Discussions By Condition: I cannot get a diagnosis.

Lower Abdominal Pain...it won't stop!!

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Anonymous
  • January 19, 2007
  • 07:37 AM

I have had severe lower abdominal pain now for nearly 6 months. When it first started it felt similar to an ovarian cyst bursting. I have had CT scans, X-rays, CBC tests, pregnancy tests, pap smears, pelvic exams, colonoscopy, laporoscopy, scar tissue removed from my abdomen, you name it, I have had it done. Yet nothing has helped the pain to subside, outside of pain medication. Which, by the way, I am scared to take for fear of forming a habit. I am in pain every day, I am unable to work, have lost my job, my way of life, and beginning to lose hope that there are answers for me. If anyone has any ideas, I would be greatful!!!

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17 Replies:

  • Did you undergo colonoscopy? Sometimes large bowel disease may be a cause of pain in lower part of abdomen
    Anonymous 42789 Replies
    • January 19, 2007
    • 09:46 AM
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  • yes, i did. the doctor said that my colon looked fine, there were just a few polyps but that was it. i have been taking an anti-spastic medicine for what they think may be causing the pain- ibs. but i just dont think that's what this is. some times the pain seems to extend from my ribs to my knee, all on the right side. also, my right hand shakes quite a lot, uncontrolably. what do you think????
    Anonymous 42789 Replies
    • January 26, 2007
    • 06:57 AM
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  • I know exactly how you feel, I also have lower abdominal pain on my left side and also undergone, pap smear, colonoscopy, laparoscopy, have had miscarriage, endometriosis and internal and external ultrasounds that show I am in perfect health now but the pain is there always and it is like a stinging, sharp cutting pain. Do give in, I have had the pain now for 7 months! and also lost my part time work. And there seems to me no answers for me too. Just don't give up!
    Anonymous 42789 Replies
    • January 26, 2007
    • 08:26 AM
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  • Please, please try to find a good acupuncturist to help you with this - I have treated many patients with endometriosis, PCOS, and other unexplained lower abdominal pain. Acupuncture and Chinese herbs are very helpful and much safer than taking a bunch of pain meds! To find one near you please visit www.acufinder.com and type in your zip code. Hope this helps - please give this a try!Doctor of Oriental Medicine
    acuann 3080 Replies
    • January 26, 2007
    • 03:40 PM
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  • Hello,I too has suffered from many of the same symptoms as you, and have had a myriad of tests. I recently had two blood tests two weeks apart which revealed I had a mild increase in Bilirubin. I was refered to a gastroenterologist who after completeing some tests informed me the pain I am experiencing is linked to the mild increase in indirect Bilirubin in my body. A mild increase in indirect Bilirubin is attributed to a condition known as Gilbert's syndrome. I have done some research on the net, and I have found the following information. Gilbert's syndrome--a condition in which a person has a higher level of indirect bilirubin; there are many causes one of which is hemolysis--anemia--I have had anemia for many years. Treatment apparently is multifaceted, two of which are light therapy and oral calcium carbonate or phosphate. Light therapy helps to breakdown the indirect bilirubin--because the liver has a hard time breaking down the indirect bilirubin--often time it is stored in the gall bladder; leading to the formation of bilirubic gall stones. Calcium carbonate or phosphate bonds with the indirect bilirubin escaping into the intestine which makes it more easily excretable by the body. Interestingly, many people develop these symptoms in-vitro or in early adulthood. Supposedly less the 1% of the population suffers from this condition therefore the condition goes undiagnosed for a long period of time. The symptoms are those which can be easily confused with other illnesses--fatigue, tremours, nausea, abdominal pain and jaundice--these symptoms seem to present themselves more often after eating. A person is often overwhelmed with the desire to lay down after a meal and will have sharp jabbing pains in the abdominal area, will feel very exhausted and will have a nauseaous feeling--all of which I have had. Tremours and jaundice may be present but not always. This condition is precipitated by stress and may manifest itself as SAD--Seasonal Affected Disorder. I am currently taking calcium carbonate suppliments with two of my meals each day, and I have noticed a dramatic decrease in the abdominal pain I have experienced. I notice the calcium carbonate works best when I don't eat food containing wheat. I don't know why, but here it is. I hope this helps someone out there--it sure helped me.Take care.
    Anonymous 42789 Replies
    • January 26, 2007
    • 04:24 PM
