Discussions By Condition: I cannot get a diagnosis.

lots of symptoms, but no diagnosis

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Babybeluga22
  • February 19, 2009
  • 01:54 PM

I'm a 30 year old female. Over the past couple of years I have been getting sicker and sicker. I have been told I have SVT's with my heart. For no apparent reason, my heart will start to beat very rapidly almost reaching 160 beats a minute. Doctor's have given me Toporol, but they can't figure out WHY my heart beats so fast with no physical exertion. I also have acid reflux so bad that I go through an entire bottle of Rolaids within about 2 -3 weeks. I feel Nauseas almost every day. I take Phenergan almost every night. I also have IBS. Pretty much anything I eat goes right through me. My stomach gurgles so loudly that my husband can hear it. I tend to go 2 or 3 days withoug having to go or am constipated but then on the 4th day, all ***l breaks loose. I will have diarrhea which will either hit me once, and cause me to be physically drained and tired, or i will have to go several times. I also am covered in sores. I have sores all over my shoulders and back, on my butt and on my legs. They seem to come up as pimples and become a sore. I also have panic attacks, because I'm afraid of throwing up. I think part of the anxiety causes me to pick at the sores at night while i'm sleeping. I have headaches regularly. Now, for the past 4 months, i have had sinus issues. Pressures around my eyes and nose. Wake up with a stuffy nose. constant post nasal drip adn a dry cough. anitibiotics did nothing. Whats funny is a woman from work has exactly the same thing, minus the sores. Its not enviromental, as this has been going on since before i began working at my current job, and we have moved into a new apartment. Doctors keep prescribing medications and diagonsing each symptom but no one seems to looks at the big picture. I feel my doctors hear "panic attack" and automatically write me off. yes I panic..about thowing up...I'm not in panicking..i just want to know whats wrong. Sometimes I wish I WOULD have cancer or something horrible wrong..at least i know what I'm feeling is real and that I'm not crazy. I've changed my diet a few times, with no changes. any comments would be greatly appreciated.

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12 Replies:

