Discussions By Condition: I cannot get a diagnosis.

Long Lasting Stomach/Body Pain.

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: shoutinsilence
  • August 23, 2007
  • 04:12 AM

First, a list of my symptoms, to make things less complicated.

-Constant nausea with no vomiting, though I feel close to vomiting all the time. made worse with eating. surges when I need to go to the bathroom.
-Bloated abdomen
-Loss of feeling on the area of skin above my armpit, where my collarbone ends.
- Pain on both sides of my collarbone and the underside of my jawbone when I apply pressure.
-Weight loss (about 12 pounds)
-Change in bowel movements (less frequently, difficulty going, feeling like I have to go then not being able to)
-Mild headaches. When I have a headache, sound doesn't become painful for me, but just intensely frustrating. It's hard to describe.

This nausea started right after July 4th. The numbness and pain didn't start until August 11th. I went to the doctor and he sent me for bloodwork. My CO2 levels were at 13% and my bilirubins were quite high. With this, he decided I may have Gilbert's Syndrome, which I've yet to confirm. No matter what I do, nothing helps to alleviate the nausea.

I hope you can help with this. It's starting to interfere with my life and making me depressed. Thanks!!

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6 Replies:

  • I would ask to see a geneticist.
    aquila 1263 Replies
    • August 24, 2007
    • 04:50 PM
    • 0
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  • Would a geneticist be able to diagnose and treat me? I did a bit of googling, and it's unclear to me what he or she would do for me.
    shoutinsilence 3 Replies
    • August 25, 2007
    • 11:16 AM
    • 0
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  • A good geneticist is up on all the latest treatments for specific genetic conditions, more so that a general internist, so yes, you would get a diagnosis & possible treatment from one. Best of luck.
    aquila 1263 Replies
    • August 27, 2007
    • 06:59 PM
    • 0
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  • I thought Compazine WAS an anti-emetic. It works great, but I would try to find out the reason for the nausea.
    rad-skw 1605 Replies
    • August 28, 2007
    • 11:35 AM
    • 0
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  • How old are you and are you male or female? Are you taking any medications, including birth control? Have you stopped taking any medications in the past few months? A lot of your symptoms sound like side effects of a med - this is the very LAST thing a doc will check for. Please post if you are taking anything... Have you tried fresh ginger for the nausea? It can help relieve this. I agree with RadSkw that you need to find the cause. Best wishesDOM
    acuann 3080 Replies
    • August 29, 2007
    • 04:23 AM
    • 0
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  • Okay, I'm a sixteen year old girl. I'm not taking any medications or birth control. I don't smoke or do any sort of drugs. And I very rarely drink. I don't have a very balanced diet, so I'm sure I have some kind of deficiencies in vitamins. Don't know if that could cause this.
    shoutinsilence 3 Replies
    • August 30, 2007
    • 02:25 AM
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