Discussions By Condition: I cannot get a diagnosis.

Lupus rash?

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: Anonymous
  • November 22, 2006
  • 02:43 PM

Is anyone familiar with rashes associated with lupus? I have a painless butterfly shaped rash on my lower back/buttocks. I also have night sweats, chills, a low-grade fever, fatigue and weakness (all to varying degrees) for almost 2 months now.

1) Are the rashes associated with lupus painful or painless, or both depending on the type and location?
2) How common is it for people to develop a lupus-related rash on their buttocks?

Reply Flag this Discussion

20 Replies:

  • This is the third time I have posted this information to no avail. Please ... someone ... help. The doctors cannot seem to figure out what is wrong. I am very discouraged and somewhat scared. I would appreciate ANY feedback at this point.
    Anonymous 42789 Replies
    • November 23, 2006
    • 02:29 AM
    • 0
    Flag this Response
  • Have you been checked for Lymes Disease? I have some of your symptoms and have been diagnosed w/ Fibromyaglia. You might want to see a Rheumatologist. I've been have symptoms for 3 years now. The Rheumatologist has helped some but some issues are still lingering.Good Luck:)
    Anonymous 42789 Replies
    • November 24, 2006
    • 04:21 AM
    • 0
    Flag this Response
  • I have not been bitten by a tick in over 15 years. Not to mention I have not been in an area with a notable tick population in over 3 yrs. I have had several tests run as a result of my symptoms. Every test comes back normal. Thankfully my friends, family, and doctor are able to see some of the symptoms so they know it is really happening and I am not crazy.The rash is the newest symptom. It seems in line with the type of rash that is associated with lupus ... but again all of the tests are normal. Is it possible to have lupus with all the test results showing within normal range?
    Anonymous 42789 Replies
    • November 25, 2006
    • 02:30 AM
    • 0
    Flag this Response
  • get to a rheumatologist
    Anonymous 42789 Replies
    • November 25, 2006
    • 11:31 PM
    • 0
    Flag this Response
  • Get off your butt and you probably won't have a rash there. There are specific tests to verify Lupus. The Lupus rash is on your face not your **s and is very specific. Quit looking for something to be wrong with you and get up and start moving. Stop your whining. It's not cute and nobody wants to be around it.
    Anonymous 42789 Replies
    • November 26, 2006
    • 00:50 AM
    • 0
    Flag this Response
  • Are you overweight and sit/lay around a lot? How often do you exercise? What kind of diet are you on? If you're overweight and don't have a balanced diet and are not exercising daily, that's probably what's wrong with you.
    Anonymous 42789 Replies
    • November 26, 2006
    • 00:53 AM
    • 0
    Flag this Response
  • I am 5'6" and weigh between 110 and 120lbs depending on the day (as I have a thyroid condition that results in weight fluctation). I wear a size 2 ... so no, I don't need to "get off my **s" an exercise. I am in very good shape aside from these odd medical symptoms that the doctors cannot seem to diagnose. I posted my issues to this website because I need help. I did not post here to be ridiculed by insensitive people who are not interested in helping me.
    Anonymous 42789 Replies
    • November 26, 2006
    • 01:38 AM
    • 0
    Flag this Response
  • Get off your butt and you probably won't have a rash there. There are specific tests to verify Lupus. The Lupus rash is on your face not your **s and is very specific. Quit looking for something to be wrong with you and get up and start moving. Stop your whining. It's not cute and nobody wants to be around it.This is in reply to the person who sent in the 6th quote. Were you just having a bad day / or have you made a career out of being a "smart **s"?You obviously do not have a "chronic illness", as some people do, so why don't you check out another site? Example......."Jerks are Us"~!
    Anonymous 42789 Replies
    • November 26, 2006
    • 06:35 AM
    • 0
    Flag this Response
