Discussions By Condition: I cannot get a diagnosis.

Long year of looking for a diagnosis.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: montrealer
  • March 30, 2013
  • 09:05 PM

Hi all! As much as I hate reading about other people going through the same thing, it's nice to know I'm not the only one who can't get a diagnosis! To start off, let me tell you that I'm 20 years old, normal weight, and a type 1 diabetic. I was diagnosed with Type 1 when I was 12. For about a year now I've had these symptoms, and it got to a point where now I've had to drop out of school because I feel too sick to go: swelling in neck, extreme fatigue, general malaise, hot and cold, low grade fevers, headaches and digestive problems (which I believe are a seperate issue possibly, I'm going to get tested for Crohn's and Colitis). I've had many blood tests done. My thyroid has been out of whack since I was 15, but half the time the tests come back normal and half the time they come out abnormal. My endocrinologist says I have Hashimoto's Thyroiditis which is really common with diabetes and that she'll start be on meds eventually, but that I don't NEED them yet. Other than that, I have a very high C-Reactive Protein count, and a high red blood cell count. I have a ton of appointments in the next month; endocrinology, gastroenterology, hematology and rheumatology. It freaks me out that I have so many different symptoms and multiple problems so it all seems to get confused with one another. In the end, I still feel just as crappy and can't get a real diagnosis. ANy advice?

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