I'll try to be brief.
I'm an otherwise healthy 35 year old female. After stopping taking the pill, symptoms began in earnest and progressed to current levels.
All symptoms are heightened the day before first bleeding of period. I'm hypoglycemic but blood sugar tests report normal levels, even while tested in the middle of an episode! I'm often fatigued and have achy muscles. The past few years I've put on 20 pounds, much of it around my belly. I get involuntary abdominal muscle spasms which repeat, rapid fire, for up to 20 minutes. Most are when I lie down for sleep, some days it's during the day as I walk around! During these episodes I have surging adrenaline to the point of tears. Cortisol levels are apparently 'normal' as is my thyroid. I've had 2 EEG's, and a brain CAT, all normal. It is NOT stress as it has now lasted several years. The spasms vanish after taking on sugar, something my endocrinologist doesn't even believe.
My endocrinologsit does almost nothing for me. My GP won't direct me to a new one. My gyno has no idea. The neurologists ruled out the spasms as being 'seizures', so they have no idea (it does move my whole body you see). I've all but stopped seeing them as the only thing that happens is negative; they take my driver's license, do no tests, demand that I see a psychologist, etc.
I believe it's my hormone function, adrenal function, or an issue with my glycogen production, but can't prove anything or find anything in tests. I had one hormone panel done, a saliva test over 1 month, which showed wildly changing estrogen and progesterone levels unlike a 'normal' female.
Any ideas would be VERY VERY WELCOME. You can imagine my distress.