Discussions By Condition: I cannot get a diagnosis.

Long lasting constant nausea and gagging feeling

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: shoutinsilence
  • January 9, 2008
  • 05:14 AM

I posted about this back in September, but I still haven't figured it out, so I decided to try here again.

First, some background info. I'm a sixteen year old girl. I haven't eaten meat (including poultry and fish) in three years. I don't have any major health problems and there are no disorders that run in my family. I've had this problem since July 4th, so there's a lot of symptoms and info to it. The symptoms have changed over time, also. I think it'd be easiest if I made lists, because sometimes even I get confused from all of it.

Symptoms from July 4th to around the beginning of October:
- Constant nausea with no vomiting, though I felt very close to vomiting all the time. made worse with eating. surged when I needed to go to the bathroom.
- Bloated abdomen
- The area of skin above my right armpit where my collarbone ends was numb to the touch. The left side was only slightly numb.
- Pain on both sides of my collarbone and the underside of my jawbone when I applied pressure.
- Weight loss (about 12 pounds)
- Change in bowel movements (less frequently, difficulty going, feeling like I have to go then not having to when I try)
- Mild headaches. When I had a headache, sound didn't become painful for me, but just intensely frustrating. It's hard to describe.
- Supposed yellowing of the eyes, but I've dismissed this as nothing because my eyes have been slightly yellow for a very long time.
- Dry mouth, most of the time.
- Occasionally mixing up words and feeling like I can't string together a sentence.

With all of this, I went first to my normal doctor, who guessed I had Gilbert's Syndrome. He referred me to a gastroenterologist. She ruled out Gilert's Syndrome. She ordered a very large amount of bloodwork. No hepatitis, liver functioning normally, no anemia, no mono. Pretty much everything was clear. Except for two things- my bilirubins were outside of normal levels (I forgot the exact number) and my CO2 levels were at 13%. The doctor then sent me for a CAT scan, ultrasound, H. Pylori test, and some more bloodwork. Everything was normal. She told me to try and take Prilosec and come back in a few months.

Symptoms from November to now:
- Constant nausea, occasionally some burning or cramping in my lower abdomen, it feels like my intestines.
- Stomach gurgling and noises.
- Occasional acidic feeling in the back of my throat.
- I always feel the need to open and close my throat. It's hard to explain. I don't clear my throat, but just push a little.
- Difficulty swallowing or swallowing and feeling as if the food is sitting in my throat.
- I think the symptoms get worse before I get any other sort of virus or infection, like a cold.

I went back to the doctor. She told me that my bilirubins were back to normal and that I probably had a long lasting virus that cleared out of my system. She doesn't understand why I'm not feeling better. The next step is to order an upper endoscopy. With my symptoms now, I have some days where I feel almost normal, and some days where I can't even get out of bed because I feel so ill. The Prilosec I'm taking really isn't helping, so we don't think that I have acid reflux. No one has any ideas. I'm really tired of feeling like this, though. Sometimes I can't sleep, I'm afraid to be in the car for a long time because I'm afraid I'm going to vomit, I don't eat all the time, and it's just annoying.

Oh, I forgot. I gained back almost all of the weight I lost. And throughout this whole thing, I've never vomited. Sometimes I think I had two different problems, also because the symptoms are pretty unsimilar.

Thanks for any help you can give me. I'm sorry this is so long. (:

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5 Replies:

  • Low Co2 levels Lower-than-normal levels may be due to:Addison diseaseDiarrheaEthylene glycol poisoningKetoacidosisKidney diseaseLactic acidosisMetabolic acidosisMethanol poisoningSalicylate toxicity (such as aspirin overdoseelevated bilirubin levels A doctor usually orders a bilirubin test in conjunction with other laboratory tests (alkaline phosphatase, aspartate aminotransferase, alanine aminotransferase) for a patient who shows signs of abnormal liver function. A bilirubin level may be ordered when a patient shows evidence of jaundice (yellowing of eyes or skin), has a history of drinking excessive amounts of alcohol, suspected drug toxicity, or has been exposed to hepatitis viruses. Other symptoms that may be present include dark, amber-colored urine, nausea/vomiting, or abdominal pain and/or swelling. Fatigue and general malaise often accompany chronic liver disease. Bilirubin levels can be used to identify liver damage/disease or to monitor the progression of jaundice. If conjugated bilirubin is elevated, there may be some kind of blockage of the liver or bile duct, hepatitis, trauma to the liver, a drug reaction, or long-term alcohol abuse. Inherited disorders caused by abnormal bilirubin metabolism (Gilbert’s, Rotor’s, Dubin-Johnson, Crigler-Najjar syndromes) may also cause increased levels. The CO2 test is most often done as part of an electrolyte panel. Changes in your CO2 level suggest you may be losing or retaining fluid, cause an imbalance in your body's electrolytes. Electrolytes are minerals in your blood and other body fluids. Have they checked you for Addison's disease? Bilirubin can be elevated if there are problems and imbalances with your fluid levels.
    rad-skw 1605 Replies
    • January 9, 2008
    • 11:05 AM
    • 0
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  • I've never been tested for Addison's disease, but the results of my last bloodwork showed my bilirubin and CO2 levels were back to normal. Throughout this whole thing, all my liver functions besides the bilirubin have been normal, which according to the gastroenterologist, is odd.
    shoutinsilence 3 Replies
    • January 10, 2008
    • 02:16 AM
    • 0
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  • I have been suffering very similar sympyoms for 3 months. It has been really fustrating. You might considae doing a blood test for food alergies. I did this about a week ago and it mght be helping. Have you made any progress?
    Anonymous 42789 Replies
    • August 10, 2008
    • 06:32 AM
    • 0
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  • Hi guys!Im writing to ask how are you both feeling? Did the symptoms subside? Did you find the cause? My sister is suffering from simillar problem and she is at the begining of her evaluations. I would really appreciate it if you could answer. I hope you guys are well and healthy!Thanks
    Anonymous 42789 Replies
    • August 20, 2008
    • 00:24 AM
    • 0
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  • Hi,Just wondering if you've discovered anything yet - my symptoms are almost identical, just my billirubin never went down, and co2 never been tested? Hope you found some answers to share
    Anonymous 42789 Replies
    • February 18, 2009
    • 02:32 AM
    • 0
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