Discussions By Condition: I cannot get a diagnosis.

Lymph nodes, possible autoimmune?

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Jennifer1084
  • February 7, 2008
  • 05:31 AM

I am a 21 year old female and I have been through alot the last 12 months or so. I am currently having many symptoms. I was sexually assaulted in May last year and it required emergency surgery. I was bleeding so bad that my hemoglobin was down to about a 7 or less and actually there was a laceration through my vaginal wall, through the peritoneum (spelling?) and was out by my bowels. I had some complications with it healing. They had to make an incision during the surgery and that got infected about a week after surgery. So they were forced to reopen the incision and I then started going to wound care at the hospital everyday. I had to continue to go to wound care for 3 months. Within this time, in June, I noticed I had swollen lymph nodes above my jaw area. I felt very exhausted and really could not do much of anything. I was very achy and just felt like I had been ran over by freight train. These symptoms seemed to have continued and doctors have since ran many tests on me, many more than once. I was not mono, mumps, west nile, hiv or rocky mountain spotted fever nor many other things I cannot even think of. I then was refered to ENT and they ended up doing a needle biopsy, which came back showing something. So they decided to try and remove the lymph node. so in December they removed the lymph node and 2 days after surgery I ended up in the hospital due to infection of where I just had surgery. I looked like I had a balloon in my mouth. Then after being hospitalized for 3 days I continued iv antibiotics for a week and a half. It happens that there is still actually a lump where the lymph node was removed, it is about 3.5 cm by 2 cm, which actually had gone down from the 4.5 cm by 3 cm it had been a month before. The ENT ran some tests on me especially when I told her I was concerned about HIV due to being assaulted. She ordered HIV, ANA and CRP tests. the HIV came back negative but the other two came back elevated. So I was refered back to primary and she ran a series of rheumatoid tests and had mentioned it is probably rheumatoid or autoimmune. I am also now having problems with my teeth and chin throbbing with pain, not sure if the two are related or not. I will find out the results of the reumatoid tests soon I hope. Any opinions, suggestions, information, etc. is appreciated.

