Discussions By Condition: I cannot get a diagnosis.

Lymphoma?

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: saxifoneforgod
  • April 2, 2007
  • 08:52 PM

Hi all. I am new here and I wanted to ask a couple questions.

For about a year now, I have had several lymph nodes that are palpable in my groin area. I always thought I could feel them because I am thin. However, about 8 months ago, I started having these HORRIBLE night sweats. I just joked about it and said that I was going through "menopause." (Even though I am a 21 y.o. and male.) Then, about two weeks ago, I noticed a small, hard mass in my scrotum. It's not on a testicle, but is very deep. I have also lost about 15 lbs. since January and have an insatiable tiredness. So, I made an appointment to see my doctor.

I have since come across all of this information on Hodgkin's Disease. I have a tendency to say, "OH MAN! I have this!" So, I don't know if I am over-reacting or if I should worry a little. Someone help if you can! Thanks!

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9 Replies:

  • You're not overreacting at all- this sounds like something serious and you need to get to a doctor about it. ANY time you have lymph nodes that remain enlarged for over a month it's a good idea to see a doctor and have them check for things. I don't mean to sound rude, but waiting over a YEAR to have this issue looked into was a major mistake. Have you had an HIV test? In addition to the possibility of lymphoma, what you describe is, unfortunately, some of the classic symptoms of HIV disease progression, specifically turning into AIDS- enlarged lymph nodes (from the active infection), night sweating, weight loss, fatigue. The mass in your scrotum can actually be nothing more than a mass of sperm trapped inside; a uriologist would need to confirm this however. If it is "squishy" than chances are it's something like epididimitus. However, if you do have lymphoma, it's conceviable that the cancerous tissue has spread to your testicles, especially if it began in your groin area. You didn't mention details about the swollen lymph nodes- are they on both sides of your groin or just one? Both sides would be much closer to an infection (like HIV) however just one side would be more in step with cancer, especially if they enlarged relatively slowly and don't hurt.
    Anonymous 42789 Replies Flag this Response
  • You're not overreacting at all- this sounds like something serious and you need to get to a doctor about it. ANY time you have lymph nodes that remain enlarged for over a month it's a good idea to see a doctor and have them check for things. I don't mean to sound rude, but waiting over a YEAR to have this issue looked into was a major mistake. Have you had an HIV test? In addition to the possibility of lymphoma, what you describe is, unfortunately, some of the classic symptoms of HIV disease progression, specifically turning into AIDS- enlarged lymph nodes (from the active infection), night sweating, weight loss, fatigue. The mass in your scrotum can actually be nothing more than a mass of sperm trapped inside; a uriologist would need to confirm this however. If it is "squishy" than chances are it's something like epididimitus. However, if you do have lymphoma, it's conceviable that the cancerous tissue has spread to your testicles, especially if it began in your groin area. You didn't mention details about the swollen lymph nodes- are they on both sides of your groin or just one? Both sides would be much closer to an infection (like HIV) however just one side would be more in step with cancer, especially if they enlarged relatively slowly and don't hurt. Thank you for your response. However, I am still a virgin and have not done any type of street drugs. So, I think the possibility of HIV is not even a question. As far as location, the swelling IS on both sides of my groin. Also, the nodule in my scrotum is not "squishy," it is very hard. Thank you again for your comments.
    saxifoneforgod 3 Replies Flag this Response
  • Hi. I'm very sorry to hear about your symptoms and can understand your concern. If HIV isn't a realistic possibility then it's not that, but you might still want to have a doctor check for antibodies just in case. An Infectious Disease specialist would also be able to determine if any other diseases might be causing the problem. As far as the lump in your scrotum goes...it could be a benign cyst, but there is always the possibility of a tumor. Before the doctor would try anything drastic (unless s/he feels a biopsy is needed) you might want to have an ultrasound of the area to see if that can't explain the condition. Is it possible this lump has been there for a while and you just never noticed? Not sure what to tell you about the lymph nodes if it's on both sides. Perhaps, with lymphoma, it's possible for both many lymph nodes to be enlarged; I seem to recall that with cancer that has spread, it tends to be only on the side of the tumor (meaning if it originated in your left scrotum, then it would spread to the left side of your groin). Given your symptoms, if you