Discussions By Condition: I cannot get a diagnosis.

Losing hair, waking up at night constantly, neuralgia....help!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • June 22, 2007
  • 02:36 PM

I had a skin tag/biopsy just below my eyebrow last year; ever since the nurse TORE the stitch out (incompetency?)...I got ptosis in my eyelid; plus I started waking up every two hours, unable to sleep at night....thought it was tied to the pain. Finally a neuro diagnosed w/ neuralgia; put me on gabapentin. Hair started falling out six months ago; I stopped using the gabapentin two months ago...but hair is still falling out. Burning pain has subsided but still have the droopy eyelid and when I wake up it feels like a fishing lure is on my lid.

Also my husband says when I am sleeping (rare occurence) my feet get rigid and I start kicking and make shallow breathing sounds then I gasp and wake up. I'm going to a sleep disorder clinic b/c they think I have sleep apnea. But I weigh only 120 lbs and am 5'6" so all the other docs I've seen laugh and say that I'm not a candidate for sleep apnea.

Thoughts? I'm going nuts trying to find a doctor who will help! I've been to gps (think I'm crazy); rhematologists (all blood tests fine...thyroid, iron, cbc, ana titer, c3,c4); neurologists(CT scan, MRI fine), eye doctors (vision is fine). Anyone familiar w/nerve damage and whether it can cause central sleep apnea, which is the neurologically related type of apnea (but usually only affects people over 60.....I'm in my 30s).

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  • Find a doctor who believes that chronic fatigue syndrome is a real disease. Find a local NAET or Bioset doctor. Bioset is usually 3 treatments. I've had 2 so far and can't wait for the third. I have CFS and this is the best thing I've found to helpmyself yet. It works. Research information on CFs. Losing hair, waking at night and neuralgia are all symptoms of it. You do not have to have every symptom of the disease to have a diagnosis. This illness is exploding. It is only a matter of time until doctors and patients both figure it out. Also, look into daily vitamins, supplements, minerals, herbs to help. Regular docs will give you scripts for pharm meds but the herbs don't cause liver damage like the meds do, or affect the kidneys so harshly.Your diet has a lot to do with it, as well as stress levelsMC
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