Discussions By Condition: I cannot get a diagnosis.

Long-term neurological problems are quickly worsening

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 30, 2010
  • 06:06 PM

43yo female, former triathlete. Lifelong asthmatic. Fibromyalgia and chronic pain secondary to a car accident 10+ years ago. These symptoms have been present since the accident although they may or may not be related to it. They've been increasing in severity for the past 9 months at an alarming rate.

-Extreme fatigue beyond that which is associated with fibromyalgia. It feels like someone turned up the gravity x10.

-Muscular weakness. When getting into a car I often have to pick up my legs with my hands and lift them into the footwell. Last week I couldn't lift a 15" laptop computer to put it in its case.

-Clumsiness and falls resulting in sprained ankles and bashed knees.

-Loss of manual dexterity. When I reach for an item it sometimes takes 4-5 attempts to grasp it, or I knock it over instead of grasping it, and I frequently drop items.

-Typing on a computer sometimes results in words different from the ones I meant to type (not just typos; "down" instead of "dog," for example) or just complete gobbledygook (like "zdzd btyrlkjn edrtxdlikn").

-Brain "fog." Inability to retrieve common words and names - even of lifelong friends. I saw a movie and two days later it was like I had seen it years ago, I could hardly remember scenes and couldn't tell you which order the events happened in.

-Vision problems going from bright to dark environments and vice-versa. It takes 3-5 minutes for my eyes to adjust when walking into a room from being outside on a sunny day, or if I look out a car window when it's bright outside and look back at a person in the car, there are spots which take 3-5 minutes to resolve.

-Weight gain (40+ pounds in nine months).

-Numbness around nose, mouth and cheeks. This is worse in the mornings. Sometimes articulating words is difficult, I have to really over-enunciate to be understood.

Five pages of bloodwork was normal, several neurologists have shrugged and said, "I don't know."

Any ideas would be very welcome.

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