Discussions By Condition: I cannot get a diagnosis.

Many symptoms over 3 years, MRI in 2008 was clear but could I still have brain tumour

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: moroder
  • December 24, 2010
  • 07:09 PM

Many symptoms over 3 years, MRI in 2008 was clear but could I still have brain tumour
Hello, please help, 42 year old male. About 3 years ago, I started having numbness in my left arm and hand that would wake me up in the middle of the night. My first thought was a possible heart problem, and although my cholestorol is borderline high, the doctors said there was no immediate threat as long as I made changes to my diet.
Over the following 3 years, these numbness episodes came and went. In March 2008, I had an MRI on my head and neck and no problems were found. The doctor thought it might be something to do with a nerve in my neck, but a series of x rays and tests have founf nothing there.
In September this year, the episodes became more frequent and more severe - both arms and hands crippled when waking up in the middle of the night, taking several seconds to shake them back into life. I started having pains and a squeezing sensation in the sides of my chest, palpatations, and severe pains in my shoulder blades. During the day, my shoulder blades and arms would often ache. More heart tests were done, but again, nothing found, ECGs etc. Just more advice to watch my diet.
December 3rd this year, I started having headaches. These would be all over my head, sometimes on the top, sometimes at the back, the sides, even the base of the skull. I also started having shooting pains in the right side of my head during the day, that last a second or so. And I kept waking up with numbness in both arms and now also leg cramps.

2 nights ago, I awoke at 3.30am with a terrible headache, it felt the whole front of my face was throbbing. I took an ibuprofen tablet to calm it down, but I had a headache (mainly at the back of my head) all day yesterday. This morning was worse than ever. I couldn't get to sleep, every time I lay down the headache would get worse, and also, I'd feel twitching sensation in my right leg and arm, not like a fit, just one twitch each time I felt myself dozing off, to wake me up. And it felt like my whole body was throbbing. I still feel achey now, at the base of my skull.

I'm also suffering pain behind my eyes, particularly my right eye, and 'floating shapes' when I look at a white screen or wall, or even a white cloudy sky or snow. The Doctor just says I need my eyes testing, I may need new glasses, as I use PCs and screens for work 10 hours a day. This started the same day as the headaches.

Doctors say 'no, this isn't a brain tumour', and want to do more x-rays on my neck, because they say I have bad posture. But everything I read online suggests symptoms of brain tumour. This week I have started feeling nauseous, have missed evening meal 4 times in 7 nights because I just can't face food.

My problem is this, if I had mild forms of this arm paralysis 3 years ago, and an MRI showed no tumours, could the worsening of this, and further symptoms, mean that there was something that they missed, which has now grown too big to ignore?

I have other minor symptoms too, such as pressure in my ears (mainly right ear) and constantly sniffing up through my nose but nothing blowing out..., I also have to retrieve semi hardened mixtures of green and dark red from my nostril every morning, which the doctor says is nothing important. I'M SICK OF DOCTORS NOT TAKING THIS SERIOUSLY, my quality of life right now is nil.