  • If you have reflux, why don't you get a prescription for Nexium. Go to a dermatologist and see what you have on your skin.
    rad-skw 1605 Replies
    • February 20, 2009
    • 00:38 PM
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  • Research postural orthostatic tachycardia syndrome.Good Luckpam
    pamelasmc 82 Replies
    • February 20, 2009
    • 05:24 PM
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  • You might be having two or more conditions at the same time. Do you know how your blood pressure is? Do you happen to sweat a lot?
    Felsen 510 Replies
    • February 20, 2009
    • 06:52 PM
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  • I don't live near any cell towers or anything. I could have 2 things at once but i'm still only being treated for each single symptom, which those treatments don't do anything. I don't sweat a lot. Blood pressue is usually very very normal.although there have been 2 times where it was a tad low
    Babybeluga22 9 Replies
    • February 20, 2009
    • 10:04 PM
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  • I was thinking of pheochromocytoma. If I were you, I would ask the doctor to rule it out, even though it seems unlikly. It's easily done with blood and urine test. I can't explain the blisters though. Sorry for not being able to help more. Good luck! :)
    Felsen 510 Replies
    • February 20, 2009
    • 11:23 PM
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  • For no apparent reason, my heart will start to beat very rapidly almost reaching 160 beats a minute. Doctor's have given me Toporol, but they can't figure out WHY my heart beats so fast with no physical exertion. . Does your heart beating real fast happen usually when you are upright?? If so it could be POTS (postural orthostatic tachycardia). Pots can also cause nausea and other symptoms. Most doctors are unaware of POTs so if you have this a proper diagnoses can be very hard to get (ive only just recently managed to get an official diagnoses for it thou i've known for years i had this issue and kept on asking doctors about it. Its even made me go unconscious at times). POTS is diagnosed by ones heart rate going up over a certain amount on standing or 5 mins after standing or by ungoing tilt table testing. (In POTS the body has a dysfunction going on it so dont regulate the heart beat properly) There is a good episode of mystery diagnosis on youtube about someone with POTS (be aware that this person thou has severe POTS, most with POTS dont actually go unconscious like this one or myself). http://www.youtube.com/watch?v=NN3PB6N6oGY (part one) http://www.youtube.com/watch?v=I40-r3RpFjs&feature=related (part two)http://www.youtube.com/watch?v=PHydjGdg4XQ&feature=related (part three)
    taniaaust1 2267 Replies
    • February 21, 2009
    • 06:59 AM
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  • when it started several years ago.i noticed it when i was at work and would bend over to pick up a box. Now it does it whenever it feels like it. But when I stand up or when i'm using the bathroom..My heart slows down drastically and my head feels a little funny. Not like i'm gonna pass out but I can feel my heartbeat throbing in my head. it doesn't hurt, just feels weird. And it slows down for a couple of beats and gets faster. My norm heart rate for just sitting still is about 120 or a little lower. I tried to exercise the other day and I took my pulse before i started and it wasw 112. After literally 15 seconds of jumping jacks..my heart rate was up at 152.I have looked at POTS before and I mentioned it to my doctor, butyet again, they just blow it off
    Babybeluga22 9 Replies
    • February 21, 2009
    • 03:34 PM
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  • Blaze, are you usally this rude? I live in the country..my cell phone doesn't work here..in fact..i have to me a coulple miles down the road for it to even work. I don't have wireless internet. I've noticed that you pretty much list cell towers as the main problem to EVERYONE on this board. I know that this may cause problems..but you seem a bit obsessive about it. I'm sorry to come off rude, but to get a smart alec response like the one you gave tend to tick me off. You could have said "are you sure?" and explained yourself a little further..or better yet..since these EMF FREE zones are only in Europe..why don't you just quit asking people if they live near any...
    Babybeluga22 9 Replies
    • February 22, 2009
    • 04:36 AM
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  • Addisons desease?
    TerryG 120 Replies
    • February 22, 2009
    • 06:23 AM
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  • I looked at Addison's. It actually listed one symptom that i think i forgot to mention, which was the chronic yeast infections. I tend to get one every month..but once i have my period..i think my ph balances back out. I also get UTI's pretty often..a lot of times without any symptoms. I've seen an endocrinologist and all of the tests came back within normal ranges. I'm wondering if the sores could have anything to do with the Orto Evra birth control patch. I quit using it around the same time the sores started. and the sores are on or around all the places where the patch was, with the exception of my leg. I did go to a dermatologist and he gave me a cream but it didn't do anything. I know you can get stretch marks when you gain weight..can sore erupt from getting fat? I have gained about about 40 pounds within the past 3 years. A lot because of the new desk job, marriage and from when I was on Effexor. I'm seriously looking into POTS. I remember looking at some website talking about Phenergen (which i take pretty regularly) and POTS..or i was imagining it because i can't find it now...I'll have to make a new appointment for the doctor this month..
    Babybeluga22 9 Replies
    • February 27, 2009
    • 01:48 AM
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  • Hi, You sound EXACTLY like me... I have all of those symptoms and more. Those are all symptoms of Hypothyroidism (underactive thyroid). I've Been doing research for 2 years and been to TONS of docs and they tell me it's all in my head... Freakin Dr's! Anyhoo, there are 2 great sites I can give you for info and to talk to people who know. www.stopthethyroidmadness.comwww.realthyroidhelp.com Lots of great information. I knew that I wasn't crazy, now I have to get the docs to believe me. You are not alone.Good Luck!
    Anonymous 42789 Replies Flag this Response
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  • well I saw my dr today. I am scheduled for a colonoscopy in a couple of weeks. I'm a little scared. But i'm a little excited in hoping that this will help me figure out what is wrong with me! He wants to rule out Caelics and a couple of other things. I'm nervous about that whole 2 liter thing i have to drink! a couple of people i know that have taken it threw up..and i am DEATHLY afraid of throwing up.
    Babybeluga22 9 Replies Flag this Response
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