Discussions By Condition: I cannot get a diagnosis.

Lightheadedness and Fatigue, going on for 2 years.

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • November 10, 2006
  • 04:21 AM

Hi, I'm an 18 year old female, and appreciate any help on this. I've been out of school for almost two years, because my fatigue and lightheadedness is so extreme. I've been to so many doctors, and have yet to be properly diagnosed, just have been treated by my separate symptoms. I'm scheduled for an mri with a neurologist soon because they want to make sure I don't have a brain tumor but, I don't want it to be that, but I also want to be diagnosed. In the past month or so I've gotten a really strange symptom, like my brain is being squeezed, I feel pressure from all corners of my head, and I get rushes of dizziness. They have been so severe I can't even do my home tutoring. I've been checked for thyroid,adrenal problems, hypoglycemia and tests are all negative..Well to get to the point, my symptoms are:

Lightheadedness (sometimes relieved by eating)
Fatigue
horrible head aches
Waking up with puffy eyes
poor concentration
light/sound sensistivity
heavy periods
chest tightness, heart palpiations
losing hair from the front of my head( and I have pretty thick hair)
dehydration
ocassional feelings of anxiety
vomitting
constipation
swollen lymphnodes (especially in my neck and chest, I had to get part of thyroid removed because they thought it was thyroid cancer)
nightsweats

sorry so many symptoms, if anyone knows what may be causing this, please help! thank you -Katie

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12 Replies:

