So 6 years ago I was diagnosed with Chiari 1 malformation and had decompression surgery. I had many of the same symptoms I have now, that of slowly going paralyzed in my left side, forgetfulness (I have a hard time remembering my own name sometimes), headaches, and more. Its slowly becoming worse, and all the tests are clean. In the past few years since my surgery I have been having seizure like episodes where my body contorts, spasms, flailing, and constricts to the point of causing my muscles to tear, and have bad charlie horses. They last anywhere from 15 minutes to over half a day.
Its really weird, at times my brain will start freaking out and my emotions will go from super happy, to angry, to deep sadness in less then 5 minutes. I can't stop shaking, and I have repetitive movements like clapping and jerky movements. That's only happened twice. The seizure like things have happened probably over a hundred times. I am extremely fatigued all the time, and my muscles and bones move by themselves. I have lost all feeling and movement in my left side most days. I become extremely loopy, and my breathing gets sporadic like hyperventilating when I have the seizure like activity. My speech is now permanently slurred, and I have troubles remembering the simplest things. If I close my eyes standing up I will fall over because my balance is so off, and extreme vertigo happens to me daily. Sometimes my whole body goes paralyzed and I stop breathing.
I don't have any emotional or psychological disorders. My neurologist thinks I'm having migraines.
I'm scared its suddenly going to get worse, and I won't live as long as I hope. I just am scared now, and I don't want to live like this anymore. Please help!
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