Discussions By Condition: I cannot get a diagnosis.

loss of balance, fatigue, nystagmus, tremor

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: conelect
  • April 14, 2009
  • 09:54 AM

G'day,
Up until 7 weeks ago, I beleived I was a healthy 21 yo male. Then one day, while I was eating a muffin, I got real dizzy and didn't feel to good. LIke being on a ship thats rocking all over the place (not rotational vertigo). I spent a week in bed feeling real sick. It sort of went between being on a ship, and feeling like an earthquake. I also shake a lot, like a tremor. Laying down doesn't seem to help. I am very fatigued. I find reading very hard and have some nystagmus (confirmed). My inital GP thought it was hypertension, although this was false, im 21 and not over weight. The gp then suggested bppv, although the hall pike manoever was false. Then suggested an inner ear infection, although 7 weeks later, its just as bad as it was at the start. It really twists my mind, and my balance doesnt come back. I can only keep my eyes open for a few hours before they become really really sore. Long distance objects at night (light streetlights) are all blury. My neuroligst initally thought it was a hole in the inner ear, but a high res CT disproved this, and i'm not so sensitive to sound anymore.

A few symptoms i've experienced:
- Feeling of being totally lost when walking
- Feeling of walking on a tramperline
- Disorientation
- Nausea (not so much now)
- Earthquake/ being on a boat
- Faint at some points
- severe balance problems
- shaking a lot of the time
- depression
- very sore eyes
- confusion in crowded places

little and ring finger have gone completely numb at different times on both arms. I have had bouches of pins and needles here and there. Ive had a fair few headaches.(I'd get a major one if I tried going back to university, there is just too many moving object/corridors and noise)

this has a profound impact on my life, i'm now bedridden 99% of the day and have left university. It seem no one wants to help, as i have no physical symptoms (besides some nystagmus). I'm yet to get an MRI

Before the day i became dizzy, i believe around a year before i got terrys nails (not confirmed, it just looks like it) , and i had some abdominal pain under the right rib, which still to this day, comes and goes, i'm not sure if its related tho.

this is totally screwing with my mind.
ANy suggestions?

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4 Replies:

  • Hi,My sister had the same symptoms and she was diagnosed with multiple sclerosis. It was confirmed when they did a CAT Scan and found whitel lesions on her brain. She was 34 at the time. Or perhaps as the other man suggested it could have something to do with a cell tower. Thanks, Betty
    BettyMoon 1 Replies Flag this Response
  • Thought Id add, I also get this shimmering fog in front of my eyes, especially when light comes thru a window, or fluorescent lights.I get lots of muscle spasms and shake a lot of the time.Yeah, i was coming to the sad conclusion it must be MS, which sucks. Didn't think it'd all happen so quickly tho, what a life changer.I had a CAT scan which was fine, I believe you need an MRI to see brain lesions, which I'm having in the next two weeks sometime.Thanks for your input.Daniel
    conelect 1 Replies Flag this Response
  • My Mom is expereieneing many of these same symptoms, has been for several years now and has been to doctors all over 2 states. Nobody can put their finger on the cause. Please keep posted if anything is determined. My thoughts are with you.
    Anonymous 42789 Replies Flag this Response
  • Hello,I know this post is from 2 years ago, but I've just watched a documentary on Opsoclonus-Myoclonus Syndrome, and decided to do more research, when I found your post. OMS is an auto-immune disease in which inappropriate immune response to a viral infection affects your own body's neurons. This would cause dizziness, loss of balance, loss of muscle control of limbs, and nystagmus. The main symptoms you originally described are all symptoms of OMS. It is treatable with intravenous injections of both steroids and antibodies, to help combat the confused antibodies inside of you. Has anyone mentioned OMS or diagnosed you with this syndrome?I hope you are being well taken care of, and that the doctors have found/ will find an answer for you. ~M.G'day,Up until 7 weeks ago, I beleived I was a healthy 21 yo male. Then one day, while I was eating a muffin, I got real dizzy and didn't feel to good. LIke being on a ship thats rocking all over the place (not rotational vertigo). I spent a week in bed feeling real sick. It sort of went between being on a ship, and feeling like an earthquake. I also shake a lot, like a tremor. Laying down doesn't seem to help. I am very fatigued. I find reading very hard and have some nystagmus (confirmed). My inital GP thought it was hypertension, although this was false, im 21 and not over weight. The gp then suggested bppv, although the hall pike manoever was false. Then suggested an inner ear infection, although 7 weeks later, its just as bad as it was at the start. It really twists my mind, and my balance doesnt come back. I can only keep my eyes open for a few hours before they become really really sore. Long distance objects at night (light streetlights) are all blury. My neuroligst initally thought it was a hole in the inner ear, but a high res CT disproved this, and i'm not so sensitive to sound anymore.A few symptoms i've experienced:- Feeling of being totally lost when walking- Feeling of walking on a tramperline- Disorientation- Nausea (not so much now)- Earthquake/ being on a boat- Faint at some points- severe balance problems- shaking a lot of the time- depression- very sore eyes- confusion in crowded placeslittle and ring finger have gone completely numb at different times on both arms. I have had bouches of pins and needles here and there. Ive had a fair few headaches.(I'd get a major one if I tried going back to university, there is just too many moving object/corridors and noise)this has a profound impact on my life, i'm now bedridden 99% of the day and have left university. It seem no one wants to help, as i have no physical symptoms (besides some nystagmus). I'm yet to get an MRIBefore the day i became dizzy, i believe around a year before i got terrys nails (not confirmed, it just looks like it) , and i had some abdominal pain under the right rib, which still to this day, comes and goes, i'm not sure if its related tho.this is totally screwing with my mind.ANy suggestions?
    Anonymous 42789 Replies
    • January 10, 2011
    • 06:56 PM
    • 0
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