Discussions By Condition: I cannot get a diagnosis.

Low blood pressure but not diagnosis

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: MoonJumpingCow
  • November 7, 2008
  • 02:40 PM

Hi,

Sorry for the long first post but I could really use some help.

I have had a problem that I can trace the symptoms of back to the age of seven. The exact order of the symptoms are difficult to remember because I'm in such a poor state at the time they are happening it is hard to make note of them.

I think the first thing is that I get a grainy or sugary sensation throughout my body, especially in my limbs, hands and feet. This often comes with shooting pains and cramps in my toes. There is a feeling like my chest is heavy and my senses start to recede. From there it can go two ways: either I faint or if I can I'll lie down. I actually prefer to faint because usually I am fine soon after I come around. If I remain conscious I then experience twenty minutes or so of excruciating pain where I go into a cold sweat, shake uncontrollably, hyperventilate, which turns the graininess to painful pins and needles, and struggle painfully to retain control of my bodily functions while they all malfunction.

I experience milder forms of this on a frequent, almost daily, basis. These more advanced attacks are sporadic and can happen repeatedly over months or not happen at all for a year or two. There are lots of different things that can trigger it. It's more likely to happen when I'm on my period, but not necessarily. It happens more often (and embarrassingly) in public because activity plays a big part. Stress contributes, though I disagree with a doctor recently who put it down to anxiety attacks although I think anxiety/stress contribute. I'm less likely to get it later in the day. Mornings are a dangerous time for me and I've learned to avoid using public transport before noon. Running for a bus in the morning will cause me to have an episode when I'm standing to get off the bus, despite my efforts to relax and prevent it throughout the journey. This week I had to catch a train and spent the hour, barely able to stand and forcing myself to vomit in an effort to get well. I've been accused before of inflicting these problems on myself through not eating breakfast, but I find eating in the morning makes these attacks all the more likely.

Over the years they have become more of a problem. In my late teens I used to think I would never fully lose conciousness and that I'd always have enough of a warning to lie down. I've been concussed many times since. On my last admission to Accident and Emergency my blood pressure didn't rise again for several hours at which point they gave me an injection to fix that. I don't know if that was a result of the concussion.

I'm not anaemic or diabetic. I have had a lot of blood tests in the past, many have shown my thyroid to be under-active but the most recent showed it is currently fine, although I have a reoccurring cyst. I've also had an ECG scan in the past, which showed nothing wrong. When I was last in A&E the doctor wanted to check my joints but I was uncomfortable with stripping to my underwear for that so I declined. What would that test for? I was not well enough to ask.

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5 Replies:

  • It may be somethig called syncope. You should have a tilt table test to rule this out. Best of luck.
    aquila 1263 Replies
    • November 7, 2008
    • 08:24 PM
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  • It may be somethig called syncope. You should have a tilt table test to rule this out. Best of luck.Thank you. I'll ask the doctor about it.
    MoonJumpingCow 2 Replies
    • November 7, 2008
    • 10:37 PM
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  • How low is your blood-pressure? Mines low 90/60 sometimes 84/56 and there are meds for it which I don't take but I recently had a cardio say try more exercise to make it rise natually...Also there is a heart condition called Vasavago I think thats how it is spelled and the TILT test as Aquila suggested is used to DX that ...MAE
    mae3057 50 Replies
    • November 8, 2008
    • 03:09 AM
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  • I've been told there is no medication for raising my blood pressure in the UK. I've actually had arguments with doctors about this, they are adamant. I can't exercise an awful lot because it invariably brings on one of these episodes. This has caused me a lot of grief in the past.I'm not sure what my BP actually is, I don't understand it properly and forget quickly. It's more of a drop when I go ill than generally particularly low though, however GP tests have often shown what they said was quite a low resting rate. Paramedics say it's very low on those occasions they've been called out but I'm not exactly in a state to remember the numbers at those times.I'm gonna ask for a tilt test when I go to the GP again. I hope it is that because at least then I can get help.
    MoonJumpingCow 2 Replies
    • November 10, 2008
    • 03:28 PM
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  • I have never heard of the kind of symptoms you are having but have you ever been checked out by a neurologist? Just wondering if some type of seizure activity is going on. From what I have seen on TV seizures can cause all sorts of weird symptoms sometimes.
    halal37 96 Replies
    • November 10, 2008
    • 04:06 PM
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