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  • You said you had a Laparoscopy. Are you sure that whoever did the Laparoscopy was a good doctor & knew how to look for such things as Endometriosis. Not trying to be a butt. Just asking because you know how some doctors are. It just sounds like possible Endometriosis. But, of course if it was a good doctor then he or she would have seen it on the Laparoscopy. Just wondering if you have had a Hysteroscopy?
    Anonymous 42789 Replies
    • January 26, 2007
    • 10:37 PM
    • 0
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  • thank you all for your ideas and suggestions, i will check into them! My GYN did the laparoscopy and she did specifically look for endo. but she said that there was no sign of it. she did find cysts on my ovaries that had not been there during a recent ultrasound. I have been reading info on RSD and that seems to be another direction for me to try. As far as the acupuncture, that scares me, maybe because i dont know enough about it or maybe just the simple fact that needles scare the crap out of me! also, i dont know if insurance would cover it. i wont be long with insurance anyway seeing as how my employer decided to "resign my employment" due to the fact that i have not been able to work for some time now, and they didn't want to keep paying me for short term disability. they apparently didn't want pay me for long term diability, dispite the fact that there are times that walking is severely painful, if even possible, readjusting my position feels like torture...etc.... Has anyone ever heard of RSD? I have had 3 c-sections, all of which i survived. the first was...lets say....difficult. Long story short, i got a staph infection in my incision, they had to reopen it and do wet-to-dry dressings every 3 hrs. etc... i was in the hospital for 16 days, went home on IV's for another 14. things were bad, and i was only 15. the 2nd c-section went off without a hitch. The third was ok except for the fact that i was pre-eclamptic and had a my son at 37 weeks, and apparently the dr. had a hard time stopping the bleeding on every layer to my uterus. i really dont know if any of this has anthing to do with anything that is happening now or not but, hey, it's worth a shot huh?bottom line: confused, scared, hurting, frustrated, but still hopeful.....please help.
    Anonymous 42789 Replies
    • January 28, 2007
    • 04:01 PM
    • 0
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  • I am no doctor & have only had acupuncture one time. It is really not all that bad. I was very skeptical at first (worrying that it would not work) but it does do wonders. I personally cannot do it because I do not have the money (My husband is working 2 jobs to just barely pay our bills). If you have the money please try acupuncture. I tried it after getting a herniated disc in my back (& it is a pretty bad one too). It really does wonders. I think I originally started going about 2 times a month & then tapered off to once a month. I think I went for approximately 6 months total (of course everyone is different). My pain went away for about 2 years. The acupuncturist that I went to worked in her home. She even did the therapy (I have no idea what it is called) where she takes some sort of chalk stuff & puts it around the area & burns it (or something like that). It sounds crazy but it worked. The needles are scary (of course I am not afraid of needles at all) but they are not what you would expect. They are very thin & you hardly even know that they are going in. It is worth a try.
    Anonymous 42789 Replies
    • January 28, 2007
    • 06:43 PM
    • 0
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  • DEFINITELY sounds like adenomyosis - and this would not get picked up in a lap. The ceasarians, esp the one with complications, caused it. Look into natural ways to treat this. The way it is definitively diagnosed is hysterectomy, but MRI and ultrasounds done carefully can sometimes pick it up.
    Anonymous 42789 Replies
    • January 29, 2007
    • 02:54 AM
    • 0
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  • Hi. I found this site by accident, I am also having problems getting a diagnoses but I think I know what is and has happened to me. I became ill in 1989 and soon from seizures and high fevers became paralyzed. I had many physical problems that could not be explained and was diagnosed with a fatal disease that was supposed to take me no later than 1999. I am thriving but still having some problems. I am no longer paralyzed and have no more grand mal seizures. I think I have Porphyria but cannot get the test I need to seal the diagnoses. I have been told that I have “borderline porpyrins” in my urine but that is not considered a diagnoses and I therefore cannot get treatment. One of the constants is the stomach pain/ache and bowel problems but there are many other symptoms, i.e. liver, kidney, immune system problems and more. I am now over 50 and tired of the struggle with doctors and just do what I can with alternative medicine and over the counter drugs.Maybe you will have better luck getting the test done to confirm or disprove Porphyria. Good luck.