had lymphoma than a blood test would most likely have significant abnormalities and clue doctors in immediately. I'm very sorry to hear about your problem though. If it's any consolation to you, I'm having a similar cancer-related fear (see my topic "Unexplained Wasting Syndrome". Its on the first few pages of this board) from a bony mass in my jaw and possibly spread to my skull. In my case, though, it looks like I've lost 15-20 pounds but have yet to actually loose any weight on a scale; where the weight is going is a complete mystery. The only other thing I can think of is the possibility of EBV, the virus that causes mono. It can cause glands to enlarge, though usually on the neck area. It can also cause sweating, fever, tiredness, etc. The infection usually lasts 3 weeks or less however, so if you are still getting the symptoms now (and with the weight loss) then its probably something else. Still, you might want to ask the doctor to check for EBV antibodies- you could have Chronic Fatigue Syndrome.I hope this turns out to be nothing but, like the other user said in their reply, it wasn't a good idea to wait a year. It's not necessairly your fault however- your thinking is perfectly normal and so unless there is some kind of major symptoms going on, most wouldn't really get concerned about the swollen lymph nodes.
    Anonymous 42789 Replies Flag this Response
  • Well...I went to the doctor. He pretty much just brushed off my symptoms and told me it was nothing. Where do I go from here?
    saxifoneforgod 3 Replies Flag this Response
  • He WHAT? Did he order ANY blood testing or MRI/CT Scans? If he just let you go without ordering anything, then you need to change doctors immediately. I've never heard of such irresponsibility. Not only are your lymph nodes swollen but you are now reporting fatigue, night sweats, and weight loss- those are CLEAR warning signs for cancer and at the very least he should have ordered testing to confirm (or hopefully, deny) that you have any kind of problem. Did the doctor even ASK about HIV for reference, or did they just ignore your problems entirely?You may want to go immediately to an Oncologist however I'm not sure about your insurance situation. If you don't have any insurance, it would probably be cheaper to go to another general practitioner first rather than a specialist. You could go to a hospital and tell them the symptoms and presumably have the testing done on the spot. For reference, how enlarged are your lymph nodes? Can you move them at all, or are they solid/fixed in place?
    Anonymous 42789 Replies Flag this Response
  • He basically told me that my lymph nodes were not enlarged. He also said that the other stuff I am worried about (night sweats, etc.) have been going on for a long time so it's nothing to worry about. As far as my lymph nodes are concerned, they FEEL enlarged to me. However, they are mobile but firm (almost rubbery in nature). I am so distrought right now, I don't know what to do. I don't know if he is right and it IS nothing or if he really wasn't addressing my concerns.
    saxifoneforgod 3 Replies Flag this Response
  • Well if the doctor felt them and said they weren't enlarged, then they probably aren't...but everyone is different so you never know. About how large would you say they are? How (why?) did you first notice they were enlarged? Even if the possibility of lymphoma isn't realistic, there is no reason your doctor shouldn't have ran further testing. At the very least a complete blood panel should have been in order to check for abnormalities. At the very least there should have been testing to try and find the reason for your weight loss and night sweats, and definately the mass in the scrotum.Based on what you describe, I'd think it would be a good idea to try and get an explanation from another doctor. Maybe don't mention the lymph node issue and just describe the other symptoms, especially the mass in your scrotum. Then, if the doctor feels the lymph nodes and they are enlarged, you can say something like "Oh yeah, they've been that way for a year but I didn't really think it meant anything."Unfortunately some doctors get "offended" when a patient comes in telling them what they have, or what they should test for, because it undermines their authority. They go to school for many years to be a doctor and in comes a patient with presumably no medical background whatsoever...though that hardly means the patient is automatically wrong.
    Anonymous 42789 Replies Flag this Response
  • Please see another dr. They should have, at the very least, done a CBC to check for elevated red or white blood cells. If you feel there is something wrong--do not accept their word for it. The very least they can do is order the testing to set your mind at ease.
    Anonymous 42789 Replies Flag this Response
  • www.ahummingbirdsguide.com symptoms page...see how many other sx you have...I've had night sweats for years as well as 95% of the sx listed on the above site...good luck...mommy cat
    mommy cat 1654 Replies Flag this Response
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