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  • You have an interesting case - so where to start You have had some imaging of your neck and Brain and these are negative - also you are experiencing strange face pains and also some tingling and numbness down your arms and some chest discomfort with some nausea and headaches. It is unlikely that you have a brain mass - but they have likely not looked at your pituitary you need a special MRI to look at this part of the brain but before this you would need some hormone testing to see if this is likely. The doctors could repeat also your brain MRI so you will not worry - they should do this for you so you can relax - also they could look at your brain blood flow and see if this is normal etc. I would recommend a chest x-ray - this will look at your lungs and also your heart size - sometimes lung conditions can also cause pain in the face, shoulder etc. I would say this would be useful because you have some chest discomfort and this could be causing some of your other symptoms. I would get a CT of your facial bones and possibly an OPG to look at your jaw - there are many nerve reflexes that can cause headaches and reflex pain in the upper body. I think it would be reasonable to have some other spinal MRI imaging thoracic and cervicalYou could get a special MRI of some of your main facial nerves to see if this is causing some of your strange facial pains and headaches - but get some of the more easier tests done first. I would also get some detailed blood tests - full blood count, electrolytes, ACE, Vitamin B, folate, iron studies check your ferritin levels, thyroid, liver enzyme panel, testosterone, LH, FSH, estrogen, progesterone. Thyroid, PTH, Vit D, Corrected Calcium. Also Chromogranin A, CEA, HCG, blood serotonin and some other tumor markers. Also do a blood smear. I would see a neurologist to work you up if you have not already done so. They may be able to help with some medications for your headaches etc. It might be also worth seeing an endocrine specialist. I do feel sorry for you when you have all these pains and have not get any answers - my advice is not to give up and suffer - make a list of what you have wrong with you and take these and your medical records to your next appointment - possibly suggest these tests that I have outlined - often if you have some thoughts the doctors will followup on these also - hence a broad net of tests to see what can be found to help you. Best of luck
    Anonymous 42789 Replies
    • December 31, 2010
    • 01:18 AM
    • 0
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  • Many symptoms over 3 years, MRI in 2008 was clear but could I still have brain tumourHello, please help, 42 year old male. About 3 years ago, I started having numbness in my left arm and hand that would wake me up in the middle of the night. My first thought was a possible heart problem, and although my cholestorol is borderline high, the doctors said there was no immediate threat as long as I made changes to my diet.Over the following 3 years, these numbness episodes came and went. In March 2008, I had an MRI on my head and neck and no problems were found. The doctor thought it might be something to do with a nerve in my neck, but a series of x rays and tests have founf nothing there.In September this year, the episodes became more frequent and more severe - both arms and hands crippled when waking up in the middle of the night, taking several seconds to shake them back into life. I started having pains and a squeezing sensation in the sides of my chest, palpatations, and severe pains in my shoulder blades. During the day, my shoulder blades and arms would often ache. More heart tests were done, but again, nothing found, ECGs etc. Just more advice to watch my diet.December 3rd this year, I started having headaches. These would be all over my head, sometimes on the top, sometimes at the back, the sides, even the base of the skull. I also started having shooting pains in the right side of my head during the day, that last a second or so. And I kept waking up with numbness in both arms and now also leg cramps.2 nights ago, I awoke at 3.30am with a terrible headache, it felt the whole front of my face was throbbing. I took an ibuprofen tablet to calm it down, but I had a headache (mainly at the back of my head) all day yesterday. This morning was worse than ever. I couldn't get to sleep, every time I lay down the headache would get worse, and also, I'd feel twitching sensation in my right leg and arm, not like a fit, just one twitch each time I felt myself dozing off, to wake me up. And it felt like my whole body was throbbing. I still feel achey now, at the base of my skull.I'm also suffering pain behind my eyes, particularly my right eye, and 'floating shapes' when I look at a white screen or wall, or even a white cloudy sky or snow. The Doctor just says I need my eyes testing, I may need new glasses, as I use PCs and screens for work 10 hours a day. This started the same day as the headaches.Doctors say 'no, this isn't a brain tumour', and want to do more x-rays on my neck, because they say I have bad posture. But everything I read online suggests symptoms of brain tumour. This week I have started feeling nauseous, have missed evening meal 4 times in 7 nights because I just can't face food.My problem is this, if I had mild forms of this arm paralysis 3 years ago, and an MRI showed no tumours, could the worsening of this, and further symptoms, mean that there was something that they missed, which has now grown too big to ignore?I have other minor symptoms too, such as pressure in my ears (mainly right ear) and constantly sniffing up through my nose but nothing blowing out..., I also have to retrieve semi hardened mixtures of green and dark red from my nostril every morning, which the doctor says is nothing important. I'M SICK OF DOCTORS NOT TAKING THIS SERIOUSLY, my quality of life right now is nil.it not necessarly has to be brain tumor , dont go that far,if they did not find when u had ur scan means it is not, i do the same,read all those symptoms from life big threats and only makes it worse. I have alot more symptoms than you have,but the same problem with doctors,for years no good,2-3 years for now,and i m 22. im dealing with the bad nights as well for a while now,and with the headaches and what u said here actually : "I started having pains and a squeezing sensation in the sides of my chest, palpatations" . This wakes me up at night . They say might be problem with thryoid gland, as it controls your whole metabolism. As for me they d say would be hyperthyoidism. You should try for all blood tests,neuro and possibly endocrinologist.
    Anonymous 42789 Replies
    • January 6, 2011
    • 11:43 AM
    • 0
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