I am a 37 year old female with SLE lupus. I have been on and off steroids, plaquenil azathioprine etc for years since finally being diagnosed 8 years ago. I have had pleurisy twice, blood clots twice, severe arthritis, fatigue etc.
Right now I am experiencing the following:
1. My lymph glands in my neck on the right side (only) swell so badly sometimes when I eat that I cannot swallow and the pain radiates into my ears and it feels I have earache too. I was told this was due to swollen salavia glands but it has been happening for years and is really painful. What can I do as the dr. did not offer any solution. The lymph gland swells very quickly and is about the size of a golf ball! It is very hard to the touch and is noticeable to people around me. It does eventually go if I take pain killers but it is hard to swallow and feels like my throat is closed in. It happen intermitentley but enough to disrupt my life.
2. I have lots of sores on my scalp that I just want to itch. They cover my scalp. I was told this was due to infected hair follicles like old men usually get but the medicine I was given did not make it go away. It comes and goes but mostly, it stays.
3. My liver hurts or at least it feels like where my liver is. It has hurt for a couple of weeks now. The pain is in my right hand side in the back about middway down. It doesn't feel my lungs but feels as if within my rib cage. If I breathe deeply it hurts more. I have had a cough for 8 weeks now as have most people here in the UK but this pain is worrying me. I also feel nauseated, headache but no fever - just general aches in pains.
As I have Lupus which causes so many problems, I am never sure what is the Lupus and what is something else causing it.
Sorry for the list but I thought I'd mention all of my symptoms.
Thank you for any help.
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