Discussions By Condition: I cannot get a diagnosis.

Losing weight!

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: richedie
  • February 27, 2008
  • 04:43 PM

Hi,

Some of you might remember me from another thread concerning symtoms I have had since October. I stil have no answer, but see the hemotologist/encologist today to get the results of my bone marrow biopsy and XRays. They found an abnormal protein in my blood - IGG Kappa Monoclonal so that is the reason for the tests.

The thing that scares me is all these XRays. I have read the radiation exposure from XRays is large and can cause cancer. Anyone hear this as well?

Anyway, I have been losing weight and am down 20 lbs since October. I have been eating normal amounts of food again, but am not gaininganythig back. I eat very healthy so that may have something to do with it and I have a high metabolism. I gained some extra weight over the years since very young and never quite got rid of it. Then, in October I had issues with apetite and nausea, in addition to tryin elimination diets, I ended up losing weight and getting very lean - too lean in my opinion.

Since then, I am not avoiding eating - I eat a good bit but 95% great suff, fruit, veggies, whole grains, occassional lean poultry, nuts, seeds, soy, eggs, etc. I have eaten very well most of my life, but have been really watching my diet since October.

I'll even treat myself to pizza once a week or a dessert but still no weight gain and maybe even more weight loss. Where are the calories going? Could I be burning that fast? This is crazy.

Thanks,
Rich

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9 Replies:

