Discussions By Condition: I cannot get a diagnosis.

Looking For Opinions/Advice

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • May 20, 2011
  • 06:39 PM

Hello all, here's a little back story...

This all started on March the 9th of this year when I went downtown to meet a friend for coffee, about half way there I got very dizzy and scared, I felt like I was going to fall down, I was alone and I ended up calling my mother and told her over the phone "I am going to die" She then raced down and immediately took me to the ER.

They did all sorts of tests involving the heart and took x-rays and the whole nine yards but everything came back normal* I should note I have Renal (Kidney) Failure for going on 9.5 years now so the results were considered normal for someone with my condition.

After basically dismissing it as an isolated incident they sent me on my way, I was fine until April the 3rd when after taking the subway and coming up 3 consecutive escalators I got the same feeling again. After sitting down for a few moments I was able to complete my task and returned home.

Things seemed to settle down for me until I had, what I now know was a major panic attack the morning of April 19th. It was around 1 in the morning when my heart started to race and fear completely filled me, I called out for my mother who once again raced in and I apparently said some pretty terrible things (about my death and funeral and all of those horrible thoughts) It lasted about 30-40 minutes until I basically just was so tired I fell asleep.

After a blood test it was determined that my corrected calcium was very low and was given Rocaltrol to improve that. I started those pills on the 21st of April and had been fine until May 9th.

On May 9th, I went out with my mother and we ran a few errands, then ended up at Starbucks. We sat there a good 20 minutes and then all of a sudden I was in mid-sentence and had no idea what the heck I was talking about, I then said something about dying (that seems to be a crutch for me). My mother being the awesome person she is recognized what was happening, she said my name twice and I basically came out of it but felt really weak + tired.

Since that incident I have been really up and down, sometimes feeling fine other times feeling cruddy- when I'm feeling cruddy I have pain around my rib cage and I get a little dizzy, and can always hear/feel my heart beating.. also if I'm out walking sometimes my legs (more so my right one) feels very weak/light and I'm not confident it will hold me (although it always has and I've never fallen)

I guess what I'm asking is, is this normal and just anxiety? Or is there something else that could be going on here? I've only been on the Rocaltrol for a month and I had a blood test last Friday and my corrected calcium is up but still lower than "normal" range...

I'm looking for any and all advice, suggestions and support! :-)

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