Discussions By Condition: I cannot get a diagnosis.

Loss of muscles/tissue

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • April 25, 2007
  • 02:51 PM

Hello

i have muscle loss all over my body, including all my joints, around eyes, hands, feet, knees.


Around all my joints it seems theres no muscle left and just bones and skin

I suspect this is happening internally too as my vision is getting weaker and weakness in memory, etc.

I have had every possible test there is including MRI, endoscopy, CT scans, cancer tests, blood tests, and anything else you can think of.

All results end up being normal.

But there is something wrong which no one seems to diagnose, i have tried herbel remedies but nothing works, I am losing muscle/tissue and i'm afraid in a few years this will become big trouble as ill have none left.

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6 Replies:

  • check out ahummingbirdsguide.com you have some sx of the disease listed on that page...best of luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • TSX, I am also experiencing full-body muscle loss ("Wasting") as is another user named Donatello who posted on a different board here. Mine basically started when I noticed that a lump on my jaw (which itself had appeared only a month prior) had enlarged. After I got a biopsy a few weeks later, the "Wasting" began to speed up yet, paradoxically, the biopsy report was ruled as non-malignant/normal bone. I've had a 2 CT scans of my skull, another CT of my jaw specifically, and dozens of x-rays, all of which show nothing. Are you loosing weight with your problem, or just muscle? I look like I've lost 20-30 pounds, yet my weight hasn't changed. Doctors are trying to write it off as anxiety because blood tests are normal, because there has been no tumor on the radiology reports, and because I haven't actually lost weight. How long as your problem been going on?
    Mr. Concerned 10 Replies Flag this Response
  • I have the same exact thing going on. I also have had all the test done and nothing showed up. I keep getting new docs so when I show them they don't know me well enough to turst what I'm saying is wrong with my own body. They think I'm a nut. It has just stared getting worse and the pain is more then I can bare. Pain pills do not help. I have been searching on my own for years now. I fell like you said soon there will me nothing left of me. How will my legs hold me up. Blessings! i have muscle loss all over my body, including all my joints, around eyes, hands, feet, knees. Around all my joints it seems theres no muscle left and just bones and skin I suspect this is happening internally too as my vision is getting weaker and weakness in memory, etc. I have had every possible test there is including MRI, endoscopy, CT scans, cancer tests, blood tests, and anything else you can think of. All results end up being normal. But there is something wrong which no one seems to diagnose, i have tried herbel remedies but nothing works, I am losing muscle/tissue and i'm afraid in a few years this will become big trouble as ill have none left.
    Fay-Rae 2 Replies
    • November 22, 2009
    • 08:11 PM
    • 0
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  • I also am experiencing the same symptoms,I lost all the tough skin on the bottom of my feet,they are smooth.I have red tinted spots on my fingers behind each finger nail.I would appreciate any input on this.
    Anonymous 42789 Replies Flag this Response
  • Same here. Only 25 doc is always saying you worry too much its just from lack of excerise. I don't believe that. I've gained weight acording to the scale but i am so weak i know i am loosing muscle.
    Anonymous 0 Replies Flag this Response
  • Same here. Only 25 doc is always saying you worry too much its just from lack of excerise. I don't believe that. I've gained weight acording to the scale but i am so weak i know i am loosing muscle.
    Anonymous 0 Replies Flag this Response
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