Discussions By Condition: I cannot get a diagnosis.

light sleep, brain fog, appetite loss, worsened by exercise

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: superfob
  • February 6, 2010
  • 10:11 PM

Hi everyone,

For the past several months, I have been experiencing a variety of symptoms which appear similar to those in chronic fatigue syndrome.

It first began with insomnia and light sleep on days when I would hit the gym and lift weights . I would get this wired feeling, as my brain were overstimulated, and would have difficulty concentrating afterwards. This definitely felt different from the usual endorphins which I would get after a workout.

While the symptoms were noticeable, they did not severely affect my daily activities. In the past few months, however, I have noticed a worsening of my symptoms, which include:

-light sleep, and delayed sleep onset: My sleep repeatedly feels very light, and I have no recollection of any dreaming occurring in the past week . My sleep is unrefreshing and I am aware of myself drifting in and out of sleep.


-brain fog, difficulty concentrating: This is probably a result of my light sleep. I have this wired feeling in my brain, and difficulty concentrating and remembering things

-physically weaker & loss of appetite

-hair loss: This is not significant, but I have noticed an increase

-constipation, hard & pasty stools: I eat a lot of vegetables and drink a lot of water

-a couple of times, I have noticed myself breathing shallow strangely during the day. I would have to force myself to take deep breaths to increase my oxygen intake

-a couple of times, I also noticed a slight pulsating pain near my chest: This has not worsened and occurs randomly, but I noticed that usually happens at night when I am in bed

I would like to note that these symptoms seems to appear or progress after I caught a flu (I think it was the swine flu).

Exercise worsens my insomnia. Initially, I noticed that weight lifting would trigger that wired mental state and the inability to sleep, but recently, a slight elevation of my heart rate on the bike would also trigger it. For the past two weeks, I have stopped exercising besides walking, and the symptoms above still persist.

I have done the standard blood tests and everything is normal besides a vitamin D insufficiency, but I do not feel like this is the cause of my symptoms: the level is not significantly low. I did notice an increase in my urine pH levels from two years ago: 6.5 to 8.0 (one was taken in the morning, the other in the afternoon). My white blood cell count is low, but this has been the case in the past and also with my dad.

When I visited a doctor, he was unable to come up with a diagnosis, besides maybe depression or a mental fear of exercise, which worsens the insomnia (I feel like this is definitely not the case). While my doctor seems open minded, I feel like I may need to see someone else or a specialist.

Does anyone have any ideas? The symptoms seem to point to chronic fatigue syndrome, but I would really like to figure out the underlying cause or how I might cure it.

Thanks for reading

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1 Replies:

  • Hi,It does sound like CFS, unfortunately if that is what you have there is no cure and scientists do not yet know the underlying cause. Lately studies have pointed to a virus called XMRV as a possible cause but this theory is far from proven.There are many steps you can take you relieve symptoms and a good doctor who specializes in CFS should be able to help you. Also you need to make sure that you don't have some other condition causing your symptoms. Since until recently CFS was thought of as being 'in the patient's head' it can be hard to find a knowledgeable doctor.Your best bet is to do an internet search for CFS advocacy and support groups. Their websites often have 'good doctor' lists, which list doctors that CFS patients have had good experiences with or who specialize in CFS research and treatment.BEWARE of scams! Because CFS and other diseases like fibromyalgia are 'invisible illnesses' that can't be diagnosed with a blood test or x-ray, there are plenty of quacks and gurus out there who will rip you off by selling you 'cures.'Good luck and keep us posted,E
    ErinBBC 17 Replies
    • February 8, 2010
    • 11:03 PM
    • 0
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