Discussions By Condition: I cannot get a diagnosis.

Looking for Marfan's specialist

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: spanky
  • September 6, 2008
  • 04:36 AM

I have tried using Google to find listings for doctors in my area (Houston) that specialize in treating Marfan's Syndrome, supposedly this is where a lot of research on the disorder takes place but I cannot find any listings. None of the hospitals I have called in and asked were very helpful, either.

I'm aware from my research that if I in fact do have Marfan's (my sister is diagnosed with it, and I have observed many symptoms in myself) - I will probably need a specialist who has worked with Marfan patients otherwise I am screwed.

Please help! Can someone refer me to a specialist or direct me to a listing?

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2 Replies:

  • Try these people: Genetic basis of thoracic aortic aneurysms and aortic dissections.Pannu H, Tran-Fadulu V, Milewicz DM.Division of Medical Genetics, Department of Internal Medicine, University of Texas Medical School, Houston, USA.
    aquila 1263 Replies
    • September 8, 2008
    • 07:38 PM
    • 0
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  • Here you go!University of Texas at Houston Contact Kristi L. Baysinger-Morin, RNPhone 713-500-5774E-mail Kristi.L.Baysinger@uth.tmc.edu http://www.marfan.org/nmf/GetContentRequestHandler.do?menu_item_id=49
    Anonymous 42789 Replies
    • September 9, 2008
    • 07:48 PM
    • 0
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