  • Hi Rich!Sorry about all the weight loss and other symptoms. I was just curious, did they ever check your ESR? Also, did they ever do an MRI of your neck/back/shoulder region AFTER your surgery? Also, what exactly did they do in your surgery? What parts were operated on? Could they possibly have left something behind in your body? Have they checked you for osteomyelitis? (osteomyelitis would cause a high ESR and could lead to an elevated gamma band)-Elke
    Anonymous 42789 Replies
    • February 28, 2008
    • 02:49 AM
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  • adding a liquid meal supplement between meals in 2 ur diet may help you to gain weight,u can buy them from ur local pharmacy..also talk 2 ur doctor about starting on a multivitamin because this can also help with weight gain.all the best mate.Some of you might remember me from another thread concerning symtoms I have had since October. I stil have no answer, but see the hemotologist/encologist today to get the results of my bone marrow biopsy and XRays. They found an abnormal protein in my blood - IGG Kappa Monoclonal so that is the reason for the tests. The thing that scares me is all these XRays. I have read the radiation exposure from XRays is large and can cause cancer. Anyone hear this as well? Anyway, I have been losing weight and am down 20 lbs since October. I have been eating normal amounts of food again, but am not gaininganythig back. I eat very healthy so that may have something to do with it and I have a high metabolism. I gained some extra weight over the years since very young and never quite got rid of it. Then, in October I had issues with apetite and nausea, in addition to tryin elimination diets, I ended up losing weight and getting very lean - too lean in my opinion. Since then, I am not avoiding eating - I eat a good bit but 95% great suff, fruit, veggies, whole grains, occassional lean poultry, nuts, seeds, soy, eggs, etc. I have eaten very well most of my life, but have been really watching my diet since October. I'll even treat myself to pizza once a week or a dessert but still no weight gain and maybe even more weight loss. Where are the calories going? Could I be burning that fast? This is crazy. Thanks,Rich
    Anonymous 42789 Replies
    • February 28, 2008
    • 09:17 AM
    • 0
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  • Hi Rich-- the thing to be concerned about would be if you had to have multiple Computed Tomography (CT) scans. This was in the news recently and may be what you're thinking of. This really *is* a risk and you should question the need for a CT if there is some other way to examine the problem. CT scans should be reserved for dire situations only. Normal x-rays are not that much of a risk. There is always risk, somethimes great, sometimes small, in most medical procedures. You have to balance the risk against the seriousness of the disease. Blaze, it needs to be said that radiation is often used to treat disease, along with sound waves, electromagnetic waves, thermal waves, and many other types of waves. Most people fear these things because they don't really understand how they work. I think it's wise to be cautious about making statements until they're corroborated by hard science, which I have not seen you present to date. Your advice may mislead people and delay their diagnoses. Just my opinion. Your mileage may vary.
    aquila 1263 Replies
    • February 28, 2008
    • 01:34 PM
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  • Thanks Aquila, I did have a CT this year to rule out the seriousness of an aneurism. It is small and they will just keep an eye on it.....but that was it. However, every few years, they will want another test! Where did you read about CTs? Thing that scares me is that they would never even know I had a small aneurism if they hadn't been checking for MS. I am sure, many people have small benign aneurisms. Now, I have to be subjected to CTs for years. I know I read some bad articles on Xrays talking about the high radiation exposure. No? Rich
    richedie 74 Replies
    • February 28, 2008
    • 04:17 PM
    • 0
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  • No problem-- here you go: http://www.cbsnews.com/stories/2004/08/31/health/webmd/main639707.shtml
    aquila 1263 Replies
    • February 29, 2008
    • 01:33 PM
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  • Thanks! What about a full body Xray? They gave me a full body Xray to look for bone issues pertaining to cancer since I have the preotein in my blood. Aren't Xrays as bad? I can't find the good research. I did have one CT but it was just for the head.Are MRIs as bad?
    richedie 74 Replies
    • February 29, 2008
    • 02:46 PM
    • 0
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  • you have hemochromatosis, the inability to safely pass iron. you eat food iron passes through the liver and doesnt get filtered out, idle iron is the devils playground :mad: from there it can get a free ride..... anywherein your veins, push itself into joints causing inflamation and soreness. it causes problems on the liver and can show the type of results you have been getting on your tests (i will edit them into this post a little later) it normally causes liver failure.. but not always. if you dont have liver failure then the iron is most likely being filtered out of the liver, but not out of the body. liver failure is brought on by the iron building up until the liver is ready to pop. if this doesnt happen, they the iron will be found in your blood stream, veins, joints, and even spine. get them to check your iron levels ASAP also have them drain some blood to reduce iron. if you do have this disease you will have to get some of your blood drained every MONTH for the rest of your life. there is also other treatments but i csnnot remember them. if its not hemochromatosis then i dont know what it is, you have a lot of the symptoms and test results coming back like they normally do with people with hemochromatosis. sorry if this is in anyway a bad suggestion, but i will help you by doing research on your symptoms ect hope you get well soon http://www.healthnewsflash.com/conditions/hemochromatosis.phphttp://www.dnadirect.com/patients/tests/hemochromatosis/more_about/GH_Hemo_Symptoms.jsp symptoms: Weakness Fatigue Apathy Abdominal pain General muscle aches Loss of libido Impotence (men) Cessation of monthly menstrual cycles (women) Joint pain Shortness of breath on exertion Increased skin pigmentation (a bronze color) (doesnt always occur)Loss of body hair Unexplained weight loss again weight loss is a top symptom that shows in people with hemochromatosis
    LymeTime 65 Replies
    • February 29, 2008
    • 05:35 PM
    • 0
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  • MRIs just use magnets and radio waves. No ionizing radiation. The main problem is the expense $$$$$ -big copays! The machines and energy used to run them are costly. The studies that give you the most exposure to ionizinfg radiation are fluoroscopy (where they take an Xray movie film) and then CT scans- a series of rotating X-rays. Fluoro is typically worse... Xrays are not nearly as bad as CT and fluoro- and many compare the amount of radiation received from siplme Xrays to that you would get from riding cross country on an airplane.Hope this helps!
    Anonymous 42789 Replies
    • February 29, 2008
    • 11:11 PM
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  • *puts my hands on riches liver and scoops out a load of iron* *richedie wakes up* HEMOCHROMATOSIS
    LymeTime 65 Replies
    • February 29, 2008
    • 11:19 PM
    • 0
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