I've had periodic lightheadedness and feeling very unwell on and off for the last 8 years.
All this time, I have had elevated liver enzymes - namely ALT and sometime AST. I first saw a liver specialist in 1999 who did a ultrasound and it showed fat in the liver. I was told that this was nothign to worry about. Over time, the symptoms would go away but always return. A year ago, everything statred to get much worse with weakness and exhaustion. I had a liver biopsy that showed fat in the liver and fatty liver disease but no scarring. Since then things ahve got progressively worse and a new range of blood tests are now out. My testosterone is low so I have been given testosterone gel. Some of my immunoglobulins are low. I have been bounced around from specialist to specialist but just getting worse.
I have lost a lot of muscle mass and gained weight and am unbievably fatigued and exhuasted. I get periods of unquenchable thirst and dry mouth and constant urination and my ankles keep swelling up. I have been tested for diabetes and just told I have slight insuling resistance and been given metformin for that.
There is a long list of symptoms which I haven't mentioned. I also saw another liver specialist who said even though I have symptoms of advanced liver disease I don't ahve that as it would have showed in the biopsy. He said nothing could have changed that quickly since earlier this year.
I don't know what to do anymore. There doesn't seem to be anyone else left to see about this. The symptoms match exactly that of advanced liver disease but if I don't have that then what is actually going on - I can't get that answer. Can anyone help?