01:09 AM
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  • I started this thread, I forgot to add a couple things: I got tested for a lot of different things like thyroid disease, celiac, rheumatoid, chest X-ray, stomach x-ray, EKG and more. I have been to 2 different doctors for about 5 seperate appointments just in the past year, they found nothing. I guess they did something called a "full blood scan" or something like that, Im not sure all the things that tests for. I also got EKGs or whatever and it came back clear other than a slight arrhythmia that showed up one of the three times. I feel embarrassed going to the doctors anymore, they really dont believe me. This is no joke for me though, if you saw what I look like and what I should look like you would understand, and thats not even getting into how bad I feel. Right now the doctors are putting me off and saying its depression or anxiety, I agree that I have some anxiety and depression, but that doesnt nearly account for all the symptoms which no mental problem like anxiety could cause. Its hard not to be depressed and anxious with how bad I feel. Please reply if you know anything, I really need help. Get tested for Lyme by a Lyme literate doc. You live in Lyme country and it can cause all of your symptoms. I'd definitely rule this out. Igenex and Bowen labs are the reliable labs for lyme tests. Don't take your docs word on your blood work. Demand copies of your lab results and closely look at the levels, especially B12 levels and vitamin D. I strongly suspect Lyme. When did all your symptoms start? Was it sudden or gradual? DOM
    acuann 3080 Replies
    • October 13, 2008
    • 03:02 AM
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  • Get tested for Lyme by a Lyme literate doc. You live in Lyme country and it can cause all of your symptoms. I'd definitely rule this out. Igenex and Bowen labs are the reliable labs for lyme tests. Don't take your docs word on your blood work. Demand copies of your lab results and closely look at the levels, especially B12 levels and vitamin D. I strongly suspect Lyme. When did all your symptoms start? Was it sudden or gradual? DOMOkay thank you, Ill mention something about it next time I go to the doctors, which is soon. Im not at all familiar with Lyme Disease but Ill look it up. Is there a cure for it? My symptoms seem to have been gradually worse over a few years, but have started to get bad about a year ago.I guess the doctor said I had a little low vitamin D, so now Im taking a multivitamin and a vitamin D pill a day, it doesnt seem to help much. Im just praying that I can figure out whats wrong with me, you know? I want to get on with my life.
    HelpinOhio 32 Replies
    • October 13, 2008
    • 03:16 AM
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  • BioSET in Ohio will help eliminate most, if not all of your symptoms. It did for me and saved my life, literally. One Practitioner Matt Brungard, ND 134 Westshester Drive, Suite 4 Austintown, OH 44515 Phone: 330-793-5555 The Chiropractice office is run and owned by Dr Patrick Lalama Best wishes mommy cat many of your symptoms are caused from allergies. BioSET eliminates them for good and reolves symptoms. www.bioset.net
    mommy cat 1654 Replies
    • October 13, 2008
    • 04:30 AM
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  • I guess the doctor said I had a little low vitamin D, so now Im taking a multivitamin and a vitamin D pill a day, it doesnt seem to help much. Im just praying that I can figure out whats wrong with me, you know? I want to get on with my life. I had low vitamin D and doctor put me on the normal D vitamin pills and then just ignored the situation. Ive now got osteroarthritis in quite a few different places (ended up in hospital due to it) and im only in my 30's :( ... studies show that low D can affect one in that way. Most doctors know very little about vitamin D and the various affects this can have eg muscle and join pain. I strongly suggest that you have your D levels checked once again to make sure they now are at a good normal level. (The hospital ended up having to give me a massive dose of D... 25 times the normal dose). horrible looking teeth because of loss of enamel That makes me wonder too if you are still vitamin deficient. Vitamin D helps calicum absorption so if you are low.. you may not be getting enough calicum. Get all your vitamin and mineral levels checked................. Another possibility once everything else has been ruled out (eg get lyme and lupus ruled out.. the rash you have can be a very common lupus rash) is "chronic fatigue immunity dysfuction syndrome" also known as "chronic fatigue syndrome". check out the symptoms on http://wwcoco.com/cfids/bernesx.html CFS patients have so many different symptoms and often do feel like they are dying and unfortunately studies show that 80% of CFIDS patients thou horribly sick, remain undiagnosed due to most doctors lack of knowledge on this illness. (for more info on this illness.. i suggest to check out the forums on www.immunesupport.com)
    taniaaust1 2267 Replies
    • October 13, 2008
    • 08:45 AM
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  • I have Lactose Intolerance so its dificult for me to get enough calcium. I got tested for it and it didnt show anything but I know I have it, everytime I drink milk or a dairy product my stomach hurts bad for a few hours afterwards, it gets bloated, and I either have even worse constipation or sometimes diarrhea. And both my parent have some degree of lactose intolerance.Could any of those diseases you all mentioned cause really dry skin and hair? for example I took a shower a few hours ago, and dead skin is flaking off my face, its nasty. I dont look healthy at all. Like I said I have real pale dry skin, my hair is like dry straw, my face is flushed so it looks like Im blushing 24/7 and my teeth barely have any enamel left, I can literally see through most parts of my teeth, I hate it.
