Im looking for answers as the doctors cant seem to pinpoint the cause or condition.
I am currently medicated for Hashimoto’s, but although my blood tests say I am Uthyroid, I still suffer from the thyroid symptoms. A year ago I started feeling very ill and although nearly all specialist found something, it was almost always small & obscure, with little or no treatment, & no response to treatment:- inflamed neck lymph nodes (still), inflamed oestphagus (still), extreme postural hypertension (now gone), heart murmur (Barlows), breathing difficulty & shallow breathing (neurologically based, still), low grade fever (occasionally), weight loss (now back to normal), extreme fatigue & malaise (Still), Muscle pain & stiffness (Still), limb heaviness (occasionally), Joint pain & stiffness (still), tingling & numbness (occasionally), constant nausea(gone), sharp & dull pains in abdomen (occassionally), extreame cold (occassionally), there may be adrenal issues, but they cant pinpoint them. A year on my lifestyle has changed dramatically (not a bad thing) & I have had to give up work. The specialist physician has found that my whole skeleton is inflamed (osteomyelitis), my Epstein Barr is positive & reactive, although they don’t believe this is the cause & my C reactive protein is negative. They have tested for the usual virus’s, all to no avail, & I currently don’t suffer from anxiety or depression. Doctors think I may have a rhumetology issue that is not coming up on tests, but it doesnt explain all issues. Many tests are still planned, but I am looking for any thread of answers or direction from anyone who may have been through the same or may have an idea? Thanx