  • Do you ever get migraines?Have you ever had a pelvic ultrasound? You could have some kind of hormone inbalance. My niece gets very bad migraines, and had to start home schooling because she missed too many days being stuck in bed. They have found a small cyst ( or something ) on her ovary , but they're not sure if it's the cause of her problems yet. She has similar symptoms to you though, and her neurologist also gave her a MRI or CT scan (??) to see if she had a brain tumor. It was pretty freaky because just a few months earlier my dad was diagnosed with a brain tumor. Her test came back normal, but she still is trying to find something that will manage her migraines. Just know that incase it is something serious like a tumor, it's not always the end. My father had his tumor completely removed and he's back at work and feeling fine again. It is of course a super scarey thing to think about though.
    hellacat 5 Replies
    • November 11, 2006
    • 05:36 AM
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  • Sleep Apnea - get tested at a sleep clinicPituitary Tumour? my husband had some of the same symptoms, he had sleep apnea and a pituitary tumour, macroadenoma. Safely removed and is healthy. Hard to diagnose. As symptoms come and go. Physician could not lock it down.
    Margie600 2 Replies
    • November 11, 2006
    • 11:27 AM
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  • if she had an mri wouldn't they if she had a tumor
    Anonymous 42789 Replies
    • November 12, 2006
    • 04:21 AM
    • 0
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  • If you also get POST EXCERTIONAL FATIGUE .. you could have CFS also known as CFIDS (chronic fatigue immunity disfunction syndrome). I've had CFIDS for 10 yrs..and have 65/66 different symptoms with it!!!. CFS causes the kinds of symptoms you have listed there I know it can commonly cause Lightheadedness (13%), Fatigue (100%), head aches (71%), poor concentration (65%), light/sound sensistivity (13%), period and PMS problems, chest tightness, heart palpiations, panic attacks, nausea (17%) and vomiting, nightsweats, puffy eyes (17%), hair loss (4%), gladular swelling (65%).... * (the percentages are percent of ones with CFS which get that symptom from a study of 80 CFS people)
    taniaaust1 2267 Replies
    • November 18, 2006
    • 02:03 PM
    • 0
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  • Hey, thanks for all of your replies. I had the mri done, and I do not have a tumor, which I am glad about.I'm going to be seeing a neurologists about migraines though, and a sleep study. And I think I'm going to be tested for lyme disease.I've actually been to a chronic fatigue facillity bt the people there were charging us so much money because they didnt have insurance, and they werent really helping me. :-/Right now I'm treated at Mass General and they said that they think I have something more than that, and when I mentioned it to some of my doctors and they said I have more symptoms than just chronic fatigue.
    Anonymous 42789 Replies
    • November 20, 2006
    • 11:03 PM
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  • Hey, thanks for all of your replies. I had the mri done, and I do not have a tumor, which I am glad about.I'm going to be seeing a neurologists about migraines though, and a sleep study. And I think I'm going to be tested for lyme disease.I've actually been to a chronic fatigue facillity bt the people there were charging us so much money because they didnt have insurance, and they werent really helping me. :-/Right now I'm treated at Mass General and they said that they think I have something more than that, and when I mentioned it to some of my doctors and they said I have more symptoms than just chronic fatigue. "Chronic fatigue" IS completely different to "chronic fatigue syndrome" or CFIDS. It really doesnt sound as if you have just got chronic fatigue..that is why i mentioned CFIDS. Many doctors have no idea either of the amount of different problems and the severity of problems CFIDS can cause hence also often can go discounting CFIDS out if the doctor is inexperienced at diagnosing it (which 99% of doctors are inexperienced at dealing with it) and if someone has a bad cause of it. CFIDS can be severe enough to actually kill some people (but most doctors dont know this). Im glad to hear that you are going to be tested for lyme (lyme causes very similar symptoms to CFIDS). If the lyme tests negative and the doctors are at loss.. please make sure if you do get post excertional fatigue, that you go and see someone EXPERIENCED with CFIDS.
    taniaaust1 2267 Replies
    • November 21, 2006
    • 01:56 AM
    • 0
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  • Hi Katie824,There is a number of things that I think that it could be. First, I think that it could have something to do with the condition of your thyroid. Another thing that sometimes go along with problems with your thyroid is a disorder called pernicious anemia. Your symptoms of: lightheadedness, fatigue, horrible headaches, especially if they are there 24/7, poor concentration, heart palpitations, feeling of anxiety, vomitting, constipation. Some others would be: Brain fog, breathlessness, loss of balance, disorientation, extreme mood changes, a sore tongue. I would suggest that you check the different medical websites and check out pernicious anemia and see if what they say fits you. Also check out: hypothyroidism. Good luck! skeeter.:(
    skeeter 42 Replies
    • November 21, 2006
    • 02:22 AM
    • 0
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  • Okay, so I'm just gonna throw out a possible solution here. You might simply have depression. Depression and/or generalized anxiety with it. Depression can send your whole body out of whack and then the stress from that can cause more problems. My boyfriend had a problem with dizziness a couple years back that wouldn't go away. It was interfering with every area of his life. The doctors couldn't figure out what was wrong. First we got him an mri...nothing. They put him on medications for inner ear problems, etc. We couldn't figure out what was wrong. Then finally the doctor suggested he might have depression and/or generalized anxiety. She put him on lexapro and the dizziness went away in a month. Just something you might want to rule out....