    HelpinOhio 32 Replies
    • October 13, 2008
    • 06:13 PM
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  • I suspect lupus! Your symptoms sound exactly like mine!! Even when the blood test come back now; the doctor is very much aware that the ANA is positive, at the same time, the test reveals that there is no active lupus activity. We can still have symptoms when the illness goes into remission/hiding.Ask for an ANA test
    Anonymous 42789 Replies
    • October 14, 2008
    • 06:25 PM
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  • You may have multiple food intolerances. Celiac disease is another possibility.
    aquila 1263 Replies
    • October 14, 2008
    • 07:49 PM
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  • You may have multiple food intolerances. Celiac disease is another possibility.I suspected Celiac as I have 2 direct family members who have it, but I got tests done specifically for that and the doctor said "You have no sign whatsoever of celiac disease" thats the 2nd time I got it done also, and I ate at least 3 direct servings of bread for over 3 weeks before the test, and it still came back negative.For the other poster, I was suspecting Lupus also. But Im a guy, and 90% of people with lupus are women, still its possible. I dont know if I got tested for that yet so Ill think about it next time. The doctors were still all pretty sure that it was just depression and anxiety but that cant explain over half the symptoms Im having. This is truly a mystery illness.
    HelpinOhio 32 Replies
    • October 15, 2008
    • 01:01 PM
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  • Sounds very much like it could be LYME disease and/or other tick borne diseases. Lyme can cause you to be low on different vitamins, etc. But your other symptoms sound very Lyme to me. You are very right with the fact that BEING so ill can of course, cause depression and anxiety. We all just want to have a decent life and terrible illness robs us of that. If you want to talk more with email, we can do that. I will try to help you get local help and support. what state are you in? In the meantime, do some research and keep an open mind. Lyme is a possibility... so learn more Here are some sites> CALDA - California Lyme Disease Association Lyme Disease Network good luck and KEEP US INFORMED how you are doing! take good care,
    Anonymous 42789 Replies
    • October 15, 2008
    • 09:38 PM
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  • Hmm, I can try to help you at least sort out some of it. I can tell you that the skin problems are most likely related to a heart problem especially since you get irregular heart beats and some palpitations. Since your skin turns that blue/purple, that means your blood isn't getting enough oxygen and since the blood that's getting to your skin isn't as good as it should be, that explains the really dry skin. The discoloration is usually worse at the hands and feet, then at the arms and legs and usually around the center the skin is more normal. Also the feeling like you're going to faint also ties in to a heart problem. The muscle and joint pain can also have to do with your heart since the heart affects everything. If your skin is closer to the normal color around the center area or your body (like your chest and stomach area) that's actually a good sign since it means your body is using all the good blood it has for the important organs and at least those should be ok. So all that sounds to me like it has to do with a heart problem you might have. Then the cause to that kind of heart problem and chest pain, and problems with your lungs typically have to do with the way you feel in your head. If the symptoms just gradually started to develop at a time where you started to feel depressed or really upset and never got back to being happy, then all this is probably rooted to those strong emotions and once you correct that, it should go away. I had all the symptoms you mentioned except my teeth aren't that bad (probably since all I do is brush them) but I found that it was all rooted to the way I felt on the inside in general, but since I'm more of an "emotionless" kind of person and I can be going crazy in my head without anyone noticing, no one realized that was the cause of the problem. So if you also had all these problems start to show up little by little at a time you got into a sort of depression or emotion upset that kept on going for a long while, then you might be able to fix yourself by fixing that and trying to take it easy. If that's the cause though, then the pain in your chest should be worse when you're upset. I don't know if any of this helps. I'm not really a doctor, and I'm only 17, but it took me a while to put everything together that was wrong with me and it might help you too if you have the same kind of problem. So just don't let yourself feel bad and know that you're going to get better. If you let all of it get to you, you won't get better though. Good luck.