    Anonymous 42789 Replies
    • January 29, 2007
    • 03:31 AM
    • 0
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  • have you had a internal synagram? Good luck.
    lizzi9983 35 Replies
    • January 29, 2007
    • 04:45 AM
    • 0
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  • Well, I can't say that I am happy to hear that the most promising option is a hysterectomy. You see, I am 29, and not that I want or need anymore children, but having the option taken completely away is disheartening, to say the least. Not to mention the side effects. What is a person to do? I lost my job because of this, and therefore my medical coverage. I dont know what it is, why it's happening, and if i will ever get better. it's taking it's toll not only on me but my husband and kids as well. so, i need to ask my doctor about the acupunture, the andenemyosis, RSD, and ....anything else you can think of??? Do you think the pain medication i am on is right for me? how do you ask a doctor to increase your dosage or change to a stronger script without feeling like a criminal junkie who only wants to get drugs? i just want to have some normal time without pain, just a little bit of pain-free-ness. help......
    Anonymous 42789 Replies
    • February 1, 2007
    • 05:29 AM
    • 0
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  • actually natural progesterone cream is the best option...you likely have estrogen dominance...hysterectomy should be the last possible treatment considered. The estrogen dominance puts you at greater risk for other estrogen related illnesses like breast cancer and many autoimmune illnesses - paramount that you get it under controlhttp://www.adeno101.com/
    Anonymous 42789 Replies
    • February 1, 2007
    • 08:41 AM
    • 0
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  • Has anyone ever heard of RSD? I have heard of RSD, and was diagnosed with it in 1992. From what I know, it is generally something that presents itself like someone flipped the switch. One day you are fine, the next you are anything but fine. It is usually traceable to some kind of trauma to the body...dropping something on your foot, a car accident, etc. It also typically affects one limb, not the entire body.In my case I cannot trace it to anything in particular. I woke up one morning and could not use my right arm. I tried to prop myself up to get out of bed and my arm collapsed. The day before I was perfectly healthy.To make a long story short, RSD can present itself after a trauma, such as the surgeries you describe. I am not sure if the diagnosis is more definitive now than when I was diagnosed. Pain so severe that a feather brushing across my skin would bring me to tears. No ability to use that limb without giving it every ounce of my strength to bear the pain.They treated me by using a series of nerve blocks to my carotid(?) artery...the vein that goes from your neck into your arm. It did help restore my ability to function with a lower level of pain but it never fully went away. Two years later I was also diagnosed with Fibromyalgia.RDS is relatively rare, and I wouldn't (from experience) expect it be the cause of abdominal pain. I'm here looking around because I also have recently developed a mysterious abdominal pain in my left side. I'm trying to decide if I need to go to the hospital on a Saturday...as I just can't cope with it, or wait out until Monday and go to my regular doctor. I wish you luck!
    Anonymous 42789 Replies
    • October 20, 2007
    • 05:25 PM
    • 0
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  • I have had severe lower abdominal pain now for nearly 6 months. When it first started it felt similar to an ovarian cyst bursting. I have had CT scans, X-rays, CBC tests, pregnancy tests, pap smears, pelvic exams, colonoscopy, laporoscopy, scar tissue removed from my abdomen, you name it, I have had it done. Yet nothing has helped the pain to subside, outside of pain medication. Which, by the way, I am scared to take for fear of forming a habit. I am in pain every day, I am unable to work, have lost my job, my way of life, and beginning to lose hope that there are answers for me. If anyone has any ideas, I would be greatful!!!Did you find out what the pain was?
    Anonymous 42789 Replies
    • September 15, 2009
    • 05:52 PM
    • 0
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  • What about candida? i have the same thing have had every possibly test done, they are now checking for gardia but i have had this since i was 14, plus i also had 1 seizure a year had no idea about that?
    Anonymous 42789 Replies
    • September 16, 2009
    • 07:50 PM
    • 0
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  • Your pain can be cause by your staph disease. My boyfriend just found out he has it and it cause him very bad pains in his stomach.its a shot you can get from the doctors every month to help it.even though u fear needles it dosent hurt much and u will feel better.check to see if your staph cleared if not dat could be your problem.
    Anonymous 42789 Replies
    • October 12, 2009
    • 03:42 PM
    • 0
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