Discussions By Condition: I cannot get a diagnosis.

Lymphatic Obstruction???

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: anomalia
  • June 25, 2009
  • 07:48 AM

For several years my left hip, thigh, lower leg, and foot particularly seem to be the most involved with this condition. I titled it Lymphatic Obstruction (?) but really have no clue - this is just my guess by how it seems and feels and based on that I saw this Dx on your site as a possible.
The first notice was a very hot pain on the top of my thigh. Within a day or so, an area swelled to a soft mass large enough I could not cover it with my open hand. The sharp, throbbing, hot pain was so intense I could barely speak. I basically sat and sweat with pain. An ice pack seemed to heat up quickly when applied. The worst of the pain and swelling lasted 24 or more hours. By the next day, the pain was so much less and the swelling slowly went down in another day or so.
Then within a week or so, it seemed to migrate or turn up again but this time in my lower leg, 5 inches below my knee (front, toward the inside) experienced this same type of pain experience to a degree. The swelling area was smaller and much harder and the pain not quite as intense. It too lessened and went away in a few days. This was followed by smaller soft areas in inside ankle area, top of my foot near the large toe. Happily these serious of events were far and few between, but none the less painful when they did come.
On occasion the pain would stay mostly on the thigh and little notice below. I experienced a similar pain in my upper right arm a couple times, but not for a long time. When I feel good, I feel good and am able to dance, walk distances, hike, etc.
Yesterday I woke feeling fine, danced some the day before without discomfort and even a bit in the morning (my normal exercise). By midday yesterday, I began to feel very odd overall, and clammy though no fever. My thigh and around my hip first began to feel intense pain and within minutes, the pain involved my entire thigh, lower leg, and foot. It had the feeling of being very swollen, but swelling was not obvious except for some in the 'normal' areas of pain before.
I could not stand or walk without extreme pain. If I stood on my right leg and no pressure on my left leg at all I had some relief. By the time I tried to sleep, my lower abdomen was also involved and I required some pain medication to get any rest. Morning came after 7 hours. I felt very good and slowly got up. As soon as I stood I was aware of pain and within the few minutes of walking to use the bath and dress, I could barely stand. When it was necessary to stand I find my toes curling under to try to relieve some pressure and pain to the bottom of my foot.
This evening, the overall pain is about 1/2 of what if was last night in the upper leg, but still much in the lower leg and very intense in my foot, particularly the ball. Standing and walking remains very difficult and increases the pain. I have asked several doctors about this, some have felt the lumps of pain, prescribed pain meds and all have said they did not know what it was. No follow-up offered. I have been dealing with it as best I am able, ice packs, pain med and am lucky I have only experienced this a few times a year to maybe once a month.
But the experience of yesterday into today involving the entire leg at once and so overwhelmingly intense has me stymied as to how to deal in the future. Your input and insight will be greatly appreciated. Thank you.

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  • You need to see a thoracic specialist and get an MRI/MRA. However, there is not much they can do. I had similar issues but in my abdomen, chest and neck. It was actually a lymphatic leak that happened two maybe three times a year. In December, 2008 it just stopped. I had a series of tests including specialized MRI/MRA at Mayo clinic in Phoenix, Arizona. They figured out what it was but because the lymphatic ducts are so small, it is impossible to pinpoint where the leak was let alone repair it. You will also find that there are not any docs that specialize here. Good luck! For several years my left hip, thigh, lower leg, and foot particularly seem to be the most involved with this condition. I titled it Lymphatic Obstruction (?) but really have no clue - this is just my guess by how it seems and feels and based on that I saw this Dx on your site as a possible.The first notice was a very hot pain on the top of my thigh. Within a day or so, an area swelled to a soft mass large enough I could not cover it with my open hand. The sharp, throbbing, hot pain was so intense I could barely speak. I basically sat and sweat with pain. An ice pack seemed to heat up quickly when applied. The worst of the pain and swelling lasted 24 or more hours. By the next day, the pain was so much less and the swelling slowly went down in another day or so.Then within a week or so, it seemed to migrate or turn up again but this time in my lower leg, 5 inches below my knee (front, toward the inside) experienced this same type of pain experience to a degree. The swelling area was smaller and much harder and the pain not quite as intense. It too lessened and went away in a few days. This was followed by smaller soft areas in inside ankle area, top of my foot near the large toe. Happily these serious of events were far and few between, but none the less painful when they did come.On occasion the pain would stay mostly on the thigh and little notice below. I experienced a similar pain in my upper right arm a couple times, but not for a long time. When I feel good, I feel good and am able to dance, walk distances, hike, etc.Yesterday I woke feeling fine, danced some the day before without discomfort and even a bit in the morning (my normal exercise). By midday yesterday, I began to feel very odd overall, and clammy though no fever. My thigh and around my hip first began to feel intense pain and within minutes, the pain involved my entire thigh, lower leg, and foot. It had the feeling of being very swollen, but swelling was not obvious except for some in the 'normal' areas of pain before.I could not stand or walk without extreme pain. If I stood on my right leg and no pressure on my left leg at all I had some relief. By the time I tried to sleep, my lower abdomen was also involved and I required some pain medication to get any rest. Morning came after 7 hours. I felt very good and slowly got up. As soon as I stood I was aware of pain and within the few minutes of walking to use the bath and dress, I could barely stand. When it was necessary to stand I find my toes curling under to try to relieve some pressure and pain to the bottom of my foot.This evening, the overall pain is about 1/2 of what if was last night in the upper leg, but still much in the lower leg and very intense in my foot, particularly the ball. Standing and walking remains very difficult and increases the pain. I have asked several doctors about this, some have felt the lumps of pain, prescribed pain meds and all have said they did not know what it was. No follow-up offered. I have been dealing with it as best I am able, ice packs, pain med and am lucky I have only experienced this a few times a year to maybe once a month.But the experience of yesterday into today involving the entire leg at once and so overwhelmingly intense has me stymied as to how to deal in the future. Your input and insight will be greatly appreciated. Thank you.
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