    Anonymous 42789 Replies
    • October 15, 2008
    • 11:15 PM
    • 0
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  • Have you had your iron levels checked? Some of those symptoms sound somewhat like iron deficiency anemia.I understand Wikipedia isn't the be-all, end-all of research but here's their article:http://en.wikipedia.org/wiki/Iron_deficiency_anemia
    Anonymous 42789 Replies
    • October 16, 2008
    • 02:00 AM
    • 0
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  • I would ask your Dr. about Thyroid disease....a simple blood test will give the diagnosis.I felt the same way years (16 of them) ago. I was (eventually) diagnosed as hypothyroid. Dr. put me on Synthroid...my life has been normal ever since.I know that it seems like you are alone in your quest for answers....Be firm (Not abusive) with your physician. You are in control of your health.Best of luck...Chris
    Anonymous 42789 Replies
    • October 16, 2008
    • 00:42 PM
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  • Help in Ohio, I may be able to help but I would need to talk to you. I am in Michigan. If you would like to talk to me just let me know.
    Nutritionist7 16 Replies
    • October 17, 2008
    • 02:10 AM
    • 0
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  • Just to be on the safe side you might want to see an Endocrinologist and get your hormones checked (this is not usually part of a standard blood test).You might want to try to rule out stuff like Lupus, Cushing's/Addison, Pituitary problems and heart problems. At least, you can look at the list of symptoms for these diseases to see if maybe you didn't miss any and try, when possible, to go to a teaching/university hospital.Best of luck. And if you ever find what's wrong with you, please share!
    geenie 39 Replies
    • October 22, 2008
    • 10:12 AM
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  • Just to be on the safe side you might want to see an Endocrinologist and get your hormones checked (this is not usually part of a standard blood test).You might want to try to rule out stuff like Lupus, Cushing's/Addison, Pituitary problems and heart problems. At least, you can look at the list of symptoms for these diseases to see if maybe you didn't miss any and try, when possible, to go to a teaching/university hospital.Best of luck. And if you ever find what's wrong with you, please share!Yeah... I forgot, I wanted to mention, as far as calcium deficiency is concerned, I had similar issues regarding lactose, and I seriously hate taking any kinds of pills. I tried the chewable supplements (chalky pills), not so great, and I wasn't absorbing the calcium. One day, I decided to try the chewy Caltrate-D cubes, they had a new flavor out : strawberry. Basically, it's like starburst cubes but with a toned down flavor and yeah, still a bit chalky, but the vitamin D/Calcium proportions were perfect for me I guess, since it's the only supplement I have been able to effectively absorb. (Maybe it's cause I got addicted to the taste and ended up eating whole lot more cubes than I should have daily). The caltrate, which I mostly was taking to prevent bone loss / help with pms, gave me an incredible energy boost as well, though, I can't tell if the effect would have lasted or not, I've ran out of cubes and I've only been able to find these types of vitamin-D & Calcium cubes in Canada and in the states.
    geenie 39 Replies
    • October 22, 2008
    • 11:50 AM
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  • The caltrate, which I mostly was taking to prevent bone loss / help with pms, gave me an incredible energy boost as well, though, I can't tell if the effect would have lasted or not, I've ran out of cubes and I've only been able to find these types of vitamin-D & Calcium cubes in Canada and in the states. umm i think it may of been the vitamin D which helped you..sounds like your D level being low is at least one issue adding to your issues. You need to get your D levels rechecked.. both D2 and D3.. and make sure they are in a good range. Dont just assume this.taniaaust1ps.. also get copies of your test results.. as often doctors will dismiss things they know very little even when they are outside normal ranges.
    Anonymous 42789 Replies
    • October 26, 2008
    • 02:51 AM
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