    Anonymous 42789 Replies
    • November 21, 2006
    • 05:35 PM
    • 0
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  • well if your lymphnodes are swollen you could have lymphnoma or just some kind of infection... if your not sick then i would go see your doctor about it.. about the lightheadedness have you had your blood pressure checked? it could be low blood pressure defintily if it sometimes is releived by eating... because eating anything salty will raise your blood pressure, which would make you not feel lightheaded anymore
    Anonymous 42789 Replies
    • November 21, 2006
    • 08:49 PM
    • 0
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  • I really appreciate everyone's help. My parents and I have been so frustrated going from doctor to doctor, some who have been pretty rude and some who weren't any help. I'm with a good doctor now at Mass General Hospital. He's been trying to test me for everything, and I'll know what to mention to him. I do have low blood pressure, and many of the symptoms it causes, and also post exertional fatigue, so I will look into that and cfids. I'm getting tested for lyme even though i was tested last year, because my doctor said that some things you need to retest on because they dont show up tests at certain times. I have a lot of the symptoms of pernicious anemia also. My doctor doesn't think depression is causing all of these symptoms, because I have too many things, that can't be caused by all of this. I was put on antidepressants because Ive been sick so long, and I just lost my grandmother, so they didn't want my symptoms to worsen by depression. But I have a lot of lymphnode swelling, and other things it can't cause. I've also been tested for thyroid, which came back fine, the only problem i had was I had 3 cysts they had to remove on it with part of my thyroid because it was resting on my vocal cords, and I've gotten a lot I've had 2 in my fibula when I was 12. One on my ovaries, and one in my ear last year, I've had a lot of surgeries. My main problems right now are the fatigue, headaches, lightheadedness, brainfog, light and sound sensitivity, neck swelling and stiffness. I really hope to be better soon, because I want to go off to college next year! But I truly do appreciate everyone taking time to help me on here. Thanks again -Katie
    Anonymous 42789 Replies
    • November 21, 2006
    • 10:43 PM
    • 0
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  • Two months ago I started to get dizzy. The dizziness came one day and didn't go away, it was there day and nigh. I also got blurred vision some times, at times only in one eye, and, for the first time in my life, I got panic attacks, all completely out of the blue. I went to see many doctors, an ear-nose-throat specialist, a neurologist...I had all kinds of test and they told me I had an anxiety disorder and needed medication. By mere chance a friend of mine read me an article from the Balance and Dizziness Society of Vancouver (balanceanddizziness.org) that talked about blurred vision, anxiety and dizziness all related to having the first and second vertebrae of the neck out of place.Fortunately for me, I went to see a chiropractor that very day, though I had no hope of recovery because I didn't feel any pain in my neck.I had lots of anxiety and was willing to take the medication just to feel better. I thought I was going crazy.But the chiropractor explained to me that my neck was really out, and that the squishing of the vertebrae was causing the blurred vision in one or both eyes (it was even one of the questions in the questionnaire, "do you experience blurred vision in one or both eyes"), and that the anxiety was caused by the nervous system sending a "fight or flight" signal on it own, on and on, with no external reason.He told me I had a chronic back condition, though I had no back or neck pain, and asked me to give him 10 sessions without taking the medication. Well, I have gone there 3 times and I feel so good, 80% better. I am not dizzy, I have no anxiety, and no blurred vision.Without this chiropractor I would be on meds, thinking I am crazy.Please consider trying a chiropractor, it saved my life! I hope this helps.Venus
    Anonymous 42789 Replies
    • September 20, 2007
    • 09:32 PM
    • 0
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  • Hi, I'm an 18 year old female, and appreciate any help on this. I've been out of school for almost two years, because my fatigue and lightheadedness is so extreme. I've been to so many doctors, and have yet to be properly diagnosed, just have been treated by my separate symptoms. I'm scheduled for an mri with a neurologist soon because they want to make sure I don't have a brain tumor but, I don't want it to be that, but I also want to be diagnosed. In the past month or so I've gotten a really strange symptom, like my brain is being squeezed, I feel pressure from all corners of my head, and I get rushes of dizziness. They have been so severe I can't even do my home tutoring. I've been checked for thyroid,adrenal problems, hypoglycemia and tests are all negative..Well to get to the point, my symptoms are:Lightheadedness (sometimes relieved by eating)Fatiguehorrible head achesWaking up with puffy eyespoor concentrationlight/sound sensistivityheavy periodschest tightness, heart palpiationslosing hair from the front of my head( and I have pretty thick hair)dehydrationocassional feelings of anxietyvomittingconstipationswollen lymphnodes (especially in my neck and chest, I had to get part of thyroid removed because they thought it was thyroid cancer)nightsweatssorry so many symptoms, if anyone knows what may be causing this, please help! thank you -KatieHave you been checked for your body making too much blood? Don't remember what it's called, but it was on Medical Mysteries not long ago. It's rare, has some seriously screwy effects on the one afflicted & is not checked for routinely because of its rarity, though it's not hard to detect. The fellow on the show got his life back when it was finally diagnosed. The treatment sounds medieval; the patient has to be regularly bled in the doctor's office. Might be worth checking out.
    Anonymous 42789 Replies Flag this Response
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