Discussions By Condition: I cannot get a diagnosis.

Looking for Lupus People

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Lameme1957
  • May 8, 2007
  • 07:49 PM

:confused: Well this is just the first stages of my research for info about Lupus.
I mentioned to my dr that perhaps we should run some more tests to check out if the results would substantiate a lupus diagnosis instead of the usual pat diagnosis for a middle aged female. MENOPAUSE AND STRESS.

Good grief, dont ya think they could have come up with something besides that "catch all" diagnosis.

If you take all of the patients that drs are diagnosing as "stress" related we probably would have a recognized epidemic.

My dr didn't even ask me what symptoms I had that I thought were pointing to Lupus. After my own research I have on several occasions burst into tears realizing that symptoms I had almost twenty years ago were pointing to this disease, not stress like they said. The first being the swelling around the eyes and face and lips. Now all of the symptoms are progressing towards full blown symptoms including the raised, scaly round sores specifically behind my ears, along with the continued chest and breathing pains, severe instant onset of migraines, with extreme and severe muscle and joint pain. I have suffered from severe anemia for a long time. The lower back pain and kidney pain is constant and severe enough to be debilitating. My energy levels are exhausted after only a few hours of any type of activity. To the point that I am physically and mentally and emotionally unable to cope with anything but bedrest and quiet.

I have actually wondered whether I got this from the blood I was given after the birth of my son in 1980. I began to have symtoms of constant unexplained illnesses from that point on. I actually hemorraged 2 weeks post cesearean delivery and then again 1 1/2 weeks later. My assisting ob was atually my father in law at the time, lol. He told me he talked to his colleages and none of them in the 25 years he had practiced had ever had this happen to a patient. Only with vaginal deliveries, and usually immediately after delivery, not weeks later. Go figure. But I can't seem to remember any of these problems prior to that particular time. I never had allergies either till the blood transfusion. Now I am constantly fighting those symptoms too.

I guess what I am looking for here is some feedback regarding this and how to go about pushing forward to get the necessary tests, diagnosis and possible treatment. I don't want to talk to five hundred people who may or may not have any informed opinions, I would rather come here and perhaps find a few people who can communicate with me so I don't feel like some kind of crazy hypochondriac.

I hope to hear from someone with enough info to give me some much needed feedback.
:rolleyes:
Chris

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7 Replies:

