Discussions By Condition: I cannot get a diagnosis.

many symptoms

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: Anonymous
  • September 24, 2007
  • 06:20 PM

I'm a 25 year old female. For almost 2 years I've been going to my doctor for fatigue and palpatations and shortness of breath. Everytime I saw the doctor I was told it was becasue I was under too much stress or was having anxiety attacks. Tried anti-depressants.. didn't help. About a year ago I started getting rashes all over my stomach and chest, looks like red vitaligo (?) and it comes and goes in a matter of hours. Doctors said it wasn't hives. Then in late june of this year my lung collapsed. After I had a chest tube I was released but 4 days later it collapsed again. I had suregery to fix it and was told it was a spontaneous phemothorax and I would heal up. The cause of the collapsed lung was excess amounts of blebs. Everyday since the surgery I've felt worse. I'm still very tired all the time, the rash comes and goes, I can barely breath at all, and sometimes my heart feels like its going to jump out of my chest. Seems like I can nevr catch my breath. I'm on oxygen and inhalers but nothing seems to work. The doctors have run me through all the standard tests but can't figure out anything. I'm too young for all this, I've had to quit my job and I can barely play with my kids. Any advice would be so appreciated!!

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  • I'm a 25 year old female. For almost 2 years I've been going to my doctor for fatigue and palpatations and shortness of breath. Everytime I saw the doctor I was told it was becasue I was under too much stress or was having anxiety attacks. Tried anti-depressants.. didn't help. About a year ago I started getting rashes all over my stomach and chest, looks like red vitaligo (?) and it comes and goes in a matter of hours. Doctors said it wasn't hives. Then in late june of this year my lung collapsed. After I had a chest tube I was released but 4 days later it collapsed again. I had suregery to fix it and was told it was a spontaneous phemothorax and I would heal up. The cause of the collapsed lung was excess amounts of blebs. Everyday since the surgery I've felt worse. I'm still very tired all the time, the rash comes and goes, I can barely breath at all, and sometimes my heart feels like its going to jump out of my chest. Seems like I can nevr catch my breath. I'm on oxygen and inhalers but nothing seems to work. The doctors have run me through all the standard tests but can't figure out anything. I'm too young for all this, I've had to quit my job and I can barely play with my kids. Any advice would be so appreciated!!i'm not sure what area you are from but i know of a great pulmonary doctor in the new haven ct area...203 789 1338
    Anonymous 42789 Replies
    • September 25, 2007
    • 04:16 PM
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  • I aprreciate the number but I live in Ft. Campbell KY area.... :(
    Anonymous 42789 Replies
    • September 26, 2007
    • 08:27 PM
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  • have you been checked for bronchiectasis? you need a high res, CT or MRI to find it. check this site out http://www.emedicine.com/med/topic246.htm there's alot to it, it's ***l , I hope you find help
    Anonymous 42789 Replies
    • September 27, 2007
    • 03:52 PM
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  • Sorry to hear you feel so bad, it's very scary when you feel like that and they can't find anything. I might wonder if you have some kind of metal poisioning! I had some of those symptoms, not the lung collapse, but the others. I have mercury poisioning, from a filling in my tooth, lead poisioning among others....I might ask if they could check those levels. If nothing do some research on heavy metal poisioning, you'll have to look hard it took me a long time to get good information. This web site is a good place to start it is a great source of information and knowledge.When you get to a point when the doctors scratch their heads, it time for you to start motivating the doctors as to what you want to know. It's worth every cent. Sue Vit
    suevit 24 Replies
    • September 27, 2007
    • 05:04 PM
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  • What were your symptoms of mercury and lead poisoning??? How did you know??
    Anonymous 42789 Replies
    • September 27, 2007
    • 05:28 PM
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  • Thank you for the info :)
    Anonymous 42789 Replies
    • September 27, 2007
    • 06:54 PM
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  • Look up Burt-Hogg-Dube disease. The lung blebs and pneumo's and the skin problems are similar.
    rad-skw 1605 Replies
    • September 28, 2007
    • 11:33 AM
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  • I can't find anything on that disease..... what is it?
    Anonymous 42789 Replies
    • September 28, 2007
    • 02:36 PM
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  • Hi, To give you an idea of the metal poisioning, I'll list a few of the symptoms I had. Some were connected to pernisious anemia but with that under control I found things that just wouldn't go away... Fatigue, my back muscles would ache and then be ok for a while, very wierd head stuff like when I was sleeping I would wake up feeling like I was in a slight earthquake everything seem to move like it was on the ocean. Eyes would lose focus for a second not horrible but unnerving. I would be standing with customers at work and it would feel like the floor would be ever-so-slightly bouncing up and down. (I even asked a customer if they could feel it, how embarassing) Every night I would be awaken by a electrial type shock that would start in my head, I could hear nothing because of a very loud buzzzzzzz in my ears and the shock would go right down both arms to my fingers. This would last just a fraction of a second, my hearing would come back and all would be normal. This could happen once or several times. Sometimes even in the day. My heart would also get "confused" it would forget to beat and then WHAM it would kick in I would get a pressure in my chest and be very tired, not to mention scared. My stomach bothered me all the time, and I was alway so darn tired, even with the B12 shots. I had the offensive tooth (it was a root canal) pulled and within 2 weeks I stopped having almost all of the night wierd stuff. HOWEVER, before I had it pulled I had been doing a detox with DMSA which released the metal from where my body had stored it, (in muscle tissue I'm sure). My back muscles have improved 70%, but the detox program over taxed my liver. My liver counts were suppose to be around 60ish and mine was 500+. My stomach was sick and tired wise almost to the point of not working. By 5:30 I was done for the day. My homeopath stopped the DMSA and put me on iodine which is also a detoxifier. I continued to get better and better especially after getting that tooth out. That tooth must have just continued to leak mercury, which holds other metals in your body, until I took it out. That was last December. I end up with my Thyroid going haywire stopped everything vitamins, idoine everything and, well I could go on and on .... If you have any questions you can email me. Good LuckSue Vit
    suevit 24 Replies
    • September 28, 2007
    • 02:39 PM
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  • Thanks so much for all the info on mercury, it's def. worth mentioning to my doctor.... I am starting to get a list of things it could possibly be that he hasn't thought of so hopefully atleast one thing is true!!! once again, thanks so much!
    Anonymous 42789 Replies
    • September 28, 2007
    • 03:25 PM
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  • JMO I would suggest finding an excellent teaching hospital close by if you haven't already done so and go be seen there. Find a reputable place that will give you a thorough medical workup of your lungs, heart, endocrine system, immune system and such. Hopefully they can rule put infectious diseases, auto immune disorders also. From there you might be able to get referrals to any specialists you may need for your health issues. Since you have been run through so many tests and still no answers; I think you need to go to a place that has people that have seen a wider range of diseases. Good luck!If you can't find such a teaching hospital; do look into at least finding a great pulmonary dr as the other poster suggested.Hope this helps.
    Anonymous 42789 Replies
    • September 29, 2007
    • 07:13 AM
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  • I do go to a teaching hospital (vanderbilt) but they seem just as confused. And I'm confused too.... recent CT showed slight nodules on top part of both lungs..... Great another new symptom!
    Anonymous 42789 Replies
    • October 1, 2007
    • 01:03 PM
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  • I aprreciate the number but I live in Ft. Campbell KY area.... I know a great pulmonologist in Charleston WV. I had the same things happen to me several years ago. I had a cyst on the lining of my lung that was causing it to collapse.
    Anonymous 42789 Replies
    • February 15, 2010
    • 06:51 PM
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