Discussions By Condition: I cannot get a diagnosis.

looking to conect the dots

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: jlr4050
  • December 20, 2008
  • 10:59 PM

I have been diagnosed with Menierse and Narcolepsy. Both are thought to be autoimmune related. Now I am going for a colonoscopy. I think they suspect Chrones. I have unexplained:
blood in urine and white cells but no infection
bloody stool
abdominal pain
sphincter pain
positive ANA
etc...
I don't see how one person could have 2 or 3 rare chronic illnesses. I feel that the physicians are so specialized they are not putting all the pieces together. I came across an article stating that Lime disease if often misdiagnosed as each of these disorders. I have about 70 of the 75 listed symptomes on the site. For more of my symptomes look up Narcolepsy, chrones and menierse. I dont feel like listing them all. If anyone has any ideas please help! I am not interested to have yet another inefective drug to mask symptoms thrown at me.
thanks:confused:

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2 Replies:

  • It sounds like autoimmune disease to me. A positive ANA can mean lupus. Try here: http://www.labtestsonline.org/understanding/analytes/ana/test.html
    aquila 1263 Replies
    • December 24, 2008
    • 06:56 PM
    • 0
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  • Okay, you've lost me a little bit here. You've been diagnosed with both Meniere's disease and Narcolepsy but your listed symptoms are primarily associated with digestive disorders. In order to attempt connecting the dots let's back up a bit and if you don't mind, describe the symptoms which originally occurred that led your doctors to the diagnosis of the Meniere's and Narcolepsy. Also, is the bloody stool associated with occult blood or frank blood? If you're uncertain what I refer to here, occult blood is that which cannot be observed but is detectable through diagnostic testing. Frank blood is associated with the observation of bright red blood. Also realize that ANA is considered more of a diagnostic screen that requires subtests for confirmation of a particular autoimmune disorder. It must also be stated here that false positives do occur and the risk increases as a person ages. So the ANA in of itself warrants the yawn response unless it's coupled with subtests that confirm the presence of a particular AI disorder or disease. Your symptoms as listed would not be consistent with Lyme disease and I would advise caution when searching for answers to your symptoms. You have to realize that in many cases of autoimmune and neurological disorders, early manifestations of symptoms can produce little direction toward specifics that are much more salient as the various disease or disorder progresses. Many patients find themselves caught in a sort of medical purgatory, where no one can offer answers or contrastly offer a full list of possible causes. You also mention an ineffective drug that was apparently prescribed at some point and if you don't mind, I'd like to know which drug you're referring to and whether you can tell me all medications being taken or taken since receiving the diagnoses mentioned. I'd also like to refrain from trying to match published symptoms to your complaint as you suggested, since doing so will definitely produce an inaccurate account of what's actually taking place with you. It's critical to state precisely what you feel and not what you or your doctors think you have. We'll talk more, but first take some time and address the questions posed and we'll see if we can bring some clarification to your circumstances. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • December 24, 2008
    • 07:56 PM
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