  • Hello I really hope you are felling better. The person who wrote that very stupid reply knows not what they are talking about. I sure wish i could have found you sooner so you would have not had to wait for a real answer which is what i am going to give you. For all the people who read this no i am not a doctor i am better. You see i have had Lupus since i was 16. Now for the rash on your butt. Yes i hate to tell you but it is very common. When i get it i will have it on my butt, back, the tops of my legs just about everywhere but not the butterfly rash on my face. Mine will itch real bad but of course if you scratch it that will make it worse. Also for the person who said see the rheumatolagist well they are also right. Now the sad thing about that is 98 percent of the time that wont be your problem.. I know years ago i would say isnt there just a Lupus Doctor? Well no there isnt. I have learned more then they can tell me. I know what meds i will take and which ones i WONT. Well hey i hope i have helped you at least some..Goog luck there are alot more things Lupus will and can do. I know just last week my 25 year old daughter went in to see our doctor and he told her not to say anything to me but he sure didnt expect me to be doing so good or for that matter be here. Get on a Lupus website they know what you are going through not lke some of these ****s. Sorry but if they dont know how we feel they should KEEP THEIR MOUTH SHUT. Sorry so long if you need to ask go ahead that is what this site is for right just have to ignore the ones sitting on their butts with no life. Good luck Brenda
    nana0107 2 Replies
    • November 26, 2006
    • 11:42 AM
    • 0
    Flag this Response
  • Thank you all for your supportive comments. It is greatly appreciated. Will the rashes associated with lupus always itch? My rash does not itch at all. It merely is a raised upside down butterfly shaped darker patch of skin. The only reason I thought it might be a lupus rash is because of the shape, odd location and other symptoms I have been experiencing for the last few months. I have read that lupus is extremely difficult to diagnose. For those who are reading this post, how long did it take to get diagnosed? Did you have multiple false negatives before being diagnosed?
    Anonymous 42789 Replies
    • November 26, 2006
    • 03:41 PM
    • 0
    Flag this Response
  • I know how you feel. And i pray that you find the love and support during this time because that is really what you need when looking for that perfect doctor who will finnaly figure it all out. Its just always good to remember that God is the better doctor and whatever he inflicts upon us is because he loves us. Some way or another we would be reminded of his Magnificance and better now than later. I found healing when i wrote to mawahib@hotmail.com. There is no charge for her service. Try it. peace
    Anonymous 42789 Replies
    • November 28, 2006
    • 07:07 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • HFor all the people who read this no i am not a doctor i am better. You see i have had Lupus since i was 16. Now for the rash on your butt. Yes i hate to tell you but it is very common. When i get it i will have it on my butt, back, the tops of my legs just about everywhere but not the butterfly rash on my face. Would you please email me? I am not sure how to contact you through the site, but I have some questions about your personal experience with lupus.
    Akumal 5 Replies
    • November 29, 2006
    • 01:31 AM
    • 0
    Flag this Response
  • Is anyone familiar with rashes associated with lupus? I have a painless butterfly shaped rash on my lower back/buttocks. I also have night sweats, chills, a low-grade fever, fatigue and weakness (all to varying degrees) for almost 2 months now. 1) Are the rashes associated with lupus painful or painless, or both depending on the type and location?2) How common is it for people to develop a lupus-related rash on their buttocks?You may have RPC
    Anonymous 42789 Replies
    • November 29, 2006
    • 08:10 AM
    • 0
    Flag this Response
  • What is RPC?
    Anonymous 42789 Replies
    • November 29, 2006
    • 01:37 PM
    • 0
    Flag this Response
  • Hi Nana,I'm interested in knowing more about your symptoms. I've just recently come down with a very itchy rash that is in the precise locations that you mention. Where on your back do you get the rash? My doctor is running tests now to see if I have Lupus or possibly other diseases similar to it. I really can't stand the itchiness though, it's driving me mad! What do you do to stop it? The doc gave me some Prednisone (sp?) and it helps some but not completely.Thanks!
    Anonymous 42789 Replies
    • January 29, 2007
    • 06:03 PM
    • 0
    Flag this Response
  • Get off your butt and you probably won't have a rash there. There are specific tests to verify Lupus. The Lupus rash is on your face not your **s and is very specific. Quit looking for something to be wrong with you and get up and start moving. Stop your whining. It's not cute and nobody wants to be around it.Wow...aggressive and cruel? Maybe you need some of that exercise or to go off on the people in your real life you actually have a problem with. Lupus rashes are very different and can be case specific. The rash can appear anywhere on the body, they can be a mealy rash, white nodules on the hands, red discoid, white patchy spots. Also there is no one specific test for Lupus. Most every patient with Lupus has different symptoms than the others. Thus Lupus is very difficult to detect. It could be disguised as Fibromyalgia, Rheumatoid Arthritis, Fatigue, and several other immunodeficiency disorders. Look up facts before you put your foot in your mouth please all it takes is to google the word Lupus.
