Discussions By Condition: I cannot get a diagnosis.

Losing Hope, Needing Help

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Sarnia234
  • October 22, 2007
  • 03:23 AM

I’m a 25 year old female – I live like I’m twice that old, and I can’t remember a day without pain. I'm being betrayed by both my body and the doctors.

Here’s a rundown of my symptoms:

Chronic Diarrhea - on and off, mostly on since I was 13 years old.

Recently (in the last year) the diarrhea has been interrupted with bouts of constipation where I will go for a week or a week and a half without a bowel movement, this will be followed up with another week of a week of diarrhea 4 times a day for a week afterwards.

Chronic Migraine headaches – these began when I was 22, and are somewhat controlled with medication (Immitrex as needed and 150mg of Topomax daily)

Joint Pain in my knees/Leg weakness – began in the last 6 months and there are times when I can barely walk or will be hobbling around.

Low Back Pain – began around 2 years ago and can be disabling at times. I can rarely lift anything that weighs more than 30 lbs. I was given muscle relaxers which didn’t help.

Chest Pains – began one month ago. EKG showed a slow and abnormal heart rhythm. Chest Xray and blood work came back fine - slightly elevated calcium levels. They come and go, and when I’m having them my heart beat can be felt pulsing by others (like its pounding out of my chest) and it radiates up to my ears. My doctor thought it might be related to anxiety and gave me a RX for Cymbalta (which I don’t take because she failed to tell me that Cymbalta could potentially fatally interact with my migraine meds…thanks doc)

Acid Reflux – began in the last 3 months or so, the doctor put me on Previcid which has helped it out considerably…but I still can’t have any fruit juices or anything acidic without feeling the burn.

Confusion – I’ve always been an on target and alert person, but occasionally I will have a hard time even adding simple equations - I literally can’t add 2 plus 6. This could be a side effect of the Topomax, but I’m not sure.

Dry, Thin, Brittle Hair – This has been in the last year or so, no matter what I do it breaks and it’s thinner and more damaged than it ever used to be.

All of this has aged me WAY before my time. I’m 25 years old. I’m supposed to be getting married next year. I cry every night either from pain or worry. I worry that I will always feel this way, that I won’t get a pain free day – I worry that I won’t be able to enjoy my wedding day for any one of the reasons listed above, I worry that I shouldn’t have children – that I wouldn’t be able to raise them right, take care of them, carry them.

It seems that every time I go to the doctor they try to give me the next craze of antidepressant. I don’t need an antidepressant…I need an answer – the one thing they aren’t giving me.

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5 Replies:

  • I think you could be suffering from hyperparathyroidism and possibly thyroid problems as well. Calcium should NEVER be elevated and when it is it's usually a sign of hyperthyroidism. Ask your doctor to check PTH (parathyroidhormone). Here are some of the symptoms... Feeling depressed and tired Aches and pain in any part of the body Heartburn (caused by high calcium makes stomach to produce too much acid) Nausea or constipation and diarreahBrainfog and concentration problems High blood pressure Kidney stones You mention that you have dry hair and some of the symptoms caused by hyperparathyroidism overlap low thyroid symptoms as well. You should ask to have TSH, Free T3, Free T4, Anti Tpo and Anti TG tested as well. Post the results here or on a board for thyroid disorders once you have them. Many doctors will tell patients they have no problem, when they are infact borderline and have subacute thyroiditis.
    Anonymous 42789 Replies
    • October 22, 2007
    • 05:52 AM
    • 0
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  • I think thyroid, too, for some of it. Careful with your meds. get on this stuff: http://www.gardenoflifeusa.com/Read Dr. Rubin's life story.
    Monsterlove 2921 Replies
    • October 22, 2007
    • 06:56 AM
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  • Hi, the Thyroid is a must test for you, if you have not already had this done, especially the parathryoid. I would also suggest you take the anti-depressant to help take the 'worry' out of what is wrong with you. There are other types of anti-depressants, other than cymbalta, which will not interfere with your migraine tabs. All they do is take the 'worry' (which could be reason for your heart palps and anxiety symptoms) out of the ailment situation and help put perspective on the symptoms that are actually causing your pain. They will also help your doc to give you a proper diagnosis, because, believe me, as soon as the doc sees the first sign of anxiety/depression on your face - then this is what he/she will put ALL your pain to. So it is important to have a clear mind when you try and get a proper diagnosis. You are still very young to have to live with any pain for the rest of your life. There is hope out there for you. Take care and keep us posted.
    Anonymous 42789 Replies
    • October 22, 2007
    • 01:26 PM
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  • Get checked for celiac disease.
    Anonymous 42789 Replies
    • October 23, 2007
    • 01:26 AM
    • 0
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  • Sarnia 234,I hope you are still visiting this site. There are a couple other problems that may be bothering you. Have you been tested for Carbon Monoxide or heavy metals in your body? All of your symptoms can be caused by these. Check out www.coheadquarters.com. Chronic carbon monoxide exposure has also been related to Gulf war syndrome. There are very few doctors available to treat such problems. My suggestion, if you are experiencing side effects from this, please contact Dr. Penney at Wayne state university. Hope you feel better. Please post a response and keep us updated.
    Anonymous 42789 Replies
    • October 24, 2008
    • 07:36 PM
    • 0
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