Discussions By Condition: I cannot get a diagnosis.

LGV? I can't cope much more

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • November 14, 2009
  • 03:58 PM

It's a long story - but in a nutshell, I am a bicurious guy in my 30s and around 5 months ago I had a casual relationship with 2 other guys which involved ('only') oral sex, giving on one and receiving by the other.

I then developed some irritation in my penis and visited the STD clinic. Visits showed there was some NSU due to presence of something called polymorphs indicating infection - but all results for Chlamidia, Gon, HIV, Syph negative. I have been back and forth with persistent irritation in my pensi and a sore throat. Over the weeks I have been treated with Azitrhomycin (4 tablets in one go); Doxycycline for a week; Azithromycin and Metrondiazole for a week and then repeated again for a further 5 days. Eventually there was no sign of polymorphs on testing and latest 12 week tests continute to be negative for everything.

The problem - For last four months Ive had a persistant sore throat and shooting pains under one side of my jaw. The glands in my neck mainly on one side swelled up (when I turned my head side to side I became conscious of them) and my tongue felt like id burnt it on hot coffee. My throat is still sore, and whilst the pain in my neck isn't as bad as it was, in the past week or so I now have felt like i had sore armpits and I have just found a small marble sized lump in one of my armpits. It is quite visible with some skin reddening.

I went to the clinic recently (prior the armpit symptom) and the Docs said I 100% can't have an STD, and that my symptoms are more likely to be associated with stress/guilt etc and perhaps I needed counselling instead. Im not convinced that these can cause such enormous physical changes, including the additional swollen armpit glands. How many times do I have to go to the clinic over this - ive lost count - it must already be 6 or 7 and it's 5 months on!

I know it's not good to look up symptoms on the the internet - BUT I feel I have no choice. Ive been to my own family doctor (who doesnt know about my history) and all routine bloods for mono etc etc are all clear).

On looking at many documents on the internet I came across 2 STDs that give symptoms like mine - Syphillis and Lymphogranuloma Venereum a rare STD that is a nasty variant of Chlymidia usually found in africa, asia but re-emerging in the US and western Europe. I mentioned it to my docs, esp as the man who I perfromed oral on was asian but they insisted that it wouldnt be, and that even if it had they would have picked it up in previous screens. Really? _ they only ever sampled my blood, urine and swabbed my penis. This is in my neck area. However, all my symptoms and how I got to be in this situation in my mind at least are the same as for LGV and Syphillis. I know I dont have Syphillis as the tests for this are apparently always very clear - my last check at 12 weeks was negative.

Most web sites discussing LGV talk about the problems associated with anal / vaginal / penis area infections. All sites say infection can occur orally but none of them expand on this - one or two point out that the nearest glands all swell up. All sites focus on the terrible symptoms that can develop in the anal/pubic area instead. i want info on what happens if only oral sex spread it to your throat. My STD doc said Chylamidia doesnt live easily in the throat. Numerous reports on web seem to contradict this - but the STD doc was a specialist. Testing for the Chlymidia in pubic/anal regions is easy. However - how can they test for something that may be living in the glands of my throat. A swab has been taken of my throat recently but again Im told it wont show up anything. Ive also had bloods done but I think these are only used for HIV/Syph.

I am really very scared. I dont know what is wrong - but I must have an infection of some sort due to all the symptoms, and the fact that they began shortly after the initial contact makes me feel even more sure. I need to get a clear diagnosis and get myself better as it's affecting my life in such a way that I dont think I can cope much longer. I suppose I should contact the clinic again and tell them about the lumps in my armpits - but I think I am going to hear the same story again. :-(

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4 Replies:

