Discussions By Condition: I cannot get a diagnosis.

Leukemia in 3 year old maybe? Please help

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: wasabi
  • April 9, 2009
  • 04:29 AM

Hi,
I have a little boy who is 3 and a half years old.
For almost a month he has suddenly been getting terrible night sweats where he totally soaks through his clothes and bed sheets.
He Had fever's and lethargy daily for the first 2 and a half weeks and now he seems fine during the day but gets the fever back in the late afternoon and becomes lethargic again.
It started with tummy pains which seems to have settled. I thought it was just viral and left it for the first 2 weeks but because the fevers kept continuing i took him to the doctor who checked his ears, throat, chest and tummy, which was all clear.
He also gets nose bleeds for no apparant reason. None of my other children have ever suffered from nose bleeds. He is a kid so the bruising he gets could be normal for his age group.
He looks pale all the time and seems to want to sleep all the time. He also has swollen glands in his neck, but that is normal for viruses too.
I don't want to put him through the trauma of a blood test if it's just viral but don't know how long to wait before I should take this seriously. It's now around 4 weeks since the first symptoms started. So I just want to know how much longer to let it go on before getting him tested.
Thanks

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13 Replies:

  • Ask his pediatrician and not strangers on the Internet if you truly think your child may have leukemia.
    Monsterlove 2921 Replies Flag this Response
  • Hi,I have a little boy who is 3 and a half years old.For almost a month he has suddenly been getting terrible night sweats where he totally soaks through his clothes and bed sheets.He Had fever's and lethargy daily for the first 2 and a half weeks and now he seems fine during the day but gets the fever back in the late afternoon and becomes lethargic again.It started with tummy pains which seems to have settled. I thought it was just viral and left it for the first 2 weeks but because the fevers kept continuing i took him to the doctor who checked his ears, throat, chest and tummy, which was all clear.He also gets nose bleeds for no apparant reason. None of my other children have ever suffered from nose bleeds. He is a kid so the bruising he gets could be normal for his age group.He looks pale all the time and seems to want to sleep all the time. He also has swollen glands in his neck, but that is normal for viruses too.I don't want to put him through the trauma of a blood test if it's just viral but don't know how long to wait before I should take this seriously. It's now around 4 weeks since the first symptoms started. So I just want to know how much longer to let it go on before getting him tested.ThanksHi wasabi,Monsterlove has given you very sound advice above. Some of your son's signs & symptoms could be caused by a viral infection but there IS a possibility that he may have leukemia, given the specifics you report and the month-long duration.See your pediatrician now. Your son needs, at minimum, lab diagnostics including a complete blood count with a differential to determine numbers of red cells, white cells, and platelets, and a comprehensive metabolic panel.I hope that your son's test results don't point toward leukemia BUT if they do the time to start treatment is NOW.Best regards,John
    JonMac 165 Replies Flag this Response
  • We are in Australia it's not as easy as just going to a pediatrician LOLI ended up taking him to the ER and he had a blood test done there.It showed white count thru the roof and high platelets. I have no idea what it all means though.They have ruled out viral but they say they think he has some sort of blood disorder but didn't say what exactly.They have taken more blood to look at the shape of his cells.He will also need to go back in on Monday for tests on his bones..anyone have any idea what they may be looking for?
    wasabi 17 Replies Flag this Response
  • We use cell phone and a wireless router but so do most of Western society.I'm so sorry you have had an adverse reaction, it must be terrible to have so many symptoms.My 11 year old daughter had a glioma when she was 5 and it went away on it's own. the symptoms were totally different though.My son has night sweats, daily fevers for weeks that come and go on it's own and he has had weight loss. The nose bleeds may be unrelated, but he has had a few over the past few weeks which is unusual. We have had hot weather though and alot of smoke from bushfires.. so it may be related to that.He has swollen lymph glands and spleen apparently too which they found out at the hospital.
    wasabi 17 Replies Flag this Response
  • We are in Australia it's not as easy as just going to a pediatrician LOLI ended up taking him to the ER and he had a blood test done there.It showed white count thru the roof and high platelets. I have no idea what it all means though.They have ruled out viral but they say they think he has some sort of blood disorder but didn't say what exactly.They have taken more blood to look at the shape of his cells.He will also need to go back in on Monday for tests on his bones..anyone have any idea what they may be looking for?Hi wasabi,The high white count & platelets, coupled with the physical symptoms you've reported, definitely have them looking for leukemia, which is characterized by abnormalities in bone marrow function. The blood cells are manufactured in the bone marrow and, in cases of leukemia, the bone marrow manufactures blood cells in bizarre patterns. That is why they drew more blood from your son...to identify and differentiate the various types and numbers of specific white cell types present.When you see the Doctor on Monday your son will have a test called a bone marrow aspiration and likely also a bone marrow biopsy. This test is done to determine how your son's bone marrow is functioning. The link below will give you specific information and answer questions you may have regarding these tests:http://www.mayoclinic.com/health/bone-marrow-biopsy/MY00305Please don't panic at the thought of this. There is currently good treatment available for a variety of types of childhood leukemia.My thoughts are with you. Keep your chin up and please let us know how the tests go.Best regards,John