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  • I felt very exhausted and really could not do much of anything. I was very achy and just felt like I had been ran over by freight train. If it turns out to be, not whatever the doctors are thinking, and they are left not knowing what on earth is wrong with you, it could in fact be chronic fatigue immunity dysfuction syndrome CFIDS, also called CFS. Your above comment is how many of us CFS patients describe how we feel.. it IS like being run over by a freight train. CFS for many of us, seems to be triggered by a trauma (others often have an infection triggering point, while still others from a vaccine or a blood transfusion). Anyway, I just wanted to say that trauma or stress is a common CFS triggering thing and with that tiredness, comes body pains and then other symptoms too. Lymph nodes often seem to be affected esp early on (in the first year) in CFS. My own glands were swollen on and off for most of 18 mths. See http://wwcoco.com/cfids/bernesx.html for a good list of symptoms and the percent of people with CFS who get those symptoms from studies done. Ive heard of quite a few CFS people getting their lymph nodes removed, but that wont help one. I hope im wrong and they find something else wrong with you.. as at that point, it could well also be something else. good luck
    taniaaust1 2267 Replies
    • February 7, 2008
    • 05:49 AM
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  • I forgot to ask you.. did you have a blood transfusion? They tell CFS people now not to donate blood as scientificially they dont know if it can be transmitted by that and they think maybe it could be, (thou many CFSers say that's how they got it.. after blood transfusion!!) but in some places, they are still allowed to donate. I used to donate blood while having CFS and up to 90% of people with CFS are undiagnosed so still may donate against the rules not to do so. Anyway.. i just wanted you to be aware of that, in case you did have transfusion ...but as I said before, you also have the trauma which can be a trigger.
    taniaaust1 2267 Replies
    • February 7, 2008
    • 05:56 AM
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  • I am so very very sorry you have been through all of these things. I hope you have some kind of support system to help you deal with all you have been through and now your current fatigue syndrome. I had fatigue for years and it can be devastating. I still get relapses that remind me how weak it can render a person.Just as trauma can trigger CFS, I think it can also trigger autoimmune diseases in general, as well. I don't know if it will be useful to run antibody tests, but if they do, your doctors may want to include thyroid antibodies in the off chance your trauma triggered an autoimmune thyroiditis (I had Hashimoto's Encephalopathy which produced my fatigue, even though my hormones were always okay... I am convinced my thyroiditis started after some major stressors, too). I don't think your thyroid gland would be draining so far up in your head, though. I just thought I'd throw this out there for completeness, and because many patients with HE have elevated ANAs and CRPs, and HE is very treatable with steroids.So, if this interests you, ask them to check both thyroglobulin and thyroperoxidase antibodies. Thyroid hormone levels need not be off to have HE... Although it sounds like there is something else going on with you and not HE.I hope you find an answer soon. I hope it isn't CFS, which seems to be a debilitating neurological disorder.
    Anonymous 42789 Replies
    • February 7, 2008
    • 09:54 AM
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  • I found "ParvoVirus" relating to your situation. I really think you got the lymph node problem from your transfusions: http://path.upmc.edu/cases/case522/dx.htmlnot checking for it in transfusions and then mistaking it for rheumotoid condition were all addressed in the article...
    Monsterlove 2921 Replies
    • February 7, 2008
    • 10:01 AM
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  • It could also be Reiter's syndrome, but I cannot find that the syndrome has the node problem. http://autoimmunedisease.suite101.com/blogs.cfm?start=121#reiters_disease
    Monsterlove 2921 Replies
    • February 7, 2008
    • 10:20 AM
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  • come on with the lyme...rips and tears, infections directly into the blood stream...possible chlamydia or something throughout the system as a result turning into Reiter's or transfusion contamination or both....hope for a proper solution for the lady...it's not lyme..
    Monsterlove 2921 Replies
    • February 7, 2008
    • 08:51 PM
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  • I don't know where else to go with this problem,I am a 39 yr old female,about 3 wks ago my throat starting feeling as if it was closing,I have extreme difficulty swallowing and at times my luncs are having trouble taking in air,sometimes my heart starts racing.I have been to the emergency room 3 times and still they don't know what's wrong with me.First I was told I had a bacterial infectiom,then panic attacks,now,my white blood cell count is extremely high and my Dr says I have a very bad bacterial infection or maybe mono,I am taking Levaquin and methylprednisolone,and the symptoms havent gotten any better,in fact at times they are worse.I am so afraid I am gonna choke to death,has anyone else out there experinced anything like this?,Any help at all would be greatly appreciated.Thank you
    worried sick 1 Replies
    • February 8, 2008
    • 08:29 PM
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  • could be asthma or severe allergic reaction to something "Worried Sick"...have you come into contact with any pesticides or anything???
    Monsterlove 2921 Replies
    • February 9, 2008
    • 00:44 AM
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  • I don't know where else to go with this problem,I am a 39 yr old female,about 3 wks ago my throat starting feeling as if it was closing,I have extreme difficulty swallowing and at times my luncs are having trouble taking in air,sometimes my heart starts racing.I have been to the emergency room 3 times and still they don't know what's wrong with me.First I was told I had a bacterial infectiom,then panic attacks,now,my white blood cell count is extremely high and my Dr says I have a very bad bacterial infection or maybe mono,I am taking Levaquin and methylprednisolone,and the symptoms havent gotten any better,in fact at times they are worse.I am so afraid I am gonna choke to death,has anyone else out there experinced anything like this?,Any help at all would be greatly appreciated.Thank you i'd go back to the doctor and insist he do a blood test for mono..so at least then you know. I didnt realise that there are any real treatments for mono (unless those drugs just treat for bacterias? mono is a virus thou).
    taniaaust1 2267 Replies
    • February 9, 2008
    • 01:33 AM
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  • To Worried Sick: have your doctor check your thyroid. your symptoms sound exactly like what i experienced before being properly diagnosed with Graves Disease which was causing sever hyperthyroidism (racing heart, hand tremors, fatigue, bulging eyes). I've been on medication for almost 6 months now and it has helped tremendously.
    Anonymous 42789 Replies Flag this Response
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