Discussions By Condition: I cannot get a diagnosis.

lupus? or not

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: stanse6
  • October 23, 2007
  • 07:05 PM

I have seen several doctors. The first was my family doctor. The next was an Er doc. Then a Urologist. Now I am seeing a Neuphrologist. I have severe kidney nephritis. I also have the butterfly rash across my face as well as a positive ana test for Lupus, hair loss, swollen painful joints, anxiety and seizures, severe fatigue, low white blood cell counts, severe headaches, and all this seems to be exactly what they say is lupus but my family physician refuses to give me the diagnosis of Lupus. I am going through a Disability case and really need all the help I can get with this. if anyone has any input it would be greatly appreaciated. thanks.

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3 Replies:

  • You need to see a specialis to get a diagnose. Ask your GP for a refferal to a rhumey. Good Luck
    Anonymous 42789 Replies
    • October 24, 2007
    • 06:56 AM
    • 0
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  • I have seen several doctors. The first was my family doctor. The next was an Er doc. Then a Urologist. Now I am seeing a Neuphrologist. I have severe kidney nephritis. I also have the butterfly rash across my face as well as a positive ana test for Lupus, hair loss, swollen painful joints, anxiety and seizures, severe fatigue, low white blood cell counts, severe headaches, and all this seems to be exactly what they say is lupus but my family physician refuses to give me the diagnosis of Lupus. I am going through a Disability case and really need all the help I can get with this. if anyone has any input it would be greatly appreaciated. thanks.I have the same sypmtoms as you. My medical Dr. ran some labs & sent me to a rheumatologist. She did more lab tests; including an important one for lupus; double stranded DNA. I tested Positive & my Dr. confirmed it was Lupus. Good Luck with the disability part. I am going thru that right now. I have been denied twice, now I am getting an attorney & appealing for the 3rd time. Good LuckDebbieDublin, CA
    Anonymous 42789 Replies
    • August 14, 2010
    • 08:08 PM
    • 0
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  • I have seen several doctors. The first was my family doctor. The next was an Er doc. Then a Urologist. Now I am seeing a Neuphrologist. I have severe kidney nephritis. I also have the butterfly rash across my face as well as a positive ana test for Lupus, hair loss, swollen painful joints, anxiety and seizures, severe fatigue, low white blood cell counts, severe headaches, and all this seems to be exactly what they say is lupus but my family physician refuses to give me the diagnosis of Lupus. I am going through a Disability case and really need all the help I can get with this. if anyone has any input it would be greatly appreaciated. thanks.im going through it to but they diagnosis me with lupus right off back but im fight for my disability now and they are not try to give it to me i have paper work from every docter i have seen i got several different docter saying the same u just have to fight it see another docter if that dont give it to u see another one will tell u i been though i and it can be a headache to
    Anonymous 42789 Replies
    • November 9, 2010
    • 01:27 AM
    • 0
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