    JonMac 165 Replies Flag this Response
  • hi you really need to take your son in my grandkid has the same simptom please dont wait shee has all lekemia Hi,I have a little boy who is 3 and a half years old.For almost a month he has suddenly been getting terrible night sweats where he totally soaks through his clothes and bed sheets.He Had fever's and lethargy daily for the first 2 and a half weeks and now he seems fine during the day but gets the fever back in the late afternoon and becomes lethargic again.It started with tummy pains which seems to have settled. I thought it was just viral and left it for the first 2 weeks but because the fevers kept continuing i took him to the doctor who checked his ears, throat, chest and tummy, which was all clear.He also gets nose bleeds for no apparant reason. None of my other children have ever suffered from nose bleeds. He is a kid so the bruising he gets could be normal for his age group.He looks pale all the time and seems to want to sleep all the time. He also has swollen glands in his neck, but that is normal for viruses too.I don't want to put him through the trauma of a blood test if it's just viral but don't know how long to wait before I should take this seriously. It's now around 4 weeks since the first symptoms started. So I just want to know how much longer to let it go on before getting him tested.Thanks
    dinejazz 1 Replies Flag this Response
  • I just had a phone call from the doctor at 10pm tonight.It almost gave me a heart attack but it was good news.The blood test to see the shape of the cells were almost normal so I was told not to stress about taking him back before Monday. It's not as urgent as they thought it may be.He still has to go back, but if he doesn't have anymore night sweats and fevers before then they will hold off doing anymore tests unless it all starts up again.
    wasabi 17 Replies Flag this Response
  • What great news! But please keep your doctors on their toes. There are 2 types of this disease, ALL the acute form and CLL the chronic form. The chronic form can take years to develop, and is controlable. Kiera
    Anonymous 42789 Replies Flag this Response
  • Wow blaze that's some scary stuff :(My 11 year old got her Glioma before we owned a cordless phone or router.She was only 5 so never used a cell phone (still doesn't). Actually I didn't use one much myself back then.I'm not ruling it out for my son though. We have a cordless phone upstairs where the bedrooms are (in my bedroom where he often sleeps) and he talks to his Dad on my cell phone or cordless atleast once a day when Dad's at work.We have the routers with the computer downstairs in the main living area too.Ick modern technology always has it's downsides eh?
    wasabi 17 Replies Flag this Response
  • I just had a phone call from the doctor at 10pm tonight.It almost gave me a heart attack but it was good news.The blood test to see the shape of the cells were almost normal so I was told not to stress about taking him back before Monday. It's not as urgent as they thought it may be.He still has to go back, but if he doesn't have anymore night sweats and fevers before then they will hold off doing anymore tests unless it all starts up again.Hi wasabi,THAT is just an excellent phone call to receive!! Things are certainly looking better than yesterday. The bone marrow aspiration on Monday will give a good overall picture of the nature of any blood disorder, but it's wonderful to hear that the initial white blood cell analysis is more positive than negative.My thoughts and best wishes remain with you and your son. Please let us know Monday's results when you receive them.Best,John
    JonMac 165 Replies Flag this Response
  • It seems the doctors are concerned with the same thing.The word Leukemia was mentioned loud and clear today :(
    wasabi 17 Replies Flag this Response
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  • It seems the doctors are concerned with the same thing.The word Leukemia was mentioned loud and clear today :(Hi wasabi,Is it Monday in Australia now...or did the docs call again? I ask because it's still late Sunday evening here in the US.Don't let the word "leukemia" get the best of you. Acute lymphoblastic leukemia (ALL) (also known as acute lymphocytic leukemia) is the most common form of childhood leukemia. There are many subtypes of ALL that respond really well to treatment and often effective treatment can put kids into complete remission. There are also some ALL subtypes that are more serious and tougher...but not impossible...to treat. The MOST important factor right now is a good accurate diagnosis to determine the best course of treatment so please don't be upset if the docs seem to be running repetitious and endless tests.Now is the time to keep your chin up for both yourself and your son. My best to you both and if I can help in any way I'll be more than glad to.Please keep us apprised of all developments.All the best,John
    JonMac 165 Replies Flag this Response
  • Hi John,it is Monday afternoon here now. We are a day ahead of you here in Australia.Thanks for your support and information, I really appreciate it.
    wasabi 17 Replies Flag this Response
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