  • Yes! If it takes however many years in Med school to only Diagnose stress then these Dr's should be struck off. Why is it that Dr's think we are all Hypochondiacs. You spend 37 years never seeing a Doc and the minute you tell them that you are feeling unwell they say stress. It makes my blood boil. I just wished you could give them 5 minutes of how you feel, they might have a rethink me thinks!AWB
    Adam W-B 2 Replies Flag this Response
  • http://forums.wrongdiagnosis.com/showthread.php?t=13219
    Eatafruit78 960 Replies Flag this Response
  • Yes! If it takes however many years in Med school to only Diagnose stress then these Dr's should be struck off. Why is it that Dr's think we are all Hypochondiacs. You spend 37 years never seeing a Doc and the minute you tell them that you are feeling unwell they say stress. It makes my blood boil. I just wished you could give them 5 minutes of how you feel, they might have a rethink me thinks!AWBOnce you read Louise Hay and Deb Sahpiro's books- you'll understand that doctors have a little clue about emotions and disease but they don't get the relation right just yet.
    Eatafruit78 960 Replies Flag this Response
  • Lameme I was just looking here because today I told my DR that I thought I had Lupus. She asked me why and I gave her the reasons. Anyway maybe to humer me, she ran the test. My suggestion if you do think you have it, visit a new DR. I went to see my DR that I see for my annual exams (complete different clinic) and not my regular for everything else DR. Good luck
    Cala1234 57 Replies Flag this Response
  • :p Thanks for all the info and advice. It would appear this is going to be a "long haul" diagnosis search. All the info I have read indicates that I will need input from several different specialists to get a correct diagnosis. I do hope I can at least get started in the right direction with one of them and see if any of the tests are positive for lupus and it isn't just a coincidence of symptoms. I am not sure which book you were referring to, I would appreciate more info regarding the title. I look forward to chatting with all of you here. I appreciate the support we have here. Chris:rolleyes:
    Lameme1957 1 Replies Flag this Response
  • Lameyou.........this is lameme PLEASE visit www.ahummingbirdsguide.com the thing that popped out was the blood tranfusion in 1980 PLEASE LOOK AT THISI am a nurse...sick for a while...many docs.no diagnosis till now Myalgic Encephalomyelitis...Fibromyalgia...see any connection?? I'm being tested for ME...my mother has FibroMy cousin has ME symptomsHer mother has FibroMy sister in law and her sister have ME symptomstheir mother has Fibro Outbreak in 80'smany due to blood transfusion(viral)me, cousin, sister in law and her sister all in same high school in 80'sall our mothers with FibroIn 80's ME outbreak hit LA the hardestLast Tues Montel Williams did show on sudden surge of Fibromyalgia in LA Way too many coincidencesWay too many peopleWay too many similar symptomsWay too many accused of psych prob or being a hypochondriacWay too many people posting hereWay too many undiagnosed people with same symptomsWay too many docs don't believe in ME See a pattern here??? Good Luck and Godspeed.Mommy cat
    mommy cat 1654 Replies Flag this Response
  • :confused: Well this is just the first stages of my research for info about Lupus.I mentioned to my dr that perhaps we should run some more tests to check out if the results would substantiate a lupus diagnosis instead of the usual pat diagnosis for a middle aged female. MENOPAUSE AND STRESS. Good grief, dont ya think they could have come up with something besides that "catch all" diagnosis. If you take all of the patients that drs are diagnosing as "stress" related we probably would have a recognized epidemic. My dr didn't even ask me what symptoms I had that I thought were pointing to Lupus. After my own research I have on several occasions burst into tears realizing that symptoms I had almost twenty years ago were pointing to this disease, not stress like they said. The first being the swelling around the eyes and face and lips. Now all of the symptoms are progressing towards full blown symptoms including the raised, scaly round sores specifically behind my ears, along with the continued chest and breathing pains, severe instant onset of migraines, with extreme and severe muscle and joint pain. I have suffered from severe anemia for a long time. The lower back pain and kidney pain is constant and severe enough to be debilitating. My energy levels are exhausted after only a few hours of any type of activity. To the point that I am physically and mentally and emotionally unable to cope with anything but bedrest and quiet. I have actually wondered whether I got this from the blood I was given after the birth of my son in 1980. I began to have symtoms of constant unexplained illnesses from that point on. I actually hemorraged 2 weeks post cesearean delivery and then again 1 1/2 weeks later. My assisting ob was atually my father in law at the time, lol. He told me he talked to his colleages and none of them in the 25 years he had practiced had ever had this happen to a patient. Only with vaginal deliveries, and usually immediately after delivery, not weeks later. Go figure. But I can't seem to remember any of these problems prior to that particular time. I never had allergies either till the blood transfusion. Now I am constantly fighting those symptoms too. I guess what I am looking for here is some feedback regarding this and how to go about pushing forward to get the necessary tests, diagnosis and possible treatment. I don't want to talk to five hundred people who may or may not have any informed opinions, I would rather come here and perhaps find a few people who can communicate with me so I don't feel like some kind of crazy hypochondriac. I hope to hear from someone with enough info to give me some much needed feedback.:rolleyes: Chris hi, i have many of the same problems as you describe. Im 39 and have had joint pain for years, always being told i was depressed or have fibro. last year i went to the hospital for chest pains and went flight for life to st. lukes in milwaukee. had heart catherization and was diagnosed having heart spasms, feels like a heart attack and can be just as damaging, i didnt understand why that was happening and no one ever had any answers till i looked on the internet and found out spasms are usually found as a result of lupus. the joint pain, headaches, now breathing problems, protein in urine, cold fingers, low grade fever, sleep problems, vision and dizziness, low back severe pain, confussion, u name it, now has a name-lupus. I always tested neg. to the ana. so lupus isnt always confirmed with test. keep searching for answers and go to as many docs as you have to until your satisfied.. good luck to you.
    Anonymous 42789 Replies
    • October 31, 2008
    • 01:19 AM
    • 0
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