  • hello, i am going threw almost almost exact same thing and the thousands i've spent on copays is just insane. i'm up to 15 dr.'s now and noboday can tell be whats wrong. it all started after a stupit unprotected sexual experience with a total man ****e (who never "finished") but three days later my tongue swelled and i had a bump in my tounge which went down after multiple random antibiotic treatments and my cheeks went white and still are (inflamation) and i had lots of burning swelling in my vagina/labia. all multiple tests come bace neg. (i.e. hiv., hep, syphliss, gon., etc, etc..). now 7 months into this all of my lymph nodes are going crazy and especially my armpits, my left in particular. i have palns on admitting my self into the er because nobody can figure out what this is and i am convined that it is bacterial because of the changes i could feel on certain antibiotics. i looked up rare std's on the internet and found "lgv" and also your message. i plan on having my lymph node on my left armpit biopsied and to check for this as i agree the symptoms sound like sympliss and this! hang in there you're not alone and we will get a diagnosis but it will take a biopsy, not just a culture. AND WE"RE NOT CRAZY AND IT'S NOT IN OUR HEADS!!!!!!!!!!!!!!
    Anonymous 42789 Replies Flag this Response
  • There are also probably 100s of things out there yet undiscovered!!! When you go to a doctor all they can test you for is the things they know. Take the recently discovered XMRV (a mouse retrovirus which has just been discovered in about 3% of the normal population). This virus they think is transmitted by body fluids (they know its not airborne!) and they are worried enough about it that they have in past month banned a group who may commonly carry it, from donating blood in some countries. (Ones with CFIDS arent now allowed to donate blood in Canada, Australia and New Zealand till more is know about XMRV). Im not saying XMRV is your issue (thou they still dont currently know what issues it causes thou there is a connection with prostate cancer with I think it wsa 25%? of those with prostate cancer testing postive to XMRV.. if its in CFIDs too and causes immune dysfunction as some are thinking now.. could some have XMRV but get other symptoms????? no one knows right now, its very very possible). i want to point out that whatever the thing is you've caught... it may be something they dont currently even know about yet. I have CFIDS and believe i probably carry XMRV (im awaiting for a test to become publically available for it so i can be tested for it). I had a past boyfriend who was made sick whenever he kissed me.. his glands would go up etc and within 24 hrs of kissing me he was always sick.. it got to the point where he couldnt kiss me as kissing me made him come down sick. (my other boyfriends have been fine but that one who came down ill.. his general health was poor to start with (he got tired an abnormally lot).. so whatever i carry..obviously his body had to go to effort to fight off each time on body fluid/saliva exposure to me (we wore condoms). He thou was fine with kissing others.. the issue was only with kissing me. Unfortunately many doctors will dismiss people when they cant find something wrong with the person having depression or anxiety. (You do seem to be very anxious but that dont mean you havent got another issue going on).
    taniaaust1 2267 Replies Flag this Response
  • It's a long story - but in a nutshell, I am a bicurious guy in my 30s and around 5 months ago I had a casual relationship with 2 other guys which involved ('only') oral sex, giving on one and receiving by the other. I then developed some irritation in my penis and visited the STD clinic. Visits showed there was some NSU due to presence of something called polymorphs indicating infection - but all results for Chlamidia, Gon, HIV, Syph negative. I have been back and forth with persistent irritation in my pensi and a sore throat. Over the weeks I have been treated with Azitrhomycin (4 tablets in one go); Doxycycline for a week; Azithromycin and Metrondiazole for a week and then repeated again for a further 5 days. Eventually there was no sign of polymorphs on testing and latest 12 week tests continute to be negative for everything. The problem - For last four months Ive had a persistant sore throat and shooting pains under one side of my jaw. The glands in my neck mainly on one side swelled up (when I turned my head side to side I became conscious of them) and my tongue felt like id burnt it on hot coffee. My throat is still sore, and whilst the pain in my neck isn't as bad as it was, in the past week or so I now have felt like i had sore armpits and I have just found a small marble sized lump in one of my armpits. It is quite visible with some skin reddening. I went to the clinic recently (prior the armpit symptom) and the Docs said I 100% can't have an STD, and that my symptoms are more likely to be associated with stress/guilt etc and perhaps I needed counselling instead. Im not convinced that these can cause such enormous physical changes, including the additional swollen armpit glands. How many times do I have to go to the clinic over this - ive lost count - it must already be 6 or 7 and it's 5 months on! I know it's not good to look up symptoms on the the internet - BUT I feel I have no choice. Ive been to my own family doctor (who doesnt know about my history) and all routine bloods for mono etc etc are all clear). On looking at many documents on the internet I came across 2 STDs that give symptoms like mine - Syphillis and Lymphogranuloma Venereum a rare STD that is a nasty variant of Chlymidia usually found in africa, asia but re-emerging in the US and western Europe. I mentioned it to my docs, esp as the man who I perfromed oral on was asian but they insisted that it wouldnt be, and that even if it had they would have picked it up in previous screens. Really? _ they only ever sampled my blood, urine and swabbed my penis. This is in my neck area. However, all my symptoms and how I got to be in this situation in my mind at least are the same as for LGV and Syphillis. I know I dont have Syphillis as the tests for this are apparently always very clear - my last check at 12 weeks was negative. Most web sites discussing LGV talk about the problems associated with anal / vaginal / penis area infections. All sites say infection can occur orally but none of them expand on this - one or two point out that the nearest glands all swell up. All sites focus on the terrible symptoms that can develop in the anal/pubic area instead. i want info on what happens if only oral sex spread it to your throat. My STD doc said Chylamidia doesnt live easily in the throat. Numerous reports on web seem to contradict this - but the STD doc was a specialist. Testing for the Chlymidia in pubic/anal regions is easy. However - how can they test for something that may be living in the glands of my throat. A swab has been taken of my throat recently but again Im told it wont show up anything. Ive also had bloods done but I think these are only used for HIV/Syph. I am really very scared. I dont know what is wrong - but I must have an infection of some sort due to all the symptoms, and the fact that they began shortly after the initial contact makes me feel even more sure. I need to get a clear diagnosis and get myself better as it's affecting my life in such a way that I dont think I can cope much longer. I suppose I should contact the clinic again and tell them about the lumps in my armpits - but I think I am going to hear the same story again. :-(************************************************************************Have your doctor give you a Dose Pack. It is PREDNISONE 5 MG TABLET and here is the information for you: http://www.healthcentral.com/rheumatoid-arthritis/find-drug-151236-73.htmlPrednisone is a corticosteroid hormone (glucocorticoid). It decreases your immune system's response to various diseases to reduce symptoms such as swelling and allergic-type reactions. It is used to treat conditions such as arthritis, blood disorders, breathing problems, certain cancers, eye problems, immune system diseases, and skin diseases. Do you still have your tonsils? My Partner got a very sore throat after we met with a friend for some fun. Our friend was rather well endowed and he got what the doctor called infected saliva glands and the doctor put him on the dose pack and it was fine. I did not get the same problem and it was more then likely my partner got it because he is a diabetic. If you have your tonsils you could of had strep but the antibiotics you took should have taken care of it. If you wait to long to get treatment for strep and you have a certain type of strep it can cause a lot of problems. Not knowing what your partners were like, I would be a bit more choosy next time. I hope this helps because a dose pack is what they give when they can not find any problems or they are stumped. Hang in there and sounds like one other problem you have is a poor health clinic. If you do not have a regular doctor, go to the ER. They will find the problem on the first visit.
    whiskey43 3 Replies Flag this Response
  • get a paul bunnel test done to be on safer side .. its to detect INFECTIOUS MONONUCLEOSIS
    arjun4mb 80 Replies Flag this Response
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