    Anonymous 42789 Replies
    • November 3, 2008
    • 03:41 AM
    • 0
    Flag this Response
  • I've been doing some research into lupus since I have a butterfly rash across my cheeks. I've found out that it is considered rare for someone for lupus to have the rash around the lower back/butt area; but it is not impossible. Some things are hard to diagnose, so my best advice for you is just to keep going to the doctors and try to get it diagnosed. Good luck.
    Anonymous 42789 Replies Flag this Response
  • I am 5'6" and weigh between 110 and 120lbs depending on the day (as I have a thyroid condition that results in weight fluctation). I wear a size 2 ... so no, I don't need to "get off my **s" an exercise. I am in very good shape aside from these odd medical symptoms that the doctors cannot seem to diagnose. I posted my issues to this website because I need help. I did not post here to be ridiculed by insensitive people who are not interested in helping me.I also am sorry that someone abused you, and this site with cruelty. Please see a rheumatologist. I too have had a rash on my behind...and at the time it could not diagnosed . It is important that you establish a relationship with a doctor that can monitor you over a period of time. It took about ten years for me to be diagnosed as having traits of both Lupus, and Sjogren's Syndrome. I am not suggesting that you have either. I just want to support you in getting the answers you deserve. I have even had to "fire a couple of rheumatologist, because they were not proactive enough. An example of this was one doing blood work once a year and telling me I "looked great". I got so fed up that I found another doctor who confirmed with blood work why I wasn't feeling so "great". I am now feeling much better. I feel much more hopeful knowing that I am advocating for myself the best that I can, and that I have a doctor that is active in my wellness. It is great that you are in such good physical condition! Exercise is so healing! Please be good to yourself, and post again if you need support. Joy & Peace
    Anonymous 42789 Replies
    • December 12, 2009
    • 05:24 AM
    • 0
    Flag this Response
  • Get off your butt and you probably won't have a rash there. There are specific tests to verify Lupus. The Lupus rash is on your face not your **s and is very specific. Quit looking for something to be wrong with you and get up and start moving. Stop your whining. It's not cute and nobody wants to be around it.This response is a rude as it is incorrect. It is possible that this person is not describing the typical malar rash. With SLE the rash can occur anywhere on the body, and there are photos all over the web regarding this type of rash. While there are test to verify Lupus, it often takes years before traits cluster enough to achieve a diagnosis. Many people will never achieve a specific autoimmune diagnosis because they have traits that border on the periphery of the most common diagnostic characteristics. The diagnosis for these people is Autoimmune Disorder NOS (not otherwise specified). I have to believe that those of us who have Lupus...or any other Autoimmune D/O would not wish it upon anyone else... I also want to believe that if someone does have it , we would support them in getting the medical help that we didn't so easily find. A bit more compassion would be nice!!!!!
    Anonymous 42789 Replies
    • December 12, 2009
    • 05:52 AM
    • 0
    Flag this Response
  • I know how you feel. And i pray that you find the love and support during this time because that is really what you need when looking for that perfect doctor who will finnaly figure it all out. Its just always good to remember that God is the better doctor and whatever he inflicts upon us is because he loves us. Some way or another we would be reminded of his Magnificance and better now than later. I found healing when i wrote to mawahib@hotmail.com. There is no charge for her service. Try it. peaceI wonder who you are. I dont remember advising you or anyone on this matter. then again theres some guy using my email to tweet all over the place on i dont know what in a whole other language. lol. But i want to say something. Allah is the healer of everything. His word through flesh and blood through ***** Peace upon. Our prophet Eisa (son of the blessed Mary). Mohamed peace and blessings be upon him came to us with the final message.reference ‘How shall the Messiah be called? Mohammed is his blessed name.’, alsoBaobab oil and Neem extract are wonderful.
    mawahib 1 Replies
    • September 15, 2